Dawn

[Guest guest]

Hi, Everyone....Dawn....are you charting his behaviors all day? Does he

seem to be more wild half an hour after and before meals. It may be reflux. We

never found out about Gareth's till he was ten.....by then his esophagus was

raw meat. Is his abdomen distended and hard....possibly bowel issues. When

Gareth was 15, he had to have hip surgery. By then his right hip was worn

away to half the socket. The Dr said any 'normal' person would have been

complaining of severe pain and in a wheel chair. Not Gareth!!! Gareth just

got

braces for his ankles in January. He was basically walking with his ankles

turned in and almost on the ground because of his flat feet. After he wore

them for a day or two he said " Mom...feet don't hurt no more. " As many times

as

I have asked him over the years if his feet hurt, he would always tell me

'no.' After he got the braces, I think he finally realized that his feet did

hurt him.....God alone knows for how long. The one time he had a severe

bladder infection, I found out because *I* insisted on the Dr doing a urine

test.

He had been potty trained for over two yrs and all of a sudden started pooping

and peeing in his pants......going off to hide in the corner to do it. I

wanted to share this with you because our kids don't always understand pain and

how to deal/relate to it....except through their behaviors. Believe me, I

understand you and your concerns......I truly wish we had answers for you.

Unfortunately, most of G's major medical issues were found by coincidence

because he could not relate the pain accordingly. Keep charting......

Take care, Everyone.

Margaret

[Guest guest]

Hi Dawn,

Thanks for voluntarying. I'll take a virtual secretary over none,LOL. I don't

always do everything as well as I should. I will pop in and out in the next few

weeks but The IRS will be at my door along with my fair committees if I don't

finish these taxes and contracts. Work, work, work. would you mind finishing the

filing,LOL.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

Hey there, Donna, hope you had so much fun on your trip, you are good

to take time for the two of you!!!! and Irma, just wondering how was

s baseball game?!! hope it goes well! (did he wear his cap?) and

Charlyne, if I could I would be your secretary!!! your day sounded so

busy, dont know how you do it all, God Bless you all and the group,

Dawn

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--------------------------------------------

[Guest guest]

yeah, and i have a stack to file when you're done at Charlyne's!!! LOL!

charlyne olko wrote: would you mind finishing the

filing,LOL.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

Messenger with Voice.

[Guest guest]

Hey Dawn,

You were certainly right. Today I received a call from the Leader of

the support group who brought us together as a team at the Challengers

Baseball game and wanted to thank me for making the parents understand

about their kids and they were so impressed how we comfort each other,

they do not feel alone and looking forward to the next game. I had

mentioned to the person whom called me to contact an OT whom I know who

specializes with SID and of course mention my name to discuss about

Sensory Integration.

Then I had mentioned 2 other people for future presentation on Social

Stories, the other one on The Power of Positive Reinforcement, Using

Behavior Analysis there is another one but I rather speak to them in

person in regards to RDI. Have to a bag of interventions as each child

is different and the parents could check out what is available in our

own city that might help their kids or at least to understand

something. Watching them brings me memories of what I dealt with when

was younger.

Right after the game I had rushed to our local AU support group meeting

because one of my friends was not going to be able to attend and she

has a son who is an adult under the spectrum and she wanted to make

sure to get the ball rolling for the parents with adults under the

spectrum. Yesterday and today some more compliments that they can not

wait until April's meeting and a pleasure meeting me, they've really

missed out on so much. Some of them after the meeting had followed me

out to the parking lot for my contact info. : )I guess I should have

some of those cards with my info.

Another parent who attended the meeting for the younger group could not

wait to share how many attending were there because of me, as I highly

recommended for them to attend and listen to the speaker who I adore so

much. In a way I was upset as I wanted to be there, but told them that

there was just too much going on the same day, at least they had the

opportunity to attend and boy did they learn new info. Speak about

having a circle of friends and best of all they are not alone, which I

like. Supposedly the name they had given me was " Cherub " .

I'm really a shy person and will not talk to anyone until someone makes

the first move but glad that I did not come across on what I thought,

close call, thanks for your support of comfort.

Today at The Movement Program which is held at a University, the

student had heard about doing wonderful at the game that he can

not wait to go out and be his buddy, this would be part of his

internship. Other students had overheard and I told them that many kids

could use some buddies. I'm really praying that they can make it out

there so that the other kids could have someone to guide them. They are

such a joy to watch them having fun.

