charlyne

[Guest guest]

hey charlyne thank for the imfomation is ther any way you keep a some of the

adresss but not have to sift though all the letter 15 year ago thiese letter

wold of been great and it realy nice to read some pf them it send my memory back

to a time when she was younger but I got so much do to do in my lifefor her and

alot of it just keeping her alive plus i got my own medical issues.it just a

time thing but like I say I love the story some of them amaze me to know the

different in variation of what one hardship to another is like and I love every

one out there because god only give speical kids to spesial kid to spesial

parents and that the truthlove micheele and cindy

charlyne olko wrote: Hi ,

I think your doing great on the computer for a beginner. If you can find your

state's dept of education site and hopefuly it has a link to the state special

education, you can find(in most states) a list of approved schools, from that

list you can check the individual school sites to find if they specialize in

autism and where they are located. Many of our kids have their needs met with

public education. It is, in some districts or the severity of the student's

disability, that has little resources to met the needs that other placements are

required for students to benefit from their education.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?.

cindy merrifield wrote:

like I said I not sure what I doing it the first time on the computer but

where are these spesal school for autism I want to know so any body out there

got address and name of these spesial school I want to know so I can write for

ther e imfoemation we need school like that up here in the far northmichelle and

cindy

charlyne olko wrote: Hi Carole,

It's nice to hear from you. I pray that will go into a private placement.

I think of all of you often. Zeb developed vocal tics when he was on luvox and

topomax together. Once we took him off they went away. In the past few months he

ocassionally has this high ptiched yell for no reason. I thought the tics were

coming back. We went to the psychiatrist today and he told me that some kids do

that for release. I was thinking that maybe it could be way of releasing

anxiety too. Just a thought.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

carolelinda2003 wrote:

Carol,Back in the dy when took baths(he is a shower guy now) his

mom used epsom salts and it kept his skin very soft.He needs a lot of

lotion and she also puts olive oil on his salad which does seem to

help.He has to see the neurologist next week as he is showing signs of

tourettes and his ped wants it checked out.Like he needs another dx on

top of all the others.He may be changing to another school where autism

is the main focus and they really work with the students.It is a great

school and they teach and do not just babysit like his current

school.Gma Carole

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[Guest guest]

Irma I can hear your brain spinning from here, lol. Wonderful contacts

and prospects. Communication is the main thing with and you have

heard me mention some of these on the list. It is a lot of work to take

the pictures and get all to help but once done hopefully all will be

supportive and help it to work for . Wish you success with the

job application and don't exhaust yourself. Louise

Charlyne

Hi Charlyne,

My mentor, thought I give you an update. I arrived late from running

around once I had returned from my trip out to Austin and ended up

probably going to bed close to wee hours but my mind has been

spinning million miles away as I could not sleep to begin my mission

with all you had shared, the advocate from the advocacy agency. But

now get this, I have a professor (he is the Autism Council regional

Advisory Committe chair for the Panhandle in Texas) who is willing to

travel out here to battle too when it comes to mediation or just to

come down, he was dead serious too and get the school going with

helping meet his communication goal, he had also told me to

make sure that I write this down on the IEP, which I was so excited

but did not actually hear the word to word on how he told me. Gee, I

which I had a brain. Ok, a photographic one. Anyways, he said to make

sure it is written that " I invite Dr. .......to help teach

and staff on training them to meet his communication goals. This was

after the Texas council meeting my friend Martha, chair of SA, we

ended up going to a little cafe and he ended up adding on that this

is what I should do and you're obviously going to relate to it as

you've told me some of the same thing.

Develop a book of .

Glossary, utterance that has meaning extensive as possible,what did

they mean? etc. Contact the Deaf Education Program or a Deaf club for

more information and of course I have made a file of what everyone

has shared for if ever this time came and have a large book of the

ASL.

Told me that if they tell me " signing is not universal " , they are

wrong it is universal and what you had menioned better than silence.

Take photos of , using sign language and place them on a key-

ring to wear around easy to use to make his needs and wants known.

Yesterday evening could not wait to try it out and so now I have my

first pic of on photo signing " more " . Ok, then for backup the

visual supports, using as he called it " soft technology, he could

wear an apron like those found for the tools at a hardware dept. to

take pictures out at school was just one of the examples as he had

shared several of them. Just to get him started when the basics needs

for now. A handkerchief folded in 4, then mark with large Yes, No,

sorry mind went blank with the other 2.

