Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Welcome Kris and , Your son sounds similar to our Hannah (age 6) who also has a lot of oral issues. She just got her g-tube removed last month but we have a very limited menu, no speech. I read that you had Josh tested for apraxia. How do they do that testing? I am thinking that we need to do something along those lines. You have come to a great group with a lot of ladies who know a lot of stuff. a (Drew 12 Tourettes syndrome,/OCD, Marissa 8, Hannah 6 DS/Aut) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 In a message dated 1/14/2004 11:50:42 PM Eastern Standard Time, cwpritt@... writes: <<PDD diagnosis. now i am trying to figure out what my next step should be. the diagnosis came from kennedy kreiger institute in Baltimore land. That is where our pediatrician said we should go>> Hi Kris and . Welcome to the group. My daughter Maddie was dx'd with autism by Dr. Capone at KKI (matter of fact we go for an appt on Tuesday). Maddie has been seeing Dr. Capone since she was two (she's now 10)...he's a great guy!!!! He has done studies on the dual dx in which Maddie participated. It's my understanding that they use the label PDD when the child does not have all the components of autism. You have to have characteristics in each of the three categories to be dx'd with autistic spectrum disorder. Children with PDD still benefit from all the same therapies/treatments that children with autism do......as we all know, it depends on your district whether or not you actually get any of them. As far as the med you talked about, I don't know much about that one. Maddie is on risperdal for behavior (we finally took the jump and while her weight has ballooned, we're very happy with the changes we see from the meds). Maddie also has GERD (she's on reglan and zantac) and hypothroidism. Again, welcome to the group. We're looking forward to hearing more about . Feel free to ask us anything at all. You'll love this group and learn so much from it, as we will from you!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Welcome and Kris, I agree with Margaret that PDD is a milder form of Autism. I don't know why doctors are afraid of the Autism label. It is a spectrum and each individual exhibits different manifestations. I would treat it like you would a dx of full blown Autism. The more you feel comfortable with it the more comfortable doctors will feel about it. Most of the testing for Autism in the early years is based on the parents observations. There is so much more out there about Autism now then ever before. Diane (mom to Rochelle-7 ds/asd/celiac and Danny-9 ld/asd/ocd/add) > > > Date: 2004/01/14 Wed PM 11:48:14 EST > To: > Subject: introduction to group > > Quote Link to comment Share on other sites More sharing options...
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