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Re: Waiting Lists

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sara,

as you well know it stinks in Va as well... the lists are long long long and

i have found that its WHO you know, not what you need..... I just can't find

it in me to buttkiss a politician for services, but i might in the future...

lol depends on how bad ashton gets to my nerves...:-)_

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We didn't have any wait here in California for the Medi-Cal waiver. Brook

qualified because of his disability and was immediately on the program. We

also qualify for respite, camp and daycare (now that I am working) through

the Regional Center and IHSS (in-home support services under Medi-Cal) and

HIPP ( reimbursement for medical premiums also through Medi-Cal.)

Marisa

Miles 17, Brook 14, Genevieve 6

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It was bad when I was in VA but partly because I did not understand that it

is a systemic problem. One must find all the people who need services.

Once a VOTING BLOCK of people needing services become visible, services may

at the very least be available in a more equitable way. At the very best,

more funding will be available to help the people.

That's why I asked if any states out there have actually attempted to

tabulate who needs services - not just who is getting services.

Sara - Choose to make lemonade, not complain about the lemons.

>From: JustLeahB@...

>Reply-To:

>To:

>Subject: Re: Waiting Lists

>Date: Sun, 18 Apr 2004 08:10:49 EDT

>

>sara,

>as you well know it stinks in Va as well... the lists are long long long

>and

>i have found that its WHO you know, not what you need..... I just can't

>find

>it in me to buttkiss a politician for services, but i might in the

>future...

>lol depends on how bad ashton gets to my nerves...:-)_

>

>

>

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In a message dated 4/25/04 9:27:05 AM Central Daylight Time,

writes:

> Does any any state (besides PA) have a working grass roots plan to force

> our

> government to fund people instead of monuments?? I won't even open the

> topic of funding wars before human needs, but at least making people a hirer

>

> priority than picture opportunities

Here in Wisconsin we have a self advocacy group that is doing a lot of

lobbying for services. We also have a very active autism society that is vocal,

along with other groups.

Just this year in Wisconsin we lost our funding for ABA for children with

autism. Some was reinstated but not enough for most of the older kids.

At least in Wisconsin all kids who have a significant disability are covered

by medical assistance.

Karyn

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