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Laurie

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This is what we use for nathan, beofore he constantly smeared(leaked),and

constipated and we gave enemas, etc, he would often vomit, then finally

after a couple days of enemas give birth to a huge popcan or soo, you can

mix miralax in anything except pop, i find it works best in oj some reason

it doesnt mix in our milk well. shawna.

Re: Laurie

> Hi Laurie,

>

> takes MIrlax I think it is a fiber laxative/stool softener. It

> dissolves completely in liquid and is tastless [or so it says in fine

print!

> LOL]. It can be given in divided doses throughout the day like with meals

or

> snacks. It takes a few days to work but it has definitely helped .

He was

> having to have an enema every 4 -5 days in order to have a bm. Now, most

of

> the time, he will go on his own. The down side is that he seems to have

more

> gas, but I don't know if that's just because of his particular metabolism.

> The GI doc that told me about it has known us for about 10 yrs. and he is

very

> well respected in his field [Ped. GI] He worked at UCLA, Children's

Hospital

> Orange County [CA] and now is with a university in the Midwest. He says

> Miralax can be taken indefinitely. It is by prescription so you will need

to run it

> by your doctor and see what he thinks about it if you are interested. If

you

> would like any more info about it, let me know.

>

> Terry

>

>

>

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  • 24 years later...

Hi Laurie,

I'm resending you this post that I had sent to you privately, but I'm guessing

that you are going directly into the Yahoo group. Anyways just thought something

might be helpful, anything at this point. This doc is an Angel assisting with

information, so prayers that she will come through with some answers for you.

Take care.

RE:

Hi Laurie,

Prayers to your family. I just hate that on repeating the same thing over and

over and no one can figure things out. Lots of test are run and our kids are

still not doing well. Times like this are very stressful and it hurts to see our

kids going through this. Glad you put your foot down and made sure that Mic will

be looked at and prayers that an answer will be found so that things could calm

down and your little one gets back to health.

JMcCandless@... Contact this doctor she is the author of Starving

Brains............I forgotten the rest of the title but she is good.

Excuse yourself for emailing her as you are desperate for answers and that your

son has been admitted to the hospital and that you would like to know if there

are any particular test that should be done while he is there as he has been

through alot and it just seems that no one has found answers. Fill her in on a

brief history of what Mic has been going through. I'll look forward on hearing

anything from you, ok? Her and many of her friends are very knowledgeable on

these type of medical issues.

Please take care of yourself as I know this is one of those rough bumpy

rollercoaster ride you are going through and you need all your strength to be by

his side. Many hugs!

Irma

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A few tips to prevent those worthless trips-

get copies of those medical records. Put them in a three ring, zip shut

binder by topic (GI issues, heart, etc, ) anytime tests are done ask for a copy.

When he is discharged from the hosp put the summary in there. I also make a note

myself for each appt we go on so I can refer back. Anytime the dr. office

calls with test results I jot a note in this record.

Any pre-op physical, get a copy so if the orig. doesn't get to the surgeon on

time you have it.

It saves so much time. I remember getting to the down syndrome clinic 2 hours

away and they couldn't find any of the records that had been sent. No big

deal- I loaned them my binder.

Good luck,

Karyn

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  • 2 weeks later...

In a message dated 2/29/2004 9:58:14 AM Eastern Standard Time,

mick8_7@... writes:

I should keep a better eye on my computor when my 15 year old nephew is using

my computor.I was embarassed to say anything to him but did speak with his

mom and he hasnt come to visit after that day.I am shocked at the stuff coming

to my bulkmail.Does everybody get those penis enlargement advertisements really

blows my moms mind.I just delete them but cant figure out where they came

from.Gross. Thanks

I know. It's so disheartening to open mail sometimes. AOL (9.0 version)

has a report and block spam button that gets used A LOT in my house. Still,

we're inundated!!!

Donna

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