Oxygen Desaturation Anyone?

[Guest guest]

Hello there,

I'm a lurker as well, but I need a little information from anyone

who has something to share. Here's my situation: Wednesday of last

week my 3 1/2 year old had her 4th set of ear tubes put in. She had

a cold at the time, but the ENT assured us it wouldn't be a

problem. After the surgery, they couldn't get her oxygen sat levels

above 88, so they did a breathing treatment and got it up to 90.

The nurse who had told us they wouldn't release her under 95 checked

with the anesthesiologist, who released us. Anyway, the next

morning she was all wheezy and still hadn't peed since the surgery,

so I took her to the Pedi. Her sats were still in the high 80s, low

90s, so after 2 breathing treatments, she admitted us. Oxygen mist

tent, breathing treatments, iv fluids, antibiotics, steroids, chest

x-rays, and three days later, still the sats were not up, and we

wanted OUT of the hospital. Her sats when awake range between 85-

93, and when asleep can dip as low as 71, usually around 80-84. So,

if any of you have had any experience with this, I would very much

like to hear from you.

Thank you!

mom to Katy (DS) and Ally, twins born May 2000

[Guest guest]

Does she have any noisy breathing? like raspy sound?

Some kids with DS that havecolds and then under anestheis trigger a

wheezy/rasy breathing... making the airway close more.. Have you tried

steriods by mouth.. like orapred?? It will help open the airway..

It takes several weeks to knock colds out anyway.. and when airway is

compromised it takes longer..

How much oxygen is needed for her?

Oxygen Desaturation Anyone?

> Hello there,

> I'm a lurker as well, but I need a little information from anyone

> who has something to share. Here's my situation: Wednesday of last

> week my 3 1/2 year old had her 4th set of ear tubes put in. She had

> a cold at the time, but the ENT assured us it wouldn't be a

> problem. After the surgery, they couldn't get her oxygen sat levels

> above 88, so they did a breathing treatment and got it up to 90.

> The nurse who had told us they wouldn't release her under 95 checked

> with the anesthesiologist, who released us. Anyway, the next

> morning she was all wheezy and still hadn't peed since the surgery,

> so I took her to the Pedi. Her sats were still in the high 80s, low

> 90s, so after 2 breathing treatments, she admitted us. Oxygen mist

> tent, breathing treatments, iv fluids, antibiotics, steroids, chest

> x-rays, and three days later, still the sats were not up, and we

> wanted OUT of the hospital. Her sats when awake range between 85-

> 93, and when asleep can dip as low as 71, usually around 80-84. So,

> if any of you have had any experience with this, I would very much

> like to hear from you.

> Thank you!

>

> mom to Katy (DS) and Ally, twins born May 2000

>

>

>

> http://DSyndrome.com/Multiples

>

[Guest guest]

Hi ,

I HAVE HAD LOTS OF EXPERIENCE with the o2 desats!

At Children's Hospital in Seattle, they, at one point, had trained

me on how to use and store oxygen tanks and use the oxymeter and all

that stuff so my daughter could be sent home on oxygen. So you could

ask for a " CARE CONFERENCE " with her hospitals medical team to

request this option (if you are comfortable with that)...

What I learned from the 7 months my daughter was in and out of the

hospital is that whenever her o2 sats were low or unstable it

usually meant she was not completely recovered or fighting a blood

bacterial infection...so really go over this with her care team

before pushing the taking her home...I hate to scare you but the

time she came home on o2 was the time she almost died from toxic

shock, turned out her lung had collapsed and she had 3 different

bacterial infections in her blood (complications after her heart

surgery) she was in ICU for several weeks on a breathing machine.

So hopefully your little one is not too serious and will just take a

little more time to get stronger ;-)

Char

Mom to twins Keane(DS) and Kalena(DS) 2 1/2yrs, and 13yrs

.........

>> if any of you have had any experience with this, I would very

much

> like to hear from you.

> Thank you!

>

> mom to Katy (DS) and Ally, twins born May 2000

[Guest guest]

Thank you for the advice, everyone. Charlene, did your child have other

symptoms as well? Katy's been a little congested, but otherwise has good

energy level, happy attitude. We were completely surprised that they wanted

to admit her! When they had her in the oxygen mist tent (she would not at

all cooperate with a " blow by " (?)), her levels were not rising.

Indicating, I guess, that her body just wasn't processing properly? We have

been so blessed with good health, that I am totally un-medically-savvy.

They wouldn't send us home with the oximeter, but required us to go in this

past Monday to recheck -- still between 91-93. Doc said she could live with

that for another week, but if it still wasn't better after getting her

congestion cleared up that she would want us to head to the Children's

hospital to check in. We really want to avoid that if this is just one

doctor's overreaction, but certainly don't want to miss anything! Do kiddos

with DS tend to just have lower sats? Is 100 percent too much to expect?

Thanks again,

" You are a child of the universe, no less than the trees or the stars. You

have a right to be here. And whether or not it is clear to you, no doubt

the universe is unfolding as it should. " Desiderata

----Original Message Follows----

Reply-To: Multiples-DS

To: Multiples-DS

Subject: Re: Oxygen Desaturation Anyone?

Date: Wed, 11 Feb 2004 18:27:29 -0000

Hi ,

I HAVE HAD LOTS OF EXPERIENCE with the o2 desats!

At Children's Hospital in Seattle, they, at one point, had trained

me on how to use and store oxygen tanks and use the oxymeter and all

that stuff so my daughter could be sent home on oxygen. So you could

ask for a " CARE CONFERENCE " with her hospitals medical team to

request this option (if you are comfortable with that)...

What I learned from the 7 months my daughter was in and out of the

hospital is that whenever her o2 sats were low or unstable it

usually meant she was not completely recovered or fighting a blood

bacterial infection...so really go over this with her care team

before pushing the taking her home...I hate to scare you but the

time she came home on o2 was the time she almost died from toxic

shock, turned out her lung had collapsed and she had 3 different

bacterial infections in her blood (complications after her heart

surgery) she was in ICU for several weeks on a breathing machine.

So hopefully your little one is not too serious and will just take a

little more time to get stronger ;-)

Char

Mom to twins Keane(DS) and Kalena(DS) 2 1/2yrs, and 13yrs

.........

>> if any of you have had any experience with this, I would very

much

> like to hear from you.

> Thank you!

>

> mom to Katy (DS) and Ally, twins born May 2000

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