Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Robyn, I had 3 peices taken from different parts of my left kidney. I expect they like to get samples from differnt areas so they can compare progess of the disease? _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 You're welcome vik. Hope the biopsy report comes back looking good. Pierre Re: kidney biopsy > Thank you guys again. I did contact the nephrologist who said not to worry > unless I see large clots in the urine and feel dizzy. it has been a nerve > wracking couple of days but there is no longer visible blood in the my urine. > thanks again. vik > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Laparoscopic? That seems like major surgery compared to just a needle biopsy. Was there any reason given as to why you needed a more invasive procedure? Just curious about it. Pierre Re: kidney biopsy > > > >This is the first time I've ever heard of being sent home 6 hours after a > >kidney biopsy. Anybody else have it done that way? > > > >When I had my biopsy 8 years ago, I was admitted automatically to a > hospital > >room, in bed for 24 hours. As far as I know, they have to monitor the > >patient's blood pressure and hematocrit to make sure there is no internal > >bleeding (which is a separate issue than any blood in the urine). I guess > >they must be getting pretty confidant with this procedure. I don't see how > >age would enter into it, because bleeding has nothing to do with age. > > > >Let us know how it goes Vik, and good luck. > > > >Pierre > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 The best part of the whole biopsy thing is actually knowing what you have, instead of just some kind of glomerulonephritis. Pierre Re: kidney biopsy > Pierre, the gun sounds revolting. I am glad I missed that bit but I did > feel a kind of snipping thing. I could feel him poking about with the > needles which was bad enough. I half liked the sliding about feeling of the > kidneys settling again after though. > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Hi everybody! I read all the stories about the biopsies you all have had. In Holland it is even faster. Haiko went in at 11.30 am, and I could take him back home at 16.00 pm. In hospital they monitored his blood pressure regularly, and he had to take some rest. He also should not lift heavy things for a few days, and take it easy. The biopsy itself didn't hurt him much, but afterwards it was really uncomfortable for almost a week. Being a very active person, I had to almost tie him to a chair to keep him from painting his boat the next day!!! He slept well that night but I kept listening if everything was alright! Maybe being a bit overprotective, but I see a lot af weird things in the hospital I work in. And yes, how is Walt doing? I hope that it is a good sign that we haven't heard from him in a while. From the Netherlands: best wishes from Haiko and Mariette Re: kidney biopsy > This is the first time I've ever heard of being sent home 6 hours after a > kidney biopsy. Anybody else have it done that way? > > When I had my biopsy 8 years ago, I was admitted automatically to a hospital > room, in bed for 24 hours. As far as I know, they have to monitor the > patient's blood pressure and hematocrit to make sure there is no internal > bleeding (which is a separate issue than any blood in the urine). I guess > they must be getting pretty confidant with this procedure. I don't see how > age would enter into it, because bleeding has nothing to do with age. > > Let us know how it goes Vik, and good luck. > > Pierre > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 It was more invasive. I have two small 1/2 inch scars on my back and side. I did have to undergo general anesthia. The pros are that the results are more accurate and can detail prognosis better, you are out of the hospital in 6 hours, no chance of bleeding. Laproscopic is generally used for non-compliant, overweight or afraid of needles people. I fall into the not too fond of needles category. My nephrologist gave me the choice and my sister helped me decide(she is in med school right now). In the end, it was me who decided that I needed the most definitive answer. Re: kidney biopsy >Laparoscopic? That seems like major surgery compared to just a needle >biopsy. Was there any reason given as to why you needed a more invasive >procedure? Just curious about it. >Pierre > > Re: kidney biopsy >> >> >> >This is the first time I've ever heard of being sent home 6 hours after a >> >kidney biopsy. Anybody else have it done that way? >> > >> >When I had my biopsy 8 years ago, I was admitted automatically to a >> hospital >> >room, in bed for 24 hours. As far as I know, they have to monitor the >> >patient's blood pressure and hematocrit to