Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 Hi all, I just joined this group a few minutes ago. First of all let me say that I do NOT have an official diagnosis yet. I have been suffering with this pain for 13 years now, since I was 11 years old. It began after I took Prednisone for a few weeks due to Asthma. The doctors told me the pain was just arthritis that I was having as a side effect of the Prednisone. They said it would go away after I stopped taking the medicine. It didn't. I continued having pain in my knees, shins, ankles and feet about 4 times a year. About 6 months ago I started having "flare-ups" more often. About once a month. And it was no longer just my legs/feet. About 2 months ago I started having pain at least 3-4 days a week. As of right now, my pain is in my knees, ankles, feet, legs, toes, arms, shoulder, elbow, fingers, hands, wrists.....almost everywhere. Even my chest and my head. I have been holding off on going to the doctor because right now I have no insurance, and I know he would want to run about a zillion tests. However, after looking over several websites, I am at least 95% sure I have Fibromyalgia. I have nearly all the symptoms, and I also have a lot of the tender points. I had thought maybe I had lupus, but from what I've read, my symptoms just don't match up so well with a diagnosis of lupus. I've been having a LOT of pain for the last 3 days. Last night was almost unbearable. Today isn't much better. I just need a little support, to let me know that I'm not the only one going through this. By the way....I'm 24 years old and married with three children, ages 6, 4 and 2. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 , First of all, welcome! Your sore/achy/painful spots sound like mine. I was diagnosed this time last year. I had been going to the doctor for this and that, and one day I called her and I was crying and at work and I was in soooo much pain. She wanted to see me right away because she always knew I had a high tolerance for pain. First she asked me more specific questions... about sleep (I've been an insomniac my whole life), how I feel when I wake up, etc. By the way, I used to fall asleep at the wheel every so often and that was at 7 am. Then she touched the "trigger points" when she did some of them they hurt, when she did others I about flew off the table in pain. She was most certain then that is was fibro. Also, a whole bunch of other things including the most extreme fatigue, made a second diagnosis of Chronic Fatigue Syndrome. A year later, I am still in pain (or rather again in pain). My pain cycles... it never gets good, it just gets better and worse. I work full time and most nights come home and nap before going to bed. Weekends are spent in and out of bed. I find that weather changes make me hurt, as well as stress, and just plain over doing it. I understand that you have no insurance. The good news about that is.... the diagnosis of fibromyalgia and/or chronic fatigue is not something that test can determine. The tests basically rule out other things. The only good thing when you do get a diagnosis by a good doctor.... they are more willing to try meds to alliviate the pain. There is a great website www.immunesupport.com that has tons of information. I hope you feel better soon. I know my latest "flare" has been horrible. Hugs to you and your family, Tigger New member in pain Hi all, I just joined this group a few minutes ago. First of all let me say that I do NOT have an official diagnosis yet. I have been suffering with this pain for 13 years now, since I was 11 years old. It began after I took Prednisone for a few weeks due to Asthma. The doctors told me the pain was just arthritis that I was having as a side effect of the Prednisone. They said it would go away after I stopped taking the medicine. It didn't. I continued having pain in my knees, shins, ankles and feet about 4 times a year. About 6 months ago I started having "flare-ups" more often. About once a month. And it was no longer just my legs/feet. About 2 months ago I started having pain at least 3-4 days a week. As of right now, my pain is in my knees, ankles, feet, legs, toes, arms, shoulder, elbow, fingers, hands, wrists.....almost everywhere. Even my chest and my head. I have been holding off on going to the doctor because right now I have no insurance, and I know he would want to run about a zillion tests. However, after looking over several websites, I am at least 95% sure I have Fibromyalgia. I have nearly all the symptoms, and I also have a lot of the tender points. I had thought maybe I had lupus, but from what I've read, my symptoms just don't match up so well with a diagnosis of lupus. I've been having a LOT of pain for the last 3 days. Last night was almost unbearable. Today isn't much better. I just need a little support, to let me know that I'm not the only one going through this. By the way....I'm 24 years old and married with three children, ages 6, 4 and 2. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi Tigger, and thanks for the welcome. I've also found that weather changes, stress and over doing it affect my pain level. My husband says that he doesn't need a barometer to tell when it's going to rain....he can just ask me! > > .... " I find that weather changes make me hurt, as well as stress, and just plain over doing it. " .... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Thanks for the welcome ! > , you are definitely not the only one going through this. I know it seems that way, but by coming here you have found what (for me at least) has become a valuable support system. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.