Re: Question?

May 2, 2008

antibiotics are specific to specific bacteria. aspiration pneumonia does not go

away on its own. however, it isn't a good idea to be taking two antibiotics at

one time. with the aspiration pneumonia he will start to run a temp. if he is

on an antibiotic for a UTI then they must have cultured the bacteria to see what

it is susceptible to and what drug it is resistant to. it would be shot in the

dark for the bacteria to be the same in the pneumonia. that may develop further

on down the line. the only thing i can think of that may be similar to a

collapsed lung would be what is called atelectasis. difficult to explain, but i

will try. it is when part of the lung fills up with congestion and shows a

cloudy spot on the xray, thus air exchange doesn't get to that part of the

lung. there are more technical questions to ask, but without the whole story, i

don't want to guess. just watch his temp and of course his behavior and other

idiosyncracies he displays with an infection. there is also the possibility

that the antibiotic is such a broad spectrum type that it could work for the

pneumonia katydid

Question?

Ok, why am I being told by the nurses at the nh that Aspiration Pneumonia does

not take treatment and that it will go away on it's own? I Googled Aspiration

Pneumonia and all articles say it needs antibiotic treatment. When I asked if

Jim is getting two separate antibiotics one for the UTI and one for the

Aspiration Pneumonia, they told me no, only for the UTI and that the Aspiration

Pneumonia does not need to be treated.. Of course, the thought of Jim taking two

antibiotics at once after all the antibiotics he has had in the last three weeks

scares me, but should I push for it or not. This is where it starts to get hard

in the decision making. Too much antibiotics could lead to some kind of other

problems and no antibiotics could lead to worse Pneumonia.

I need your humble opinions if I should inforce that Jim gets an antibiotic for

the Pneumonia or would I be pushing too many antibiotics on him within the last

three weeks. As of now, all his vital signs are good and no fever. he is

coughing and sneezing a lot, but that could be good to get those aspirated

particles out.

I'm backed into a corner, but 100s of heads are better than one to figure this

out.

Let me know what you would do. Antibiotic vs No Antibiotic.

Jan

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May 2, 2008

Jan, Mom aspirated and got congested in her dying phase. You could hear the

congestion,

she was coughing what would have been a productive cough in someone who could

get it

up and out. However, it had not turned to pneumonia, no infection. The

congestion is

certainly a breeding ground for bacteria, but if there is no fever, perhaps

there is no

infection. It will definitely take careful watching. Can Jim get deep breathing

treatment

from a therapist, to help loosen what is in there, help him cough it up?

Trouble is, if he is

aspirating while drinking, this will be ongoing. My heart goes out to you with

yet more

decisions, advocating to do.

>

> Ok, why am I being told by the nurses at the nh that Aspiration Pneumonia does

not

take treatment and that it will go away on it's own? I Googled Aspiration

Pneumonia

and all articles say it needs antibiotic treatment. When I asked if Jim is

getting two

separate antibiotics one for the UTI and one for the Aspiration Pneumonia, they

told me

no, only for the UTI and that the Aspiration Pneumonia does not need to be

treated. Of

course, the thought of Jim taking two antibiotics at once after all the

antibiotics he has had

in the last three weeks scares me, but should I push for it or not. This is

where it starts to

get hard in the decision making. Too much antibiotics could lead to some kind

of other

problems and no antibiotics could lead to worse Pneumonia.

> I need your humble opinions if I should inforce that Jim gets an antibiotic

for the

Pneumonia or would I be pushing too many antibiotics on him within the last

three weeks.

As of now, all his vital signs are good and no fever. he is coughing and

sneezing a lot, but

that could be good to get those aspirated particles out.

> I'm backed into a corner, but 100s of heads are better than one to figure

this out.

> Let me know what you would do. Antibiotic vs No Antibiotic.

> Jan

>

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____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

April 11, 2009

i get that all of the time with my now 13mo old son. but he was small. they just

seem to keep the baby look a little longer i think. 9 hrs is great so long as he

is growing fine yipeee for you. my 5 1/2 yr old son doesnt know either not

because we are ashamed it just hasnt presented itself. we went to a ds picnic

and i just knew he would have questions but he didnt notice any differences.

good for him. we told our 15yr old and gave him a book about ds to read. you

will know when the time is right

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- Question?

I have been to a few places and the first thing people say about my son(9weeks

old now) he is so tiny). But for height and weight he is in the 50% percentile

but his head is only 15 inches(is this considered very small). Also I still

didn't explain to my 6 year old son yet. I figure I would wait another year or

two. I just know what to say or how to explain it to him. We were at Busch

Gardens yesterday and the boy in front of us had DS and was about 4 years old

and my 6 year old went to talk to him and he wasn't responding to him and he

just didn't get it but I didn't know what to say??? Also he is sleeping about 9

hrs at night is this normal? Sorry for all the quesitons but this is like the

only place where I could ask, most of the sites is like no one is there.

Thanks,

April 11, 2009

hey linda, i am in the same boat.... my 3 yr old who you would think is 6 b/c of

her vocabulary and use of words, lol gets mad when someone doesnt speak to

her, whether its a cashier at walmart or a kid in a shopping cart 15ft away...

when our baby who is 7 wks today was in the nicu for 11 days, she didnt

understand why she couldnt go in. we told her little brother was sick, which he

was... she got that,.... then when he came home we started showing her pics of

" special babies " which i think everychild is special don't get me wrong, but i

wanted to show her some of the differences in features. i showed her that

everyone is the same 2 hands, a head, feet ,you know all the main things, but

then i started showing the color differences. she got that.... then we moved on

and it just so happens that later that day we went to a friends house and her

neighbor is a big wig with arc in our area and she got to meet some new

people... she asked me later if they

were special like brother and i told her yes, she said, he doesnt look like

them. he looks like me....which he does, so now i am explaining the heart issue,

so she now when she holds him rubs his heart and says, it gonna be better

soon. i dont know how else to explain it to her, she just turned 3 in january,

my middle " turkey " kaylin, well, she just loves everyone to, and to be quite

honest with you, i am starting to have my concerns with her.... im gonna look

into having her tested...she doesnt look like ds, but her eyes are wider, she

has very little vocab, and didnt start walking or crawling or anything until

later... and she used to flap her hands A LOT... so im not sure what i am

looking at with her, maybe shes just being " the middle child " who knows.... well

i am cleaning up this TINY hotel room that the 5 of us are sharing, so i can sew

later today... be on for convo later...

Subject: Question?

To: MosaicDS

Date: Saturday, April 11, 2009, 8:33 AM