make sure there is no internal >> >bleeding (which is a separate issue than any blood in the urine). I guess >> >they must be getting pretty confidant with this procedure. I don't see >how >> >age would enter into it, because bleeding has nothing to do with age. >> > >> >Let us know how it goes Vik, and good luck. >> > >> >Pierre >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Well that is interesting. You are the first person I've heard of who has had it done that way. Sounds a lot like when they took out my gallbladder. Pierre Re: kidney biopsy > >> > >> > >> >This is the first time I've ever heard of being sent home 6 hours after > a > >> >kidney biopsy. Anybody else have it done that way? > >> > > >> >When I had my biopsy 8 years ago, I was admitted automatically to a > >> hospital > >> >room, in bed for 24 hours. As far as I know, they have to monitor the > >> >patient's blood pressure and hematocrit to make sure there is no > internal > >> >bleeding (which is a separate issue than any blood in the urine). I > guess > >> >they must be getting pretty confidant with this procedure. I don't see > >how > >> >age would enter into it, because bleeding has nothing to do with age. > >> > > >> >Let us know how it goes Vik, and good luck. > >> > > >> >Pierre > >> > > >> > > >> > > >> > > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 It's very interesting to find out how things are done in different countries. I suspect the same day in / day out way will become standard procedure everywhere. Pierre Re: kidney biopsy > > > > This is the first time I've ever heard of being sent home 6 hours after a > > kidney biopsy. Anybody else have it done that way? > > > > When I had my biopsy 8 years ago, I was admitted automatically to a > hospital > > room, in bed for 24 hours. As far as I know, they have to monitor the > > patient's blood pressure and hematocrit to make sure there is no internal > > bleeding (which is a separate issue than any blood in the urine). I guess > > they must be getting pretty confidant with this procedure. I don't see how > > age would enter into it, because bleeding has nothing to do with age. > > > > Let us know how it goes Vik, and good luck. > > > > Pierre > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 It's been a while since I posted. I'm still in the hospital. Today is the first day in a long while that things are starting to look up. I've gone through 29 units of blood so far. Been bleeding just about every day of the last 2 weeks. The doctors are fighting it out with each other. The big problem is that because of IgAN, they can't do a standard dye- based Angiogram to see where the bleeding is. That leaves scoping (I've had 5 Endoscopes by mouth, and 2 colonoscopes by the other end), and nuclear tagging (done twice -- neat procedure, you have to lie absolutely still for 90 minutes). If I don't bleed overnight, I'm going to get to eat for the first time in 5 days (keeping in mind that I have only had solid food one night in 2 weeks). This has pretty much been the worst 3 weeks of my life. I wouldn't wish this on anyone... Today is the first time I've gotten up and walked around in 4 days. I feel pretty weak. At least I still have a private room... Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2001 Report Share Posted February 6, 2001 Walt I am so sorry you are going thru this. We all care for you and hope you get better soon Robyn --- wcrosby@... wrote: > It's been a while since I posted. > > I'm still in the hospital. Today is the first day > in a long while > that things are starting to look up. > > I've gone through 29 units of blood so far. Been > bleeding just about > every day of the last 2 weeks. > > The doctors are fighting it out with each other. > > The big problem is that because of IgAN, they can't > do a standard dye- > based Angiogram to see where the bleeding is. That > leaves scoping > (I've had 5 Endoscopes by mouth, and 2 colonoscopes > by the other > end), and nuclear tagging (done twice -- neat > procedure, you have to > lie absolutely still for 90 minutes). > > If I don't bleed overnight, I'm going to get to eat > for the first > time in 5 days (keeping in mind that I have only had > solid food one > night in 2 weeks). > > This has pretty much been the worst 3 weeks of my > life. I wouldn't > wish this on anyone... > > Today is the first time I've gotten up and walked > around in 4 days. > I feel pretty weak. > > At least I still have a private room... > > Walt > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 I realize I'm quite behind on my responses to these posts... but just had to ask how in the world you got so lucky to be 'sedated' during your biopsy, ??? I **begged** and begged and begged and they told me no because I had to hold my