Guest guest Posted February 2, 2006 Report Posted February 2, 2006 I am new to this listserve by about a week. I have a son, age 9 with down syndrome that about 6 months ago changed in so many ways and I am looking at having him tested for a dual diagnosis. I have read a little about the Kennedy Krieger Institute. Would like to communicate with any other parent who has taken their child there. You can email me privately. Thanks. Wanda Jim, age 9 __________________________________________________ Quote
Guest guest Posted February 2, 2006 Report Posted February 2, 2006 Hi Wanda, I don't see your private email address, but would be happy to share our experience with you. My address is krystal.monroe@.... Krystal Ian, 9 kennedy krieger clinic I am new to this listserve by about a week. I have a son, age 9 with down syndrome that about 6 months ago changed in so many ways and I am looking at having him tested for a dual diagnosis. I have read a little about the Kennedy Krieger Institute. Would like to communicate with any other parent who has taken their child there. You can email me privately. Thanks. Wanda Jim, age 9 __________________________________________________ Quote
Guest guest Posted February 2, 2006 Report Posted February 2, 2006 I have visited with Dr. Capone and also with the Autism center. Jake just got his PDD NOS diagnosis a few weeks ago. They are all extremely helpful, informative, and professional. We found the whole experience worthwhile. Holly Re: kennedy krieger clinic Hello Wanda and everyone else, I have not been to the Krieger Institute, but am interested in others experiences, too. Rumi, 3, DS/ASD and Zola, 17m, ASD were just diagnosed two weeks ago, so I am gathering info and interested in others experiences. We have thought about going to see Dr. Capone. Any thoughts? Best to all, Ursula > I am new to this listserve by about a week. I have a > son, age 9 with down syndrome that about 6 months ago > changed in so many ways and I am looking at having him > tested for a dual diagnosis. I have read a little > about the Kennedy Krieger Institute. Would like to > communicate with any other parent who has taken their > child there. You can email me privately. Thanks. > > Wanda > Jim, age 9 > > __________________________________________________ > Quote
Guest guest Posted February 3, 2006 Report Posted February 3, 2006 What is the difference between seeing Dr. Capone and/or the autism clinic? Do you have to be a part of his studies to see him? do you have to have an MRI? Do you find him inclined towards a certain kind of medical protocol for our kids? thanks so much, Ursula mom of Rumi, 3, DS/ASD Zola 17m, ASD > > In a message dated 2/2/2006 4:23:28 P.M. Eastern Standard Time, > hgiglio@... writes: > > I have visited with Dr. Capone and also with the Autism center. > Jake just > got his PDD NOS diagnosis a few weeks ago. They are all extremely > helpful, > informative, and professional. We found the whole experience > worthwhile. > Holly > > > > Maddie is 12 and was dx'd with autism by Dr. Capone when she was > 5.  We've > been seeing him since she was 2...she was part of one of his > studies. At > this point, he's an old friend.  Be glad to answer any questions > you might have. > Donna > > > Quote
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