Your welcome in regards to the GI site, do hope something helps at

least to understand for when 's doc ends up telling you something

you already know that he is on the right track of exploring any

physical aspect.

So I leave with this, just the thought of it. Hope you're able to

review it.

If you need a laugh, this is it. Someone ought to play this at DAN and

Autism One!

http://www.cbc.ca/airfarce/vidplayer/AF_single_player.html?/season13/051

202m & amp;playerType=wmp

Irma,17,DS/ASD

>

> Oh Irma, I have a feeling you did NOT come across as " do this or do

> that " to these parents, I have a feeling you helped them a great

> deal as you help all of us!! Good for , so glad he had fun,

> and I also wanted to thank you for your post to Jayne about the GI

> dr. when I speak with our's again about , I think I know what

> to ask him, I went to the web site you posted, we will get to the

> bottom of all this!!! again, thanks for the update on , (I

> think I have read some Of the book you mentioned, " The Treasure chest

> of Behavior Stratagies " ) it is a good one! Keep sharing all your

> sensory ideas!! Dawn

>

[Guest guest]

Hi Dawn,

Thanks for the well wishes. No, I am not feeling all that much better. I

should have gone to the dr last week but I was trying to avoid another bill. I

have never had this hang in so long. I keep hoping I will wake up one morning

and feel fine. I have PPT's all next week and I don't think I can do it. I

suppose I will be at the dr's on Monday.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

Hey, hope you are feeling better, read that you were not feeling too

good and as busy as you are, you need to rest!! wouldnt a lap top be

good at a time like this? God Bless ya! Dawn (wish I had one too!)

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

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--------------------------------------------

[Guest guest]

Hi Dawn,

I am actually feeling a little better, not great, but better. I made the first

very easy quick PPT of the week this am. Zeb woke up this am with a huge boil on

his inner thigh walking bowllegged. My guilt is kicking in. I put some ointment

on it and by the grace of God he let me put a bandaid. He can walk without it

rubbing. I sent a note to excuse him from PE and dropped him off at school

thinking the school nurse will deal with it and who would you think I bumped

into at another school PPT, the middle school nurse was at my meeting. The

school hasn't called yet so I think he's ok. I will give my gut another day and

see how I am tomarrow. Thanks for thinking about me.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

allrighty now, hate to bug ya Charlyne, it is Monday?! just checking

with ya, did you go yet? thinkin of ya, Dawn

> Hey, hope you are feeling better, read that you were not feeling

too

> good and as busy as you are, you need to rest!! wouldnt a lap top

be

> good at a time like this? God Bless ya! Dawn (wish I had one too!)

>

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and

photos of our kids. Share favorite bookmarks, ideas, and other

information by including them. Don't forget, messages are a

permanent record of the archives for our list.

http://groups.yahoo.com/group/

> --------------------------------------------

>

[Guest guest]

In a message dated 4/19/2006 11:55:24 A.M. Eastern Daylight Time,

jacksonsmom99@... writes:

You will be missed for sure, I was really hoping to meet you AND !

We'll do it again, don't worry!

yea we can do it at Jayne's house next time as long as she stays where she

is so I can come too! lol

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 4/19/2006 12:21:05 P.M. Eastern Daylight Time,

jacksonsmom99@... writes:

But if not here, then I'll host it in Maine in a few years after we build

our beach house on the bold ocean!

and why can't you do it here and there? lol Maybe by then I'll have some

money! yea like that will ever happen. But I do think I can get as far as

your area now. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 4/19/2006 1:53:12 P.M. Eastern Daylight Time,

jacksonsmom99@... writes:

Well you know if you can't get here, it's reasonable for me to pick you up -

it's only aabout 1 1/2 hours away!!!

oh it's not even that long depending on how you come. :-) It only takes

an hour and 1/2 to get to New Port News from Hopewell and we are closer than

Hopewell is. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

In a message dated 4/19/2006 12:21:30 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

Of course Donna will have to come so we know that we'll be eating well!

LOL

Hey, I'd LOVE to cook for everybody!!! I've cooked for as many as 120

before!!!

Donna

[Guest guest]

YOU BET! But I only have 2 years left at this house so we'll have to make some

plans!!!! The door is always open! Of course Donna will have to come so we

know that we'll be eating well! And Carol can lead a workshop on " How to make

everything you see in the catalogs that costs way too much! " And Joan better

poke her head in so we can all give her the big hug we want to for saving our

sanity by forming this list. Oh and I guess she can make sure we're all eating

healthy too! LOL!

