Guest guest Posted June 18, 2006 Report Posted June 18, 2006 Hello! I don't post often as I am more in learning mode than sharing mode. But I just wanted to mention that my daughter is having her detethering surgery next Friday. It is prophylactic rather than reactive, which I know has its pros and cons. Our neurosurgeon is very positive about this and I also learned when talking with him on Friday that the tether is at the filum terminale, which I have learned so much about on this list. That seems like the most common and straightforward (?) of the tethers so I am feeling somewhat relieved. It isn't possible to confirm from the MRI that that is the only area of tethering so anything is possible, but I am certainly hopeful. As always, interested in any insights or suggestions for post surgery. My daughter is only 7 so the more I am prepared for what it will be like the more effective I will be in helping her get through it. Donna Mom to , 7, OSD, tethered, scoliosis/kyphosis, short stature (IGF1 deficiency), split cord and syrinx Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.