SO, fatigue

[Guest guest]

have two things first the great news is nathan got second place at special

olympics in the softball throw and in the 50 meter dash, yaaaaa, then ofcourse

he was treated to mcdonalds, lol

the second is im getting really worried about nathan, he always seems sooo

tired, and the doc is trying to get proper coding so we can sedate him for blood

draws, as this is a TASK as many of you parents know, He wears his bipap well,

and we notice no apnea while using it, so pressure should be ok, but he

continues to fall asleep at school and at home, goes to bed around 9-10pm, and

sleeps all night, has pretty much since he started with the cpap, other than the

occasional insomnia. He naps after school almost daily. I figure its probably

just thyroid, and hoping that it will be as simple as needing some synthroid but

after visiting dr linshens (SP?) site im worried about his oxygen levels, maybe

they are getting low? or worse of all luekemia, it talked about the extreme

fatique and weakness, and infections, he has had an ongoing snotty nose for long

time now, but that is not unusual for him, and a few ear infx, too but is also

not unusual, even after mcdonals after

special olymics he slept the whole 30minutes home, fell asleep b4 we even got

out of the neighboring city where the olympics are held. Its hard to get him out

of bed, he puts his head down often and falls asleep at school frequently, no

fevers that any of us have noticed, just the great fatiue, snotty nose and

occasional moist cough, lung sounds clear to me and to school nurse, but as a

nurse that doesnt really mean anything iv had pts b4 who sound clear to us but

have pnuemonia never the less, the doctor is aware of this and i keep notifying

and she is trying to see about blood draw but im at a loss of what else to do,

any suggestions? should i try his iowa city doctors? worried , shawna

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