Lisette

February 14, 2005

<<If/when you wean Sophie off GF, after about a month I'd recommend you

retest her for celiac. I think your doctor is misinformed about method of

diagnosis. If her celiac panel is positive, you need to confirm the dx via

biopsy.

Don't wait for her to show symptoms before doing the biopsy.>>

Hi, Everyone....Lisette...if you go the bx. route, you have to have the bx.

BEFORE you start the diet for it to be accurate. If the blood Ig A is high,

then they may recommend the bx. or you can follow your feelings and start the

diet. You can have a high blood test (pos) and a negative bx. We are on

that road now. Gareth does not show any symptoms or damage from gluten, but his

blood IgA is high. If you start the diet on your own and, then, decide you

want bx's down the road to confirm CD, then you have to put her back on

gluten foods for X number of months before the bx. will be accurate.

Take

care, Everyone.

Margaret

March 2, 2005

Hi Lisette,

I have no doubt that the teacher is feeling very insecure herself. I would

write to her what works and what doesn't with Sophie. Whatever you can teach her

will help her teach Sophie. You need to find a common ground and work

together. You are fortunate that her classmates and parents accept her so well,

build

on that.

Charlyne

Mom to Zeb 12 DS/OCD/ASD?

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