breath and stuff while they where putting the needle in there. By the way, didn't anyone else experience incredible pain during the biopsy??? It hurt so bad during it, heck, I'd rather give birth again then go through another biopsy...and I'm not exaggerating. I was in the hospital for 24 hours after the Biopsy. Ginger > >Reply-To: iga-nephropathy >To: <iga-nephropathy > >Subject: RE: kidney biopsy >Date: Mon, 5 Feb 2001 14:16:50 -0000 > >Hey Pierre > >Am I the only one who was given a sedative!!! This knocked me out for the >entire procedure, I didn't get to see a thing, I remember my Neph saying he >was going to biopsy the left kidney, and I said why when the pain was in >the >right one....silly me didn't realise that IGAN is in both kidneys if you >have it!!!! However he did the biopsy on the right one in the end, and on >hindsight now I wish it had been the left, given the trouble I have had >with >the right!!!! Anyway when I came to it was all over.....would have been >fascinated to see it performed on the scanner. Trust me huh!!! > >Best wishes > > > > Re: kidney biopsy > >I also had virtually no pain at all afterwards. The unpleasant part was the >long needle tube being pushed around in there, but it was kind of fun being >able to actually see it on the monitor. >Pierre > Re: kidney biopsy > > > > Well no, not jumping. I was quite surprised at how little I hurt after >the > > procedure. Mind you I got wumped by someone's back pack and swore a >fair > > bit over that! > > > > > > >_________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at >http://www.hotmail.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 Ginger: That's really unfortunate that you experienced pain with your biopsy. They gave me 3 shots of Lidocaine, and I really didn't feel the needle at all. I did feel the gun go off, but they only had to do it twice. The biggest pain was the contorted position that I had to be in, and the length of time that I had to be in it. I would have rather been hung over a pommel horse than laid out on the stretcher in the position that I was in. Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Hi Ginger Welcome back. Yes now I have heard some of the other biopsy stories, am glad I was out of it LOL!!! I didn't have to ask for sedation, my Neph just insisted it would be better for everyone. Agreed I had to get into a fairly awkward position prior to sedation, and it was pretty uncomfortable. Best wishes Re: kidney biopsy > >I also had virtually no pain at all afterwards. The unpleasant part was the >long needle tube being pushed around in there, but it was kind of fun being >able to actually see it on the monitor. >Pierre > Re: kidney biopsy > > > > Well no, not jumping. I was quite surprised at how little I hurt after >the > > procedure. Mind you I got wumped by someone's back pack and swore a >fair > > bit over that! > > > > > > >_________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at >http://www.hotmail.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Some hospitals just don't like to sedate. My son had what is called conscious sedation-sort of like being in lala land. I insisted on it. You are conscious and awake, can respond, but feel nothing. I'm surprised when I hear that some facilities don't use it to diminish pain during these types of procedures. If one of the doctors had to experience it, they would soon change their mind. > >Reply-To: iga-nephropathy >To: iga-nephropathy >Subject: RE: kidney biopsy >Date: Sun, 11 Feb 2001 00:00:53 -0000 > >I realize I'm quite behind on my responses to these posts... but just had >to >ask how in the world you got so lucky to be 'sedated' during your biopsy, >??? I **begged** and begged and begged and they told me no because I >had to hold my breath and stuff while they where putting the needle in >there. By the way, didn't anyone else experience incredible pain during the >biopsy??? It hurt so bad during it, heck, I'd rather give birth again then >go through another biopsy...and I'm not exaggerating. >I was in the hospital for 24 hours after the Biopsy. > > >Ginger > > > > > >Reply-To: iga-nephropathy > >To: <iga-nephropathy > > >Subject: RE: kidney biopsy > >Date: Mon, 5 Feb 2001 14:16:50 -0000 > > > >Hey Pierre > > > >Am I the only one who was given a sedative!!! This knocked me out for >the > >entire procedure, I didn't get to see a thing, I remember my Neph saying >he > >was going to biopsy the left kidney, and I said why when the pain was in > >the > >right one....silly me didn't realise that IGAN is in both kidneys if you > >have it!!!! However he did the biopsy on the right one in the end, and >on > >hindsight now I wish it had been the left, given the trouble I have had > >with > >the right!!!! Anyway when I came to it was all over.....would