Guest guest Posted March 21, 2006 Report Posted March 21, 2006 Re: Recent diagnosis Hello and thank you. I now feel like I'm not alone in this. The cancer was diagnosed after a bioposy was taken. We have only known about the cancer for 4 days so are in the shock/crying/scared/angry phase. The details I have are that the Gleason score is 6, about 15% of the prostate is involved and the stage is T1C. The reading I've done is that this could be worse . . . but it is nevertheless frightening. I just need help understanding what is going on. We're seeing the doctor on the 15th of February to review what we should do - i.e., radiation therapy including 'seeding', etc. I'm so glad to know I now have some where to go for ideas, support, etc. Metcalf wrote: Anita Please let the group know what you know about your hubbies tests. Has your hubby got any pains? Has the doc asked for scans etc to check for details. Do you know if the urologist felt a lump on the prostate. Do you know the Gleason score? You will probably find that, as with most prostate cancers, the progression is slow. We have all been through what you are going through now and empathise with you. Best wishes (PCa Support group owner) Hambleton Selby Yorkshire England Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. Yahoo! MailUse Photomail to share photos without annoying attachments. Quote
Guest guest Posted March 21, 2006 Report Posted March 21, 2006 Anita, You are going through what we all have when we (or our partner) were diagnosed – fear/concern, call it what you will. I can only tell you that in the vast majority of cases it gets better over the years. One of the most common issues we have to deal with is a sudden focus on our health. Because, broadly speaking, we all expect Cancer to be fatal, we also expect that it will soon spread an attack us. But in the vast majority of cases that is simply not so and it is certainly highly unlikely to be so in Pat’s case from the details you have sent in. In fact it seems that he may be a candidate for what is known as Active Surveillance since his diagnosis has many of the aspects of what is known as an ‘insignificant tumour’- that is to say a tumour that is unlikely to spread and cause any serious problem during the lifetime of the man. I give you a few links to relevant material on this subject below if you want to read up a bit more. But back to Pat’s back pain, because that is something I can really relate to. About three weeks after I was diagnosed (way back in 1996!) I too had back pain and immediately thought of spread, metastasis etc – at that stage I was still under the impression that I might only have a few months to live, as so many of us did in their early days. To add to my consternation I started feeling a pain in my groin, just about where I thought the lymph nodes resided. That confirmed my fear to me. BUT then I started dealing with the panic and fear and thinking rationally. I am tall, I played rugby, I had back problems all my life, from the time I was in my twenties: what I was feeling in my back was no different from what I had been dealing with for the past 35 years or so. And as to the groin pain, well, thinking carefully about that too, I realized that the first time I’d had that twinge was 20 years earlier. I still get those pains from time to time, but I’m still here. Good luck on your journey, no matter what route you take., Here are the links I referred to. This is to an article by Dr published in The Lancet http://tinyurl.com/arc8s It describes a study he is running in UK – there are similar studies at two locations in trhe USA and one in Canada, as far as I am aware. All report very positive results. This is a piece mailed on a mailing List by Donna Pogliano, prostate cancer activist and co-author of the best book on PCa that I’ve read http://tinyurl.com/cen5d The definition of ‘insignificant tumour’ that is generally accepted is Nonpalpable Stage T1c Percent free PSA 15 or greater Gleason less than 7 Less than three needle cores with none greater than 50% tumour. All the best Terry Herbert in Melbourne Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June '04: TURP. Mar '06 PSA 17.40 fPSA 23% My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Metcalf Sent: 22 March 2006 10:37 AM To: Prostate Cancer Support Subject: Fw: Recent diagnosis Re: Recent diagnosis Hello and thank you. I now feel like I'm not alone in this. The cancer was diagnosed after a bioposy was taken. We have only known about the cancer for 4 days so are in the shock/crying/scared/angry phase. The details I have are that the Gleason score is 6, about 15% of the prostate is involved and the stage is T1C. The reading I've done is that this could be worse . . . but it is nevertheless frightening. I just need help understanding what is going on. We're seeing the doctor on the 15th of February to review what we should do - i.e., radiation therapy including 'seeding', etc. I'm so glad to know I now have some where to go for ideas, support, etc. Metcalf wrote: Anita Please let the group know what you know about your hubbies tests. Has your hubby got any pains? Has the doc asked for scans etc to check for details. Do you know if the urologist felt a lump on the prostate. Do you know the Gleason score? You will probably find that, as with most prostate cancers, the progression is slow. We have all been through what you are going through now and empathise with you. Best wishes (PCa Support group owner) Hambleton Selby Yorkshire England Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote
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