Then at the Workshop on Thursday the speaker Anne Hoffman and 2 other

education consultant where suggesting some info too. The workshop was

on Teaching Nine Critical Communication Skills for Children with

Autism and Related /disabilities developed by S. bondy, Ph.D.

& Lori Frost, M.S., CCC/SLP.

Gee, with so much to build from I've started to get with it on this

battle and focusing on and nothing else but I just pray I get through

this. I had mentioned this to my sister so she could attend the ARD

meeting with me as for now I was planning on attending alone, just

hope it works out for her to attend. If mediation then I know I will

not be alone to battle this. The nerves.

Ok, still working on the proposal agenda.

Until later, thanks!

Irma,17,DS/ASD

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[Guest guest]

Thanks Charlyne,

Get this, now I have a couple more people out here willing to help me

out. This almost sounds like in the past when there were only a few

ABA therapist but at least they never turned me away and were willing

to work with at his age as they were really working with the

younger kids. This is now too many ABA therapist too count popping

out when they get to know me or meet and are willing to work

with at home. It is still nice to know for backups when in

need. I have referred many other parents to contact them so at least

the other kids with autism or developmental delay are being taken

care.

Word got out about me having this ARD meeting and most of the

advocates whom I know are more into working for the younger kids and

I know they understand the law of education but its working with the

HS level school people I believe they have not tried encountering

just yet. They never really try to at least give me an explanation

why they do not want to assist. But of course their is the director

of the advocacy center who helped me that day I told you and will try

to get with him tomorrow. Well since I made some new friends out in

Austin because of my partner Martha they made calls to several people

whom they know who work with the community agencies working with

adults and this morning I've received several calls and emails that

they are interested on helping me with the ARD meeting. One of them

for now said that she could attend. The other is a Certified BcABA,

this I would also love to have in the picture, because it would

probably open the doors for ABA to be implemented with the school

district attends as I do have lots of documents to support

, along with medical professionals recommendations, maybe I

could have them all. LOL!

Before there was none to attend Thurs. and now there is. I am

estactic to know that MY is being watched over.

Thank you Charlyne you are my lucky charm to motivate me in the areas

to persue on his educational rights on what to focus on. You're

certainly correct there is a lot of what us parents can do as an

equal member and have every right and knowing how much I could

disagree and request a recess and reconvening which could occur over

and over until there is a full agreement and not feel intimidated.

Just empowers me and I will get the SD's attention that I'm serious.

I do not feel my son is ready to leave high school once its time to

graduate and move into the world of work, and life in the community.

They are focusing on the vocational skills too much which he does

engage in well but he has not made any progress with his

communication goals, basic functional skills and I would like to

request for the special services he would require to help him reach

his goals.

Thank you and everyone else who has emailed with your support. HS is

a different arena for us on this rollercoaster ride.

Let me share what Mr.Ross the BcABA, a wee bit of what he wrote:

17 years old is not too late. It can be just the

beginning when ABA is included in training, skills

acquisition and social behavior. I have been involved

in a case where a 21 year old female had been label

non-verbal by the school district since age 3 and at

age 22 was using complete sentences and by 23 is fully

verbal for an individual at her cognitive level. The

literature is replete with examples so I will not drag

out this response in an email. However, there is never

any charge or commitment should you feel you would

care to call me or request further clarification via

email.

Blessings

Practice Peace Always

Bill Ross, BCaBA

I do understand that everyone is unique in their own ways but there

is HOPE once again.

HUGS!

Irma,17,DS/ASD

>

> Hi Irma,

> The accomodations for 's communication can be endless with

some initiative and cooperation, however, you need to insist and get

the school's cooperation. They have come to the end of their denial

road. It is amazing what you can accomplish with networking supports.

You now have a very supportive network and certainly will not be

alone any longer. It would be a very good idea if your sister would

go with you, if only to be in charge of the tape recorder. It will

enable you to focus on the issues. You can do this. I firmly believe

you can be tough for one hour, an hour that will make a difference in

the rest of 's life. I am leaving you with that thought.

> Rah Rah

> # 1 Cheerleader

> Charlyne

> Mom to Zeb 13/DS/OCD/ASD?

>