Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 --- Pierre L wrote: > I wouldn't be surprised if your proteinuria goes > down a bit, and your serum > creatinine up a bit, after starting an ACEI. Of > course, each person's > response to meds can be different. > Pierre > Hi Pierre I don't want to creatine levels to rise do I? I am still confused about all of this. I have my Dr. app. tommorrow it will be the first time I have seen her after being diagnosed. I have a list of questions for her. Are there any questions you would suggest? Thanks for all of your wisdom How are you feeling? Robyn > Re: Re: just diagnosed > > > > Hi Christian, > > I just started taking the Ace Inhibitors and have > not > > had that checked since I started taking them. As > soon > > as I find out I will let you know. Hope everyone > is > > doing well > > > > Robyn > > --- chrisie_rau@... wrote: > > > Hallo Robyn, > > > what is about your creatinin level while you > taking > > > the ACE inhibitor. > > > Something changes ??? > > > > > > Greetings Christian/Germany > > > > > > > > > > > Hi to everyone, > > > > > My name is Robyn and I am 25 years old. I > was > > > diagnosed with IgAN > > > > on > > > > > Nov. 17 2000. I am still trying to let it > sink > > > in. My significant > > > > > other > > > > > found this group for me, it is the most > > > wonderful thing. I was > > > > > starting > > > > > to feel very isolated and scared. It is so > nice > > > to be able to talk > > > > to > > > > > people who understand what you are going > thru. I > > > have a high level > > > > of > > > > > protein, 2.7 to be exact. My nephroligist > thinks > > > I have had this > > > > for > > > > > atleast 5 years. I was put on Rampril (Ace > > > Inhibitors) and fish > > > oil. > > > > > I > > > > > feel ok, but I do get very tired and have > the > > > flank pains that you > > > > > all > > > > > have talked about. If any of you have words > of > > > wisdom for me, I > > > > would > > > > > love to chat. Thanks to Pierre for starting > this > > > group, it has > > > been > > > > > very helpful. Happy New Year to you all > > > > > > > > > > Sincerely, > > > > > Robyn > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 That is a good idea! Just let me know when Ginger > >Reply-To: iga-nephropathyegroups >To: <iga-nephropathyegroups> >Subject: RE: just diagnosed >Date: Thu, 4 Jan 2001 18:45:49 -0000 > >Good idea Pierre, just let me know date and time and I will be there. > >Hope your ok. > >Best wishes > > > > Re: just diagnosed > >I don't want to be the only one dispensing " words of wisdom " > >Everybody's wisdom and experience is welcome. > >By the way, the eGroups page does have a chat feature. Anyone can use it at >any time. Maybe we could schedule a live chat sometime. > >Pierre > > > Re: just diagnosed > > > > Welcome to the group Robyn! I am 22 yrs old and was diagnosed with IgAN >when > > I was 18. I personally have no words of wisdom, will leave that to >Pierre > > but I am always here to chat! > > > > Ginger > > > > > > > > Hi to everyone, > > > > My name is Robyn and I am 25 years old. I was diagnosed with IgAN on > > > > Nov. 17 2000. I am still trying to let it sink in. My significant > > > > other > > > > found this group for me, it is the most wonderful thing. I was > > > > starting > > > > to feel very isolated and scared. It is so nice to be able to talk >to > > > > people who understand what you are going thru. I have a high level >of > > > > protein, 2.7 to be exact. My nephroligist thinks I have had this for > > > > atleast 5 years. I was put on Rampril (Ace Inhibitors) and fish oil. > > > > I > > > > feel ok, but I do get very tired and have the flank pains that you > > > > all > > > > have talked about. If any of you have words of wisdom for me, I >would > > > > love to chat. Thanks to Pierre for starting this group, it has been > > > > very helpful. Happy New Year to you all > > > > > > > > Sincerely, > > > > Robyn > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > eGroups Sponsor > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Ok. I'll have to sit down and figure out what a good time would be, since many of us are in widely different times zones. Pierre Re: just diagnosed > > > > > > > Welcome to the group Robyn! I am 22 yrs old and was diagnosed with IgAN > >when > > > I was 18. I personally have no words of wisdom, will leave that to > >Pierre > > > but I am always here to chat! > > > > > > Ginger > > > > > > > > > > > Hi to everyone, > > > > > My name is Robyn and I am 25 years old. I was diagnosed with IgAN on > > > > > Nov. 17 2000. I am still trying to let it sink in. My significant > > > > > other > > > > > found this group for me, it is the most wonderful thing. I was > > > > > starting > > > > > to feel very isolated and scared. It is so nice to be able to talk > >to > > > > > people who understand what you are going thru. I have a high level > >of > > > > > protein, 2.7 to be exact. My nephroligist thinks I have had this for > > > > > atleast 5 years. I was put on Rampril (Ace Inhibitors) and fish oil. > > > > > I > > > > > feel ok, but I do get very tired and have the flank pains that you > > > > > all > > > > > have talked about. If any of you have words of wisdom for me, I > >would > > > > > love to chat. Thanks to Pierre for starting this group, it has been > > > > > very helpful. Happy New Year to you all > > > > > > > > > > Sincerely, > > > > > Robyn > > > > > > _________________________________________________________________ > > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > > > > eGroups Sponsor > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 That would be great! I have visited the chat room a few times and talked to myself for awhile and then left. Maybe on a weekend sometime. > >Reply-To: iga-nephropathyegroups >To: <iga-nephropathyegroups> >Subject: Re: just diagnosed >Date: Thu, 4 Jan 2001 19:37:42 -0500 > >Ok. I'll have to sit down and figure out what a good time would be, since >many of us are in widely different times zones. >Pierre > > Re: just diagnosed > > > > > > > > > > Welcome to the group Robyn! I am 22 yrs old and was diagnosed with >IgAN > > >when > > > > I was 18. I personally have no words of wisdom, will leave that to > > >Pierre > > > > but I am always here to chat! > > > > > > > > Ginger > > > > > > > > > > > > > > Hi to everyone, > > > > > > My name is Robyn and I am 25 years old. I was diagnosed with >IgAN >on > > > > > > Nov. 17 2000. I am still trying to let it sink in. My >significant > > > > > > other > > > > > > found this group for me, it is the most wonderful thing. I was > > > > > > starting > > > > > > to feel very isolated and scared. It is so nice to be able to >talk > > >to > > > > > > people who understand what you are going thru. I have a high >level > > >of > > > > > > protein, 2.7 to be exact. My nephroligist thinks I have had this >for > > > > > > atleast 5 years. I was put on Rampril (Ace Inhibitors) and fish >oil. > > > > > > I > > > > > > feel ok, but I do get very tired and have the flank pains that >you > > > > > > all > > > > > > have talked about. If any of you have words of wisdom for me, I > > >would > > > > > > love to chat. Thanks to Pierre for starting this group, it has >been > > > > > > very helpful. Happy New Year to you all > > > > > > > > > > > > Sincerely, > > > > > > Robyn > > > > > > > > _________________________________________________________________ > > > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > > > > > > > eGroups Sponsor > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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