Re: Hello to everyone

[Guest guest]

Madonna,

So nice to hear from you again. Wish things were going better. I am thinking maybe the face and neck swelling may be part of the sinus infection. Keep after that infection, it can end up in your lungs and you don't need that!

How long does your prescription for Avelox run? A lot of times it takes several weeks of antibiotics to clear up sinus infections. I would be very skeptical about sinus surgery if that comes up. I have never had it, but I don't hear good things.

It sounds like your mix of meds are very good. Have you had a bronchoscopy? Have you had a High Resolution CT? There are differing opinions here on this group about biopsy. I am glad that I had one, even though it was gruesome. Until then it was a guessing game. I had been diagnosed with one thing, then another. By the time I found a good doc and had a biopsy, I was sooooo sick and weak. Probably why my experience was so bad.

Keep taking your meds and keep searching for answers. Are you part of a church family that could help you. You can't fight this fight alone. You always have us but we are not there with you.

Let us hear from you and I hope your news is good!

Hugs, Joyce PF 1997

>> It has been awhile since I posted but I do try and read each day. It > has just been such a long haul. I finally found a clinic with a > pulmonary division that would take my insurance. After having another > ct-scan which showed that everything was the same I was sent for a > pft test which came back good. I have that same cough that is being > talked about the pulmonary doctor said he did not think that the > scarring is causing my symptoms. So he sent me for an echo > cardiagram and to an ent doctor. I saw many doctors since it is a > clinic and after the fouth visit this is what he had to say. My > primary care physician wants to know why they did not do a biopsy. > How could they know exactly what is going on without one. Well the > ent doctor put me on Avelox, mucinex and nasacort along with my > advair and albuterol. I have a terrible sinus infection and I will > be having a ct-scan of the sinus soon. > > In the meantime I am still having the shortness of breath and the > fatigue and no one seems to be able to tell me anything. I am really > frustrated. This is going on since May. I just need to know what is > going on. My life is upside down I haven't been able to work and I > am a single mom with four kids. I don't know where else to turn.> > Today I got up and the right side of my neck is swollen and the right > side of my face feels a little numb. So here is something new to > deal with.> > Sorry to vent but I just don't know what to do anymore. Thank you > guys for listening to me. > > I do know that God has our lives in his hands and the final decision > is his. He is also still in the business of doing miracle making > business so we just have to ask for a miracle and a healing and he > will answer if it is his will for it to be so.> > Blessings,> > Madonna>

[Guest guest]

Hi Joyce,

I have been on avelox for 21 days and the doctor just prescribe

another 7 days because the sinus infection is not getting better. I

did have the ct-scan of the sinus and he said I must have the surgery

because I have chronic sinusitus and it will not get better just

worse and I have pollups (not sure of the spelling) in both sinus.

I never had a bronchoscopy is the high resolution ct-scan the same as

the one with contrast. I had one with contrast and one without. I

am in the process of having my insurance changed to medicaid so I can

go to mt. sinai that is where my doctor wants me to go. In the mean

while the ent doctor won't operate until he knows exactly what is

going on with the lung.

I must say that the avelox and the mucinex has helped with the cough

and to help bring up that phlem. I have had a couple of good days

but I don't want to get to happy. Of course I want to return to work

but I know I have to wait for the final diagnosis.

In the meantime I hope everyone the best and remember that everyday

that we are still able to take a breath is a blessing from God.

Thank you Joyce for taking the time to answer.

God's blessing on everyone.

Blessings,

Madonna

-

-- In Breathe-Support , " Joyce " wrote:

>

>

> Madonna,

>

> So nice to hear from you again. Wish things were going better. I

am

> thinking maybe the face and neck swelling may be part of the sinus

> infection. Keep after that infection, it can end up in your lungs

and

> you don't need that!

>

> How long does your prescription for Avelox run? A lot of times it

takes

> several weeks of antibiotics to clear up sinus infections. I would

be

> very skeptical about sinus surgery if that comes up. I have never

had

> it, but I don't hear good things.

>

> It sounds like your mix of meds are very good. Have you had a

> bronchoscopy? Have you had a High Resolution CT? There are

differing

> opinions here on this group about biopsy. I am glad that I had one,

> even though it was gruesome. Until then it was a guessing game. I

had

> been diagnosed with one thing, then another. By the time I found a

good

> doc and had a biopsy, I was sooooo sick and weak. Probably why my

> experience was so bad.

>

> Keep taking your meds and keep searching for answers. Are you part

of a

> church family that could help you. You can't fight this fight

alone.

> You always have us but we are not there with you.

>

> Let us hear from you and I hope your news is good!

>

> Hugs, Joyce PF 1997

>

>

>

> >

> > It has been awhile since I posted but I do try and read each day.

It

> > has just been such a long haul. I finally found a clinic with a

> > pulmonary division that would take my insurance. After having

another

> > ct-scan which showed that everything was the same I was sent for a

> > pft test which came back good. I have that same cough that is

being

> > talked about the pulmonary doctor said he did not think that the

> > scarring is causing my symptoms. So he sent me for an echo

> > cardiagram and to an ent doctor. I saw many doctors since it is a

> > clinic and after the fouth visit this is what he had to say. My

> > primary care physician wants to know why they did not do a biopsy.

> > How could they know exactly what is going on without one. Well the

> > ent doctor put me on Avelox, mucinex and nasacort along with my

> > advair and albuterol. I have a terrible sinus infection and I will

> > be having a ct-scan of the sinus soon.

> >

> > In the meantime I am still having the shortness of breath and the

> > fatigue and no one seems to be able to tell me anything. I am

really

> > frustrated. This is going on since May. I just need to know what

is

> > going on. My life is upside down I haven't been able to work and I

> > am a single mom with four kids. I don't know where else to turn.

> >

> > Today I got up and the right side of my neck is swollen and the

right

> > side of my face feels a little numb. So here is something new to

> > deal with.

> >

> > Sorry to vent but I just don't know what to do anymore. Thank you

> > guys for listening to me.

> >

> > I do know that God has our lives in his hands and the final

decision

> > is his. He is also still in the business of doing miracle making

> > business so we just have to ask for a miracle and a healing and he

> > will answer if it is his will for it to be so.

> >

> > Blessings,

> >

> > Madonna

> >

>