Re: play therapy/Donna

[Guest guest]

The workshop was supposed to be 175, but she was so gracious to to give us an

early bird registration discount of 50. so we paid her 125. Still alot for

nothing. Anyway I wanted to warn people because the autism society is sending

out e-mails about her workshop comming around again. Always something. We

are having lots of difficulties with Noah and diarrhea with lots of Jell/muscus.

We are concerned of yeast overgrowth/malapsorption issuues other food

intoerance/bacteria. WE have taken out gluten-dairy-corn -soy and still

undigested

carbohydrates come through in diarrhea . I think he may have possible phenol

intolerance. Doc says this is over her head wants to send us back to GI who did

the shoulder shrugging thing. We made our own appt with a enviremental doc in

2 weeks. He sure is doing alot of head banging this days a symptom of phenol

intolerance. Alot of our kids on this list serve seem to be doing that. I

have posted before on this subject about red cheeks and smelly breath. These

also are signs of food intoerance /leaky gut. I would like to recommend a

great book I have read that is helping me in my medical journey called IS THIS

YOUR CHILD BY DORIS RAPP. My ques is has anyone else with the duel dx travel

down

this road? I joined the listserve on yahoo groups GF/CF kids very very

informational however we have another dx with seperate issues thrown into the

mix.

I anyone else has gone through this type of testing I would really like to

hear from them. Thanks in advance.

[Guest guest]

Donna- what are the symptoms of GERD? thanks sonia

[Guest guest]

,

Maddie has GERD and has been on meds for it since she was two (she's now

almost 11). We were convinced she had celiac, but a endoscopy/biopsy showed a

motility problem (GERD). Has your son had an endoscopy? Maddie's had

three, her most recent one just this past March. I HATE them, but it's the

only way to see what's going on inside her stomach and esophagus. Untreated

GERD can lead to very serious conditions. There are quite a few others on the

listserv whose children have celiac and are on gluten free diets.

Thanks for making us aware of this woman doing the workshops.

Donna

[Guest guest]

,

You asked if anyone has with the dual dx has gone down this road

with the testing. I'm not sure if I qualify but have similar

experience.

Both my children are on the autism spectrum. My Rochelle has

ds/asd/celiac and my older son a mix of dx's. My daughter sees a

nutritionist and we did the hair analysis and blood analysis for

food allergies. That is how we found out about the Celiac.

I have started to see a pediatric allergist for my son. He

specializes in children with autism. I am doing one child at a time.

If I feel the results are worth it I will begin Rochelle on the same

route.

We have done stool analysis, hair analysis, colostrum, vitamins,

enzymes, multi-flora, metal-free and immuntherapy. We see the doc

regularly and I really like him. A friend of mine recommended him

because she had good results with her son. Everyone who goes to him

loves him. He has recommended the Feingold diet stage 2 and possibly

the gfcf in the future. We'll see about that. I do think it would

help but my daughter is on the gfcf and realistically my son won't

go for it. He's ten.

There was a book that went through all the things I'm talking about

it but of course I read it and forgot the author and title. I

recommended it some time ago.

Hope this helps.

Diane

> I anyone else has gone through this type of testing I would really

like to

> hear from them. Thanks in advance.

>