Guest guest Posted August 8, 2006 Report Posted August 8, 2006 Hi , Nice to meet you too! Yes, I think that a trip either to the Judy Center at Hackensack or the Child Development Center at town Memorial Hospital would be worth your time. The reason why I went to the Child Development Center was because my friend's sons have seen Drs. Fadden and Nanna-Obi (one son has DS and the other son PDD-NOS, and received the diagnosis there) and highly recommended them. I'm sure that Dr. Hirschenfang would have drawn the same conclusions. Both hospitals are excellent; I think it's a function of what your more comfortable with and what's more convenient (town Memorial certainly would be traveling on 287 North from Middlesex County). I believe that both hospitals also offer speech/OT/PT services. I would be happy to discuss these options further with you if you wish, so please feel free to contact me at brendamcdonnell@.... Best, Mom to , 35 months DS-PDD/NOS > >Reply-To: >To: >Subject: /Jane >Date: Tue, 08 Aug 2006 22:28:37 -0000 > >Hi - We also live in New Jersey (Middlesex County)! I was thinking >of taking Liam (10) to the Judy Center - would you recommend it? I >was thinking that perhaps they could give us a good overall >assessment of his development and skills and make suggestions for >areas we should be addressing in OT, Speech and PT. I'm looking for >someone other than the school system to take a look at the big >picture and give us some guidance on what next. We got a diagnosis >of PDD from Dr. Capone (although I'm questioning it at the moment) - >do you think a trip to Judy is worth it? >Nice to meet some fellow New Jerseyans! > >mom to Liam DS, PDD? - age 10 and Jack, NDA, 5 > > > > > > Hi Jane, > > > > I reside in northwestern New Jersey (Mount Olive Township). We >brought our > > son to the Down Syndrome Clinic at Hackensack University >Medical > > Center (Judy Center for Down Syndrome). > > Dr. Fred Hirschenfang is the Medical Director, (201)996-JUDY. Most >of the > > children from 's school see Dr. Fred on an annual basis. He >and his > > staff are extremely knowledgeable. > > > > We also brought to the Child Development Center at >town Memorial > > Hospital, (973)971-5227. It was here where received the >initial > > PDD-NOS Diagnosis (Dr. Fadden or Dr. Nanna-Obi are excellent). > > Unfortunately, it could take at least 2-3 months for appts., but >it was > > worth it. > > > > Finally, saw Dr. Capone at Kennedy Krieger Institute for a >second > > opinion. I'm so glad that we did and have decided to take the ride >to > > Baltimore on an annual basis. > > > > Best, > > > > Mom to , 35 months, DS-PDD-NOS > > > > > > > > > > > >Reply-To: > > >To: < > > > >Subject: RE: Jane > > >Date: Tue, 8 Aug 2006 09:57:39 -0400 > > > > > >Sara - I'm glad that our lack of dx was not just due to our poor >parenting > > >skills. That is what we encountered. An underlying sense >of " what else > > >could we expect given her low functioning level. " And this from >a > > >pediatric > > >group who was considered expert in the arena of the disabled. >They were > > >great addressing her medical issues but little else. I am >currently > > >looking > > >into a medical clinic run by the ARC - hopefully they will >understand the > > >issues of both DS and ASD better. > > > > > > > > > > > >We live near the New Jersey shore and have been fortunate in that >NJ > > >provides fairly decent schooling opportunities through age 21. > > > >attended a self-contained classroom in our school district until >age 14 > > >when > > >she transferred to a private special -education school which she >has just > > > " aged " out of this spring. We are fortunate that the school had >developed > > >an adult program and since had been one of " theirs " they >accepted her > > >into their program in spite of her behavior issues. They know >her and > > >think > > >she's cute and funny. > > > > > > > > > > > > stills lives at home with us but we've started to think >about > > >eventual > > >placement since both my husband and I are older and with only a >single > > >older > > >brother she will need something in place within a few years. I >have to > > >admit that the idea of placing her somewhere permanently brings >tears to my > > >eyes but I realize that we need to plan for her future. > > > > > > > > > > > >jane > > > > > > > > > > > > > > > > > > > > > > > > Jane > > > > > > > > > > > >* > > >I am the mother of a 21yo young man who was not dx until he was >12yo. > > >Primaary reason for the lack of secondary dx was that dr always >dismissed > > >his behavior as being a cognitive one (his issue) and poor >parenting(my > > >issue). > > > > > >We , my family, found the best source is a ds clinic with good > > >developmental pediatrician. Many ds clinics will see people past >21 for > > >dual > > > > > >dx. I don't know where you live, but let us know. We, on this >list, live > > >all over the world and have found good dr's in many parts of the >world who > > >could be of help to you. > > > > > >Is your daughter still in school, a day program, living at home, >etc.? > > > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > > > > > > > > > > > > Quote
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