Re: New member, looking forward to this<missmaree

[Guest guest]

I am new here myself, and I tell you true, it is like being with

people that speak the same language, I don't feel so odd here like I

do in the 'other world' that is called 'Normal'. I think I'd prefer

this one anyway, its not judgemental and its ok if you don't comb

your hair. <G>

Welcome.

~Shocking Blue~

>

>

> Hi Everyone:

>

> I just signed up tonight in the hopes of finding mutual friends who

> can share histories, good and bad experiences, and what are the

> newest therapies available. I had CFS (and/or fibromyalgia) 13

years

> ago and thought I had " more or less " recovered six years later

> (though I was definitely never 100%). This past year I've been

> having lots of problems, and finally this week a rheumatologist

told

> me that my fibromyalgia has reappeared (he said it lies dormant and

> can rear it's head up at any time).

>

> Thankfully for me, the fatigue is not like it was back when, but I

> definitely feel " disabled " with my energy level and most especially

> dealing with the pain and inability to get around very much. I am

> now " barely " able to work 20 hours a week and am worried about

> keeping my job.

>

> Any insight anyone wants to give me at this juncture will be much

> appreciated, and I will review the previous correspondence, also,

for

> recent news, and get a feel for what your group is like.

>

> I look forward to hearing from you,

> Thanks,

>

[Guest guest]

Thanks, Blue for welcoming me ... I know exactly what you mean ...

when I had full-blown CFS 13 years ago, it was incredibly comforting

to talk with others who knew what I was going through. Wishing you

the best, and that both of us will find good information (answers?),

not to mention make new friends who 'speak our language' ..

Take care,

>

> I am new here myself, and I tell you true, it is like being with

> people that speak the same language, I don't feel so odd here like

I

> do in the 'other world' that is called 'Normal'. I think I'd

prefer

> this one anyway, its not judgemental and its ok if you don't comb

> your hair. <G>

>

> Welcome.

>

> ~Shocking Blue~

[Guest guest]

I agree.. I would rather be with non judgemental people here than dealing with normal people that say it is all in our heads...

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