It was nice while it lasted..

[Guest guest]

Oh, well. Tori is back to her usual. No sleeping all night alone!

I spoke with her dr. yesterday and we decided to go the Benedryl

route and see if that works. Well, on 1 tsp. my hubby laid down with

her for a while (actually fell asleep with her until 2 a.m.) and she

had to be woken up this morning at 9:30 and this is after she passed

out from exhaustion last evening at 5 p.m. until 8 p.m... Don't know

if it was the drug or just plain old exhaustion but I was so well

rested I woke up 45 min. late this morning. I guess I needed the

sleep! =) Dr. thinks that because she is constantly on the go

during her waking hours, her body may still be in moving motion when

she goes to sleep and it is almost like when you get a leg twitch in

the middle of the night. So, off onto a new adventure to see if the

Benedryl helps. I did enjoy a full night's sleep, tho. Shame on me!

[Guest guest]

Mic never sleeps all nite never has 5 hours and we are lucky never takes naps

either.He starts out in our bed because at 1 am and hes awake nobody sleeps so

we put him between us and we know hes safe.He stares at his dad sleeping for

hours and plays with his eyebrows and face somehow Dad has learned to sleep thru

all this exporing Mic does of his face.We tried benedryl and it did work for a

week or so then it just did nothing.Mic seems fine but I have days I am so tired

I am afraid to drive.On the wk-ends my dh and I take turns napping thats what we

do for fun now nap.Ha we are getting old.The docs tell me having the tonsils and

adnoids will help Mic has sleep apnea and wakes up 2x a nite about gasping.I

wake right up when I hear it so does Mic.We have not figured out yet how to

allow him to be awake and us asleep and him safe.I will try his own room again

for about the 5th time in the fall I was thinking if we just had his bed and

stuffed animals he would be safe but Mic would find

something to get in.He knocked his dresser over last time he did not get hurt

but could have easliy.I think alot of us have this problem. I feel for you and

your family has been hard on us. Somehow after all this time I can giggle

alittle at it and hope, last year it made me cry.

[Guest guest]

In a message dated 6/22/2004 9:09:16 PM Eastern Standard Time,

eldesantis@... writes:

did enjoy a full night's sleep, tho. Shame on me!

Nah, be glad. And if the Benedryl quits working, try melatonin. It

works for Maddie.

And Laurie, same with you. Try melatonin. Also, the doc is right.

Once Mic has his T & A, it will get better.

You know, I realize that sleep disturbance is a HUGE issue with DS. Throw

in autism where it runs rampant too, and we're in deep. However, having five

kids, I know that sleep issues do not only involve kids with these dx's.

My first and fourth were HORRIBLE sleepers. They were/are just very high

energy kids who didn't require a lot of sleep. AND had a terrible time

getting

to sleep (Duff is not good at this...me? TAkes about 1/2 a second).

Good luck ladies!!!

Donna

[Guest guest]

Mic will be 4 August 7th.He slept 8 hours last nite I didnt it becomes a habit

of waking up even if he doesnt now.We do get 2 days a week usually he will sleep

over 5 hours from exhaustion I think.Mic had heart surgery at 7 months and for 5

months I woke him up every 2 hours to feed and give him heart medicine I always

blamed it on that now I know better.I remember the group talking about this

subject last year and there was alot of ideas around.Laurie