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Re: Bo-Wisconsin

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In a message dated 5/28/04 6:28:28 PM Central Daylight Time,

writes:

> I missed who Dr. Capone is ... does he have answers???? Could you share a

> little background with me??? We are always looking for good doctors to help

> our Pete (12) with all that he deals with having ds/autism.

> Thanks,

> Bo in Wisconsin

>

Bo,

I have been a bit busy lately (I'll post about that later) but see that you

are from Wiscsonsin. Where in Wisconsin are you?

Karyn

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In a message dated 5/30/04 2:46:18 PM Central Daylight Time,

writes:

> Hi Karyn,

> We are in the Milwaukee area, where are you? And how did you find out about

> Dr. Capone?

> Bo

>

>

>

Bo,

We are in Appleton. We have not seen Dr. Capone but have heard good things

about him. Unfortunately we aren't in a position to travel that far. Not so long

ago it would have been impossible to travel that distance with and now

it is more that there are other kids in the family so I can't travel easily.

fits with the group of kids that is describing. He isn't included

in the count because Capone hasn't seen him, doesn't even know he exists.

Officially is diagnosed with ds and PDD but other drs have added ADHD,

Obsessive/compulsive, and other labels. He doesn't have seizures thank goodness.

Have you used the ds clinic at Children's in Milwaukee? We went last year

just to make sure we weren't missing anything. We pretty much had the bases

covered but just wanted to make sure.

Do you have a ped. psychiatrist that you are working with? We go to Milwaukee

to see one. None in the Appleton area that has a clue how to treat a complex

kid like .

Good luck, Just glad to see another Wisconsinite on the list.

Karyn

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Hi Karyn,

It is good to have another Wisconsinite on the list! How did you find out about

Dr. Capone? Does he have a website or anywhere I could go to find more info???

Who is the ped psych you see in Milwaukee? We are currently seeing Dr. Fred

Steiger in Cedarburg, and we find him very warm and respectful toward Pete (we

changed Dr's to find this). We have not been to the DS clinic at Children's.

Is it worth the trip? I would love to hear what you have to say.

Thanks, Karyn,

Bo

ps. I remember meeting a family from Appleton at one of Dr. Warner's clinics

here a number of years ago ... did you ever come to see him in Brown Deer??

pss. How old is ? He sounds very similar to Pete ... very " complex " . Pete

is going to be 13 in a couple of weeks. We are finishing 6th grade in the

middle school. Terri Couwenhoeven from the DS clinic teaches a puberty workshop

for families of kids with Developmental Delays, and we are going with Pete on

June 12th. It's time (for better or worse!!).

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