Re: Bronchiectasis and Age

[Guest guest]

I have been told that ADVAIR is not a good idea as it contains steroids and

steroids can lead to infections.

Any thoughts on this?

Marsha/NYC

[Guest guest]

Hello there Tolly! And Sandy from Australia!

Always interested in hearing from others with similar conditons! My

oxygen level was only 68% last week when I went to the hospital

after work. I felt breathless all day and my boss was not amused he

continued only to be interested in getting his work done! Stressful

job. Hey I've been told I now qualify for disability, even a

disabled parking plate ... at least I took the offer up on the

later! I can't stop working right now for financial reasons. Have

to grin and bear it. I'm 59 and [up to now] lead a very hectic

lifestyle so this disease is really putting a damper on things. I

now have a nebulizer along with all the usual and sundry meds and

gadgets we have to have. I am also currently on Avelox antibiotic

which seemed to help get rid of the nasty globs of mucus but I am

left with an unproductive cough. My sinuses are blocked, not sure

if it is a cold [seems like it] or that my infection moved " north " .

Tolly, are you in England? I was born in London ... yeah during the

smoggy London days. I also had very bad whooping cough as an infant

and was hospitalized for measles as a toddler. Probably began my

journey to bronchiectasis, what do you think?

Thanks for the information on carrying oxygen on airlines. I will

be travelling lots next year ... haven't been put on oxygen yet am

waiting for my pulmonary doc to contact me.

Sandy, I read your long note with much interest, thanks! Boy you

have been through a lot with this haven't you? I am the same age

too but this, thank God, just began the last year for me. I have

never been diagnosed with asthma by the way although respiratory

illness do run rampant in my family, even my daughter has asthma!

Later,

Janet

>

> I am new to this group but have been diagnosed about seven years

ago.

> I am now 81. Since I have been asthmatic most of my life and had a

few

> pneumonias no one did a full test on me until after open heart

surgery

> I had a very severe pneumonia.

>

> I am getting along reasonably well with Advair, Spiriva and a

> Combivent inhaler as needed. For what it is worth, I had one

pneumonia

> in England and had no problem persuading American Airlines to put

> oxygen on board for my flight home, so travelling when you are on

> oxygen is possible.

>

> Happily even when I have a pneumonia my sat is around 95, so at

least

> sonething is working well.

>

> Thought that might be of interest to the group

>

> Tolly

>

[Guest guest]

That's interesting. Both my doctors recommend that I use Advair. Yes

I know it is like albuteral with steroid combined but I don't think my

doctors would put me on something that would cause infections!

Especially as they are trying to combat my flareups! The steroid

delivery goes directly to the lungs which is obviously much safer than

popping steroid pills that affects the body in its entirety. My

daughter is asthmatic and uses Advair too and has never ever had any

problems, especially with infections. In fact she is at a place now

where she feels that her asthma is well controlled for the first time

in her 22 year old life. Where on earth did you get that information?

Janet

>

> I have been told that ADVAIR is not a good idea as it contains

steroids and steroids can lead to infections.

>

> Any thoughts on this?

>

> Marsha/NYC

>

[Guest guest]

Janet,

A pulmonary specialist told me not to use it. He is well known and much

respected.

[Guest guest]

No, we live in Saint Louis, Missouri. I was doing research in England

for my PhD dissertation when I got ill. I was a late bloomer, getting

my degree at age 74.

Tolly

[Guest guest]

My doctor is opposed to prolonged use of prednisone (a steroid)

because it lowers your immune system. However inhaled steroids, such

as Advair which is flovent and serevent, are in his opinion a

necessary part of Bronc treatment.

Tolly

>

> I have been told that ADVAIR is not a good idea as it contains

steroids and steroids can lead to infections.

>

> Any thoughts on this?

>

> Marsha/NYC

>

[Guest guest]

Trolly,

Thank you for your input.

Marsha

[Guest guest]

have been told that ADVAIR is not a good idea as it contains steroids and steroids can lead to infections.

Advair is an inhaled steroid. I've never heard that steroids lead to infections. Who told you that Marsha? Advair helps open the bronchai and airways..it helps to minimize the inflammation so we can breathe better.

Because it's an inhaled steroid you need to rinse THORGOUGHLY and gargle well..because it can lead to thrush otherwise. It's happened to me

It's a price we pay for using another med to help us breathe.

We just do what we gotta and move on..enough said

Sandie

Never Look Down on SomeoneUnless You're Gonna Help Them Up

[Guest guest]

Yes, Tolly, my pulmonology doctor says exactly the same thing!

Inhaled steroids definitely are a necessary part of Bronc treatment!

Janet

> >

> > I have been told that ADVAIR is not a good idea as it contains

> steroids and steroids can lead to infections.

> >

> > Any thoughts on this?

> >

> > Marsha/NYC

> >

>

[Guest guest]

Good for you! Congratulations! There's hope for me yet. At age 59 I

am just three credits shy of getting two associate degrees, one in

science and another in arts. Took classes for fun as a home-maker.

But I did get a paralegal " degree " during that time too which helped

me get decent jobs in law offices! I am definitely going to get that

last class in, then I can strive for my Bachelors! Both my kids

graduated four years of college from Cal-Berkeley UC great education.

Son works at Oracle and daughter is applying now to medical school.

Have to work on ME next [hubby has a bachelors and a masters]. I

never went to college in England, just had a lowly secondary

education! Most of my education was garnered in the good ole USA!!

Sorry, I got off track...

Janet

>

> No, we live in Saint Louis, Missouri. I was doing research in

England

> for my PhD dissertation when I got ill. I was a late bloomer,

getting

> my degree at age 74.

>

> Tolly

>

[Guest guest]

My pulmonologist insists that I take Advair. Probably just a difference in docs.

" Most " pulm's I know sing the praises of Advair..this is the first I've ever heard who didnt..strange

Never Look Down on SomeoneUnless You're Gonna Help Them Up

[Guest guest]

My pulmonologist insists that I take Advair. Probably just a difference in docs.

Re: Re: Bronchiectasis and Age

Janet,A pulmonary specialist told me not to use it. He is well known and much respected.

[Guest guest]

Hi Tolly, My name is Jan and I also live in St. Louis (Fenton area). I'm sorry you have bronch but nice to know there are others in this group who are from St. Louis. Through the years the doctors gave me the impression I was the only one when I would ask if I could get in contact with other bronch sufferers. I was diagnosed in 1992 and I'm 56 years old now. I think it is great you are continuing your education at such a "young" age. Good luck! Jan in St. Louisanatolebrowde wrote: No, we live in Saint Louis, Missouri. I was doing research in England for my PhD dissertation when I got ill. I was a late bloomer, getting my degree at age 74.Tolly

[Guest guest]

Hi Marsha,

Did a medical doctor tell you that Advair was

unhelpful?

According to my doctor, Advair is actually a very good

medication especially for those who have an asthmatic

component. It has been helpful in treating my asthma.

In turn with my asthma under better control, this

helps my bronchiectasis.

Hugs:0)

Liz

--- marsha.granville@... wrote:

> I have been told that ADVAIR is not a good idea as

> it contains steroids and steroids can lead to

> infections.

>

> Any thoughts on this?

>

> Marsha/NYC

>

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__________________________________________________

[Guest guest]

Hi ,

Yes, that is why reading all my group friends' responses leaves me sort of

conflicted.