Bev/Dawn/Laurie

[Guest guest]

<<Or....he'll say " Looks like " Whoopie " (Goldberg). Bev mom to Craig, 20,

Magenis Syndrome>>

Hi, Everyone....Bev....Gareth is a BIG Whoopie fan. She is one of the few

people that he 'recognizes' on TV.

<< is getting ready to do the upper gi tests so just wondering if I

should be wary of certain meds. >> Dawn...I had Gareth in Tues to

see the Ped. Gastro

Dr. I showed him Sherry's paper and he said that if people are

'predisposed' to certain conditions, then the meds may cause problems. He

recommended

that I give Gareth a multivitamin each day if I was concerned.....I already

give him a Centrum, so he said don't worry about it till/if issues ever arise.

The alternative is a painfully, raw esophagus. Like any other med, you will

have to watch for side effects.

<<after I told them I have different dreams than they do because Mic will

not go to college or get married >> Laurie...why do say Mic

will never go to college, etc. You have to be more upbeat than that.

Gareth has been planning ahead for 'college' since he started 9th grade. Will

he

go to a regular college and grad with a degree.....no. But the point is,

there are many schools and tech programs geared for our kids to learn a trade,

etc, and build self esteem. Don't give up on Mic....he's only 6!!! When

Gareth was six, we had our first official documentation in hand.....he was DS,

ADHD, had Tourettes, and was severely autistic. At that point in time, we were

told nothing could be done for him!!! At age 17, Gareth wants to go to

college and he has a girlfriend. Mic will have so many more options available

to

him than Gareth ever had. Please.....don't be so negative about Mic's

future....it brings me down!!! Take

care, Everyone.

Margaret

[Guest guest]

<<I showed him Sherry's paper and he said that if people are

'predisposed' to certain conditions, then the meds may cause problems.>>

Just to be clear, this is not " my paper " it's from the Pharmacology department

at Washington State University and is what they are currently teaching.

Sometimes there's a big disconnect between pharmacists and medical doctors who

get most of their info from sales reps.

I agree a daily multiple is a good cover to prevent problems. has never

been able to take a multivitamin, plus her Prevacid dosage has been 60 mg for 4

yrs....like a double dose so we've really been pushing the envelope. Believe me

I am not looking forward to having to take her off of it cause I don't have a

clue what we're going to do about the gastritis. He's probably going to want to

do an endoscopy (Woozle) before anything. The problem now is that the iron

supplements and all the other junk she's getting to fill up the holes is hurting

her stomach more than she was without Prevacid so it's a mess. I am certainly

not anti-Prevacid- it made a huge happy difference in our lives. I'm just on a

minor mission to warn anyone whom may be on it longterm at a high dosage (or

not) to keep watch on the possible nutritonal problems that may present as

" mysterious " behaviors.

happens to be one of those kids who always has the " extremely rare "

reactions to everything.

I just finished a search on the ABMD list for biomedical interventions in Autism

and alot of regular autistic kids seem to have had side effects from the

Prevacid type drugs. I don't know that many " only " DS kids who are on it. Truly,

when we first put her on it we were thrilled at the peace and quiet and lack of

moaning and groaning all the time.

Sherry