Guardianship/Future Planning/Irma

[Guest guest]

Irma, have you had the opportunity to hear any experienced lawyer re

guardianship for the developmentally disabled? In IL we have a couple

lawyers, both parents of a disabled person that are frequent speakers at

ARC and other meetings. One point that was mentioned at the ARC seminar

last week was that at age 18 the person is an adult and the parent has

no right to make decisions. The lawyer mentioned about being sure to

get a Power of Attorney for Health Care signed. IL Guardianship and

Advocacy Commission have these forms on their website for IL residents;

don't know what you have in TX. Although I never found a problem when

we didn't have guardianship you never know when someone would insist on

it. Until we became 's guardians I just made sure I had sign a

consent that the agency could communicate with us about . I don't

know what your thoughts are about guardianship but this lawyer explained

the different types and she said that POA would be the least intrusive.

I know those Fair's have so much to think about. Another thing I have a

friend who is 85 and her 44 yr old son lives with her. At one time she

planned to arrange with an agency to use their condo and the agency put

in other people. Well the agency said they would sell the condo and put

her son some place else. She wanted him to stay in his familiar

surroundings. So now the plan is to have a care giver after she is

gone. She has guardianship and a successor guardian all set up. We

have been hesitant in saying we will do this or that for an agency as we

know one agency we though would work out did not and now we are with

another agency. There is just no guarantee that what you want will

happen. The lawyer mentioned it would be nice to arrange for the agency

where the disabled person lives to share in what was left of the Special

Needs Trust after they were gone.

Just too many things to think about and things change so much. We just

hope that the plans we have put into place work out. Louise

Re: Single parent alert/Future Planning

Sara, how I look forward reading updates and I do know you can do

this and succeed with this mission.

I'm glad for you and Lousie, etc. keeping us posted with these issues

because it is hard to imagine as time flies like this July

will be 18 y/o. I'm unable to file yet for anything until that time

as told or it would set back his paper work.

I had attended a Community Fair with lots of booths of agencies which

I was never aware of what was available and this was given by the SD

Vocational Training Center attends. I have not done any

homework with the materials given but most of them have been calling

so that we could discuss for when after he graduates at 21 y/o but in

the mean time its making these plans and decisions and tours. I

noticed some where living in a nice home setting in nice

neighborhoods and so when I told some that I was not ready to place

him in a group home and asked what my plans where? I told them that

right after he graduates I would like for him to be at home in the

mean time and attend a Day Program and to be included in the mail

list for social events, this is one way I figure I could transition

him slowly if needed. But what I found out was the fact that they

could be at home with assistance and then down the road should

anything happen to us the parents we could pass the house down to

them and this is how they could remain in their homes with other

residents with disability, so this is how they inherit the houses and

they would make sure that he receives every penny rewarded to him.

This is not accurate info as I write this, my head was just spinning

of the thought how he is becoming officially an adult and

Guardianship is needed so soon so I missed out on some their

conversation. We shall see of what is available here in our

community.

Wish you well Sara.

Irma,17,DS/ASD

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