And all the kids will be accounted for with the door and window alarms! ( I

guess I'll hide the soap, lotion, potting soil, chalk, and glue though) LOL!

Hampton Roads has a lot to offer that's for sure.

But if not here, then I'll host it in Maine in a few years after we build our

beach house on the bold ocean! We've got the land, just need a little mooooola

to build the house!

Maine is incredible, you'd all love it!

Thanks for nominating me Carol!

Jayne

Csvillars@... wrote:

In a message dated 4/19/2006 11:55:24 A.M. Eastern Daylight Time,

jacksonsmom99@... writes:

You will be missed for sure, I was really hoping to meet you AND !

We'll do it again, don't worry!

yea we can do it at Jayne's house next time as long as she stays where she

is so I can come too! lol

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Well you know if you can't get here, it's reasonable for me to pick you up -

it's only aabout 1 1/2 hours away!!!

c-ya!

Csvillars@... wrote:

In a message dated 4/19/2006 12:21:05 P.M. Eastern Daylight Time,

jacksonsmom99@... writes:

But if not here, then I'll host it in Maine in a few years after we build

our beach house on the bold ocean!

and why can't you do it here and there? lol Maybe by then I'll have some

money! yea like that will ever happen. But I do think I can get as far as

your area now. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

well there you go!

Csvillars@... wrote:

In a message dated 4/19/2006 1:53:12 P.M. Eastern Daylight Time,

jacksonsmom99@... writes:

Well you know if you can't get here, it's reasonable for me to pick you up -

it's only aabout 1 1/2 hours away!!!

oh it's not even that long depending on how you come. :-) It only takes

an hour and 1/2 to get to New Port News from Hopewell and we are closer than

Hopewell is. :-)

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

good idea guys, or come to Tn.! we can turn up the kids music loud

and just hang out, (not just country music either!!) Dawn

>

> In a message dated 4/19/2006 11:55:24 A.M. Eastern Daylight Time,

> jacksonsmom99@... writes:

>

> You will be missed for sure, I was really hoping to meet you AND

!

> We'll do it again, don't worry!

>

>

>

> yea we can do it at Jayne's house next time as long as she stays

where she

> is so I can come too! lol

>

> Carol

> Trishasmom

> She isn't Typical, She's Trisha!

>

>

>

>

[Guest guest]

Hi Dawn,

I am praying that all goes well for you and .

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

hey thanks guys, fantastic advice for me to remember from you both!!

I am nervous for his tests, also some dental stuff that will

happen. You all have helped me realize how truely important leaving

no stone unturned is when it comes to medical issues, we are sort of

in the dark about all this but I am glad they are looking into all

this to see if some pain could be causing some of s behaviors.

Pray for us cause the last time he was put to sleep (it was for a

reconstructed eardrum) he woke up bizerk and they kept putting him

back to sleep. it was terrible. I am sure this time will be better.

I hope he is able to eat after this scope too, God Bless you both,

Dawn

>

> <> 'predisposed' to certain conditions, then the meds may cause

problems.>>

>

> Just to be clear, this is not " my paper " it's from the

Pharmacology department at Washington State University and is what

they are currently teaching. Sometimes there's a big disconnect

between pharmacists and medical doctors who get most of their info

from sales reps.

>

> I agree a daily multiple is a good cover to prevent problems.

has never been able to take a multivitamin, plus her Prevacid

dosage has been 60 mg for 4 yrs....like a double dose so we've

really been pushing the envelope. Believe me I am not looking

forward to having to take her off of it cause I don't have a clue

what we're going to do about the gastritis. He's probably going to

want to do an endoscopy (Woozle) before anything. The problem now is

that the iron supplements and all the other junk she's getting to

fill up the holes is hurting her stomach more than she was without

Prevacid so it's a mess. I am certainly not anti-Prevacid- it made a

huge happy difference in our lives. I'm just on a minor mission to

warn anyone whom may be on it longterm at a high dosage (or not) to

keep watch on the possible nutritonal problems that may present

as " mysterious " behaviors.

>

> happens to be one of those kids who always has

the " extremely rare " reactions to everything.

>

> I just finished a search on the ABMD list for biomedical

interventions in Autism and alot of regular autistic kids seem to

have had side effects from the Prevacid type drugs. I don't know

that many " only " DS kids who are on it. Truly, when we first put her

on it we were thrilled at the peace and quiet and lack of moaning

and groaning all the time.

> Sherry

>

>