have been > >fascinated to see it performed on the scanner. Trust me huh!!! > > > >Best wishes > > > > > > > > Re: kidney biopsy > > > >I also had virtually no pain at all afterwards. The unpleasant part was >the > >long needle tube being pushed around in there, but it was kind of fun >being > >able to actually see it on the monitor. > >Pierre > > Re: kidney biopsy > > > > > > > Well no, not jumping. I was quite surprised at how little I hurt >after > >the > > > procedure. Mind you I got wumped by someone's back pack and swore a > >fair > > > bit over that! > > > > > > > > > > >_________________________________________________________________________ > > > Get Your Private, Free E-mail from MSN Hotmail at > >http://www.hotmail.com. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 I am just totally shocked hearing these other biopsy stories. I knew that during my biopsy they 'messed up' to a certain degree, but perhaps more so than I thought. I was told that the reason Icould not be sedated during the biopsy was because I had to hold my breath (which I did), right before they would stick that thing through there... apparently the kidneys are hidden quite a bit by the rib cage. There were two problems during the biopsy, one was that the screen they where looking at was fuzzy and they couldn't tell if they where hitting the kidney or something else. Two was they didn't put enough pain medication into my back... whatever they hit with that thing they used, sent spasms of unbelievable pain through my whole body...and during this I had to hold my breath and not move! This is why I say I'd rather go through childbirth again, than another biopsy... at least having a kid I know *why* I'm in so much pain and I know I'm not going to die from it. Ginger > >Reply-To: iga-nephropathy >To: iga-nephropathy >Subject: RE: kidney biopsy >Date: Sun, 11 Feb 2001 10:23:51 -0600 > >Some hospitals just don't like to sedate. My son had what is called >conscious sedation-sort of like being in lala land. I insisted on it. You >are conscious and awake, can respond, but feel nothing. I'm surprised when >I hear that some facilities don't use it to diminish pain during these >types >of procedures. If one of the doctors had to experience it, they would soon >change their mind. > > > > > >Reply-To: iga-nephropathy > >To: iga-nephropathy > >Subject: RE: kidney biopsy > >Date: Sun, 11 Feb 2001 00:00:53 -0000 > > > >I realize I'm quite behind on my responses to these posts... but just had > >to > >ask how in the world you got so lucky to be 'sedated' during your biopsy, > >??? I **begged** and begged and begged and they told me no because I > >had to hold my breath and stuff while they where putting the needle in > >there. By the way, didn't anyone else experience incredible pain during >the > >biopsy??? It hurt so bad during it, heck, I'd rather give birth again >then > >go through another biopsy...and I'm not exaggerating. > >I was in the hospital for 24 hours after the Biopsy. > > > > > >Ginger > > > > > > > > > >Reply-To: iga-nephropathy > > >To: <iga-nephropathy > > > >Subject: RE: kidney biopsy > > >Date: Mon, 5 Feb 2001 14:16:50 -0000 > > > > > >Hey Pierre > > > > > >Am I the only one who was given a sedative!!! This knocked me out for > >the > > >entire procedure, I didn't get to see a thing, I remember my Neph >saying > >he > > >was going to biopsy the left kidney, and I said why when the pain was >in > > >the > > >right one....silly me didn't realise that IGAN is in both kidneys if >you > > >have it!!!! However he did the biopsy on the right one in the end, and > >on > > >hindsight now I wish it had been the left, given the trouble I have had > > >with > > >the right!!!! Anyway when I came to it was all over.....would have >been > > >fascinated to see it performed on the scanner. Trust me huh!!! > > > > > >Best wishes > > > > > > > > > > > > Re: kidney biopsy > > > > > >I also had virtually no pain at all afterwards. The unpleasant part was > >the > > >long needle tube being pushed around in there, but it was kind of fun > >being > > >able to actually see it on the monitor. > > >Pierre > > > Re: kidney biopsy > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I hurt > >after > > >the > > > > procedure. Mind you I got wumped by someone's back pack and swore a > > >fair > > > > bit over that! > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > Get Your Private, Free E-mail from MSN Hotmail at > > >http://www.hotmail.com. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Ginger My god I can't believe what you went through, and no small wonder you were in pain throughout it. I have to say again I am consider myself fortunate to have been out of it. We certainly have different experiences here don't we. Not having had children, nor likely to now, I will take your word for the pain comparison LOL. Keep smiling kiddo. Best wishes Re: kidney biopsy > > > > > >I also had virtually no pain at all afterwards. The unpleasant part was > >the > > >long needle tube being pushed around in there, but it was kind of fun > >being > > >able to actually see it on the monitor. > > >Pierre > > > Re: kidney biopsy > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I hurt > >after > > >the > > > > procedure. Mind you I got wumped by someone's back pack and swore a > > >fair > > > > bit over that! > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > Get Your Private, Free E-mail from MSN Hotmail at > > >http://www.hotmail.com. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 At least you don't have to raise a biopsy specimen afterwards So I guess some of you are not looking forward to your second biopsies then? Pierre P.S. Just kidding. I've heard of people having a second biopsy later on, but it's rarely necessary. Malt wrote: > > Ginger > > My god I can't believe what you went through, and no small wonder you > were > in pain throughout it. I have to say again I am consider myself > fortunate > to have been out of it. > > We certainly have different experiences here don't we. Not having had > children, nor likely to now, I will take your word for the pain > comparison > LOL. > > Keep smiling kiddo. > > Best wishes > > > Re: kidney biopsy > > > > > > > >I also had virtually no pain at all afterwards. The unpleasant > part was > > >the > > > >long needle tube being pushed around in there, but it was kind of > fun > > >being > > > >able to actually see it on the monitor. > > > >Pierre > > > > Re: kidney biopsy > > > > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I > hurt > > >after > > > >the > > > > > procedure. Mind you I got wumped by someone's back pack and > swore a > > > >fair > > > > > bit over that! > > > > > > > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > > Get Your Private, Free E-mail from MSN Hotmail at > > > >http://www.hotmail.com. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 , you made me smile with your kind words, thank you Though I guess that all would explain why I had the anxiety attack after the biopsy (that and the fact that the Dr. was a jerk...had the 'attack' while he was there, he turned around and walked out! not like I was doing it on purpose or anything). I couldn't even feed myself after the biopsy I was so weak, my boyfriend at the time had to literally spoon feed me, that is the first time thats happened, since I was a baby! As for you Pierre.... trying to scare everybody, hehe. I won't be fooled... even if I'm told I need another one, I'll tell them no way in...... well, you get the picture. Ginger > >Reply-To: iga-nephropathy >To: iga-nephropathy >Subject: Re: kidney biopsy >Date: Sun, 11 Feb 2001 15:57:30 -0500 > >At least you don't have to raise a biopsy specimen afterwards >So I guess some of you are not looking forward to your second biopsies >then? > >Pierre >P.S. Just kidding. I've heard of people having a second biopsy later on, >but it's rarely necessary. > > Malt wrote: > > > > Ginger > > > > My god I can't believe what you went through, and no small wonder you > > were > > in pain throughout it. I have to say again I am consider myself > > fortunate > > to have been out of it. > > > > We certainly have different experiences here don't we. Not having had > > children, nor likely to now, I will take your word for the pain > > comparison > > LOL. > > > > Keep smiling kiddo. > > > > Best wishes > > > > > > Re: kidney biopsy > > > > > > > > > >I also had virtually no pain at all afterwards. The unpleasant > > part was > > > >the > > > > >long needle tube being pushed around in there, but it was kind of > > fun > > > >being > > > > >able to actually see it on the monitor. > > > > >Pierre > > > > > Re: kidney biopsy > > > > > > > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I > > hurt > > > >after > > > > >the > > > > > > procedure. Mind you I got wumped by someone's back pack and > > swore a > > > > >fair > > > > > > bit over that! > > > > > > > > > > > > > > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > > > Get Your Private, Free E-mail from MSN Hotmail at > > > > >http://www.hotmail.com. