been a good while, but been busy... [imdsa self-advocate]

[Guest guest]

 

Hey, everyone. It's been a good while for me to say somethng on here. I do wish

everyone a great holday season, and hope everyone is not only warm, but safe.

 

http://obsurvey.com/S2.aspx?id=56E2FFE2-8888-4829-BDBF-8E4EC5C60189 

enclosed, is a survey I just found again. I did this a few days after brandy put

it out. Please do not forget and fill out the feed-back tab, something small, or

a good amount but feed-back is not only apreciated, yet it helps everyone. I've

already heard some great ideas, and I would love to hear more.

For, all new families, hello my name is Casey Morton, I am the self-advocate for

the IMDSA, and have been working for/with and side-beside the board for now 3

years, and counting. I do have MDS, mosaic Down syndrome; from the last

conference I was told with testing I now have 22.3% and as I understand it, the

lowest percentage is 16%. I remember reading something as a boy something about

66.5% cells affected, I did not know at the time what that meant, and teach my

own child [son] what my own parents taught me. Ronin, is 4... I'm anxious to

pick him up on friday to have another weekend with him

I've been unfortunatley employed for only a quarter of the time which meant I

had time to realize how important it is to continue on to work with all of you,

I've been sent to the last 2 conferences via IMDSA becuuase and from my work

volunteering, times served on the board, and fundraising teams, video lessons,

and my leadership/dedication to all of that has gotten me to help reach out to

so many people that has needed it. It is because of my work with the IMDSA, that

I have had developed a good number of people that has come out to share there

strories; as those affected, and blessed with this diagnosis and with the

parents I continue to work with on a monthy basis this number continues to get

bigger.

I need to send a special  " Thank You " everyone that has stuck by not only me, but

the IMDSA to bring us closer as the family we know to be.

The IMDSA for all is the main place to learn, grow, and continue to add on our

family, we have a big one. Please, If you have any questions for me, I am here

and we all are on facebook, but please do not forget our website www.imdsa.org

then come by after

http://www.facebook.com/#!/pages/International-Mosaic-Down-Syndrome-Association/\

124966854183961 then, come by http://www.facebook.com/#!/casey.morton2 and say

hi, and we will infact talk. Casey Morton.