Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi Marie, I can sympathize with you and understand the frustration. I am not sure if I am doing all the things I need to do for my son either. I do know I am doing the best that I can. He didn't come with directions. I can say that there were many things I didn't do for my typical children that I would have liked to do but didn't. I can't dwell on it. My son was just diagnosed after bringing him to countless evaluations. I always knew he wasn't the average DS kid if there is such a stereotype. It didn't make a difference. I have all the supports in place anyway. My son is stubborn beyond words. My son is 11 and wouldn't clean his room even after a month. I don't think he has the cognitive ability to organize the steps to do it without me. I clean his room and ask him if he could help me. He does sometimes maybe picking up a sock. I praise him anyway even though I don't feel that way. It's not worth the battle to me. I learned never to get into a power struggle with him. I wouldn't win. I give him choices so he can have some control over his life. I do feel that you are in need of a behavior plan. I would try to find a behaviorist to help you. We have tried some meds but there is no such thing as a magic pill without a behavioral plan in place. I use constant praise for the smallest of tasks. If Zeb is happy and feeling comfortable life is good. When I least expect him to do anything he surprises me by making his bed. It looks terrible but I tell him how great it is etc. He may get it right in ten years. I know how much my child cannot do compared to many other children but I can't focus on that. I would make myself crazy. I concentrate on what my child can do and rejoice in the small steps that he makes. I know from experience that I cannot put demands on Zeb. It just doesn't work with him. sounds similiar. Our guys are not easy. I get frustrated many times myself. I think that's a very normal feeling esp on a bad day. I think the group can help you and . Hang in there. Charlyne Mom to Zeb 11 DS/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 In a message dated 6/3/2004 9:52:23 AM Eastern Daylight Time, chiani72@... writes: > I need answers, I need this medical system and school system to help > me. If they are SO MANY supports out there for kids with special > needs then WHY wont they help? I spend most of my time filling out > papers, answering histories and driving to doctors and the results > of those efforts are drug him to the eyeballs and or put him in time > out. > Hi Marie, I hope your feeling better. I can't think of a worse situation when the kids are having issues and we are not doing well ourselves. My son is always at his worst when he knows I am not well. My son also had some of the same behaviors that has. The spitting made me nuts. Most of the behaviors were the results of school staff trying to sabotage the inclusive program that I insisted on. They were going to do whatever it took to show me I was wrong. I would first look at 's school program. If he is miserable the behaviors will be carried over at home. Once I was able to get the school program in check Zeb's overall behavior improved dramically but it still tok time. We still have our days but....one day at a time. I was forced to remove him from the bus a few years ago. He would love to take the bus but with the noise etc it may just set him up for a poor school day. It's one area that I can control. Our kids just can't help what they do. We need to make the changes so they can adapt and adjust. I wouldn't feel guilty none of us are perfect. I have made many mistakes but dare not dwell on it or I would be useless to help Zeb. I am constantly using rewards at home for good behavior. It's works for us. It's not always anything big but renting a special video, taking a walk by ourselves, playing a game etc. I punish by taking things away but only in small increments that is immediate and for a very short time. He still has his days but more good than bad. I get tired, lose patience and wonder if I can keep the day to day pace but the feelings pass. Yours will too. Hoping for better days. Charlyne Mom to Zeb 11 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 In a message dated 6/3/2004 4:17:47 PM Eastern Daylight Time, chiani72@... writes: > I am > starting to think cannot ride a regular school bus. The radio > drives him nuts and its such a bumpy ride, maybe its time to look at > a van. > Hi Marie, What radio? If the bus driver plays a radio that's not good. It would start my son's day on the wrong path. I can't even play the radio in the car. Just something to consider. W all worry about the future, just take it one day at a time. Charlyne Mom to Zeb 11 DS/OCD/ASD? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 hmmm nathan loves to listen to the radio with me in the car. but buses shoulnt be palying them harder to hear whats goin on with the kids i would think. shawna Quote Link to comment Share on other sites More sharing options...
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