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Do you know that they tend to biopsy much sooner now than they used to. I had the glomerulonephritis for a good 14 years or so before I finally had a biopsy, and even then, the neph was hesitant about it. Even today, there still isn't complete unanimity on this point about when to biopsy. Some nephrologists don't think it's worth the trouble and the slight risk until proteinuria goes beyond a certain point (usually > 1 g/day). The reason for this is that it really doesn't change anything in terms of treatment anyway. Pierre Ginger Pierce wrote: > > , you made me smile with your kind words, thank you Though I > guess > that all would explain why I had the anxiety attack after the biopsy > (that > and the fact that the Dr. was a jerk...had the 'attack' while he was > there, > he turned around and walked out! not like I was doing it on purpose or > > anything). I couldn't even feed myself after the biopsy I was so weak, > my > boyfriend at the time had to literally spoon feed me, that is the > first time > thats happened, since I was a baby! > > As for you Pierre.... trying to scare everybody, hehe. I won't be > fooled... > even if I'm told I need another one, I'll tell them no way in...... > well, > you get the picture. > > Ginger > > > > >Reply-To: iga-nephropathy > >To: iga-nephropathy > >Subject: Re: kidney biopsy > >Date: Sun, 11 Feb 2001 15:57:30 -0500 > > > >At least you don't have to raise a biopsy specimen afterwards > >So I guess some of you are not looking forward to your second > biopsies > >then? > > > >Pierre > >P.S. Just kidding. I've heard of people having a second biopsy later > on, > >but it's rarely necessary. > > > > Malt wrote: > > > > > > Ginger > > > > > > My god I can't believe what you went through, and no small wonder > you > > > were > > > in pain throughout it. I have to say again I am consider myself > > > fortunate > > > to have been out of it. > > > > > > We certainly have different experiences here don't we. Not having > had > > > children, nor likely to now, I will take your word for the pain > > > comparison > > > LOL. > > > > > > Keep smiling kiddo. > > > > > > Best wishes > > > > > > > > > Re: kidney biopsy > > > > > > > > > > > >I also had virtually no pain at all afterwards. The > unpleasant > > > part was > > > > >the > > > > > >long needle tube being pushed around in there, but it was > kind of > > > fun > > > > >being > > > > > >able to actually see it on the monitor. > > > > > >Pierre > > > > > > Re: kidney biopsy > > > > > > > > > > > > > > > > > > > Well no, not jumping. I was quite surprised at how little > I > > > hurt > > > > >after > > > > > >the > > > > > > > procedure. Mind you I got wumped by someone's back pack > and > > > swore a > > > > > >fair > > > > > > > bit over that! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > > > > Get Your Private, Free E-mail from MSN Hotmail at > > > > > >http://www.hotmail.com. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 I wondered about secind biopsies. Take this pill, take that pill. How and when do they decide this pill doesn't work and you should take the other one? Reply-To: iga-nephropathy To: iga-nephropathy Subject: Re: kidney biopsy Date: Sun, 11 Feb 2001 15:57:30 -0500 At least you don't have to raise a biopsy specimen afterwards So I guess some of you are not looking forward to your second biopsies then? Pierre P.S. Just kidding. I've heard of people having a second biopsy later on, but it's rarely necessary. Malt wrote: > > Ginger > > My god I can't believe what you went through, and no small wonder you > were > in pain throughout it. I have to say again I am consider myself > fortunate > to have been out of it. > > We certainly have different experiences here don't we. Not having had > children, nor likely to now, I will take your word for the pain > comparison > LOL. > > Keep smiling kiddo. > > Best wishes > > > Re: kidney biopsy > > > > > > > >I also had virtually no pain at all afterwards. The unpleasant > part was > > >the > > > >long needle tube being pushed around in there, but it was kind of > fun > > >being > > > >able to actually see it on the monitor. > > > >Pierre > > > > Re: kidney biopsy > > > > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I > hurt > > >after > > > >the > > > > > procedure. Mind you I got wumped by someone's back pack and > swore a > > > >fair > > > > > bit over that! > > > > > > > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > > Get Your Private, Free E-mail from MSN Hotmail at > > > >http://www.hotmail.com. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 There are only two kinds of pills a person with IgAN might take more or less permanently in relation to the disease: high blood pressure pills, and perhaps cholesterol pills (not counting fish oil caps). The basis for deciding when those pills fail to work is when, respectively, blood pressure or cholesterol fail to be controlled. In most cases with blood pressure pills, unless it's a problem with tolerating the pill or being allergic to it, the normal practice is to add another, in a stepwise approach, as opposed to changing the original one. Among the blood pressure pills, ACE inhibitors are best for also reducing proteinuria, so patients usually start with a drug from that class. When that isn't enough to control blood pressure, they might add a calcium channel blocker or a diuretic, or eventually, both. Depending on what class of drugs a person can tolerate, just about any blood pressure pill may be used. If it doesn't do anything for proteinuria, it isn't usually changed just for that, and it's assumed that the proteinuria is increasing because the disease is progressing, but it is possible a doctor might try different drugs within the same class, like different ACE inhibitors for example. With ACE inhibitors, they pretty much all work the same though. On the other hand, there can be significant differences between one calcium channel blocker and another. With cholesterol pills, they might try different ones until one lowers the cholesterol, and if they don't, they might continue using them or just drop them. There is also one class of blood pressure pills that has a cholesterol-lowering effect -- alpha blockers, so that might be added to the mix. For drugs like prednisone, it's a different matter. These are generally used only when proteinuria is beyond a certain level, to bring a patient out of what is called nephrotic syndrome. It may or may not work to reduce it, and if it doesn't, there isn't much left to do but either hope for the best, or try immunosuppressants. If that doesn't work, well, it's on to dialysis sooner or later. Alternate day therapy with prednisone for mild, chronic IgAN is still in the investigational stage. A second biopsy is rarely necessary, although sometimes they are done. I think I'm not too far wrong in stating that unless some unusual new disease process comes along or is suspected, few nephrologists would bother with a second biopsy, because, the closer you get to end-stage renal disease, the less the various glomerulo-nephropathies have distinct features. In other words, it all begins to look alike in the glomeruli. For example, say for a kidney that has reached advanced renal failure, there would be little in the biopsy specimen to distinguish between one type of glomerulonephritis and another one. Most of the glomeruli are just masses of indistinct scar tissue at that point. So, in cases of IgAN, a second biopsy usually isn't very useful for anything, since once you know from the first one what the disease is, from then on, lab results are pretty much all you need to keep tabs on how the disease is progressing. Now, there is no law that says a person has to take pills. I think the consequences of high blood pressure are pretty well known and speak for themselves, and we do know that some BP drugs help lower proteinuria. But in the absence of high blood pressure, an IgAN patient with a slowly-progressing, mild case might do just as well not taking anything at all. We don't really know. Pierre andria Blaelock wrote: > > I wondered about secind biopsies. Take this pill, take that pill. > How and > when do they decide this pill doesn't work and you should take the > other > one? > > > > Reply-To: iga-nephropathy > To: iga-nephropathy > Subject: Re: kidney biopsy > Date: Sun, 11 Feb 2001 15:57:30 -0500 > > At least you don't have to raise a biopsy specimen afterwards > So I guess some of you are not looking forward to your second biopsies > then? > > Pierre > P.S. Just kidding. I've heard of people having a second biopsy later > on, > but it's rarely necessary. > > Malt wrote: > > > > Ginger > > > > My god I can't believe what you went through, and no small wonder > you > > were > > in pain throughout it. I have to say again I am consider myself > > fortunate > > to have been out of it. > > > > We certainly have different experiences here don't we. Not having > had > > children, nor likely to now, I will take your word for the pain > > comparison > > LOL. > > > > Keep smiling kiddo. > > > > Best wishes > > > > > > Re: kidney biopsy > > > > > > > > > >I also had virtually no pain at all afterwards. The unpleasant > > part was > > > >the > > > > >long needle tube being pushed around in there, but it was kind > of > > fun > > > >being > > > > >able to actually see it on the monitor. > > > > >Pierre > > > > > Re: kidney biopsy > > > > > > > > > > > > > > > > Well no, not jumping. I was quite surprised at how little I > > hurt > > > >after > > > > >the > > > > > > procedure. Mind you I got wumped by someone's back pack and > > swore a > > > > >fair > > > > > > bit over that! > > > > > > > > > > > > > > > > > > > > > > > > > > > > >_________________________________________________________________________ > > > > > > Get Your Private, Free E-mail from MSN Hotmail at > > > > >http://www.hotmail.com. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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