Re: location of pain

[Guest guest]

I have the left side pain also. Weird.

R.

----------

> From: ALT11FAFU@...

> To: VulvarDisordersonelist

> Subject: Location of Pain

> Date: Wednesday, August 04, 1999 9:06 AM

>

> From: ALT11FAFU@...

>

> Sandi,

>

> My pain was always on and around the urethral opening. The pain was more

on

> the left side of the inside labia ....the left side of the

urethra...almost

> like there was an open sore there...but there wasn't. It was very

painful to

> the touch and burned like hell. I think I remember someone else posting

this

> " left side " pain before a while ago.....weird huh!

>

> Florence

>

> ---------------------------

[Guest guest]

I find that my hands and feet ache a lot. But I was also diagnosed

with acute carpal tunnel and arthritis in my hands - probably from

being on the computer so much (I do a lot of work on the computer). My

legs and hips hurt too, and it's really hard to take stairs, but I

take them most of the time in buildings instead of the elevator unless

I'm having a really bad day, and my bedroom is up some stairs too.

I guess my vicodin dulls the pain enough for me to get through the

work day, and then another again so I'm able to sleep. I don't think

it ever goes away completely, and I think all we can hope for are days

that the pain is dull enough for us to function.

I've actually gotten a lot better since now I'm on a more regulated

schedual. I'm hardly ever in bed after midnight, and I wake up around

7:30, take meds, and off to the barn to work. Some days are hard to

push myself through, but I've been doing ok. Of course, it isn't

winter yet, and I dread the coming of the snow and the cold!

I think my current schedual of taking meds is working out ok too...

-Morning

1 Adderall (to help keep my energy level up, and the fibrofog to a minimum)

1 Vicoden (to help with the pain and stiffness of morning)

2 Magnesium Malate

1 Zoloft (supposed to help with Fibro - I dont take it for depression)

Flonase

-Around 4:30pm when I return home from work, or around dinner time:

2 Magnesium Malate

1 Multi-Vitamin

2 Calcium w/Vitamin D

1 Allegra

Flonase

1 Vicoden

NAP TIME!!

-Bed Time:

1 Elavil 25mg (to help me sleep all night without waking up a million times)

1 Vicoden

If it's a really bad day, I'll take another Vicoden at lunch time, but

I try to avoid it as much as possible. I don't want to become

dependant on the lunch-time narcotic pill. Besides, after lunch is

when I ride the horses (most of the time) and I need to be able to

stay focused - I don't want to run the chance of getting into a

vicoden fog while I'm on the back of a horse! I work through the

morning pill, and sleep through the other two that I take.

The Elavil at 25mg gives me strange dreams, which I usually wake up

from, so I'll be dropping back down to 10mg. But I want to wait and

see what my new rhumy says in a couple days...

I think the Zoloft is helping. This was suggested by my neurologist at

the beginning of the month. He said that in studies, there was a big

improvment in fibro paitience that took Zoloft - but when I go see my

new pshychitrist oct. 12th I was to ask him about Cymbalta. I think my

mood has perked a little since the Zoloft, but I was never diagnosed

with depression before and never really felt depressed - so that's an

upside I suppose, not *having* to take anti-depression meds for

depression.

I haven't noticed the Magnesium Malate helping any, but I heard it

could take up to 3 months to notice any sort of difference.

A friend of mine said that a few herbal oils helped her. She suggested

valor, wintergreen, and lemongrass.

Keep your head up. Maybe you should find something to do that you can

get some exercise from that isn't so high impact? Like... riding a

bike? Or maybe yoga? Does your community offer community education

programs? Sometimes those can be fun - our communty offers stuff like

scrapbooking, pottery, areobics classes, and a bunch of other stuff!!

Maybe you could look into something like that? Or maybe your doctor

can prescribe water areobics? I really hope you can find something!

-

location of pain

To: Fibromyalgia support group <fibromyalgia_support_group >

Is it common to have soreness in your joints with fibro? I have

arthritis as well so its hard to tell if it is or isn't. Many years

ago I felt like I had the flu all the time. I even took my

temperature to see and it was always normal. Now, every ach and pain

I get I tend to attribute to fibro, whether it is or not. It is an

obession with me. My legs and feet burn, I have headaches, lower back

pain and hip pain. I'm always stuck in the house because I'm unable

to go for walks. I have never had one painfree day in years. Are meds

just to make the pain lessen or take it all away? Sorry if I sound

whiny. I'm starting to feel depressed and I'm on antidepressants too.

For fibro I use Flexeril and Naproxen. I take Effexor for the

depression and I think it is suppose to help fibro as well. I hope I

have better days ahead. Thanks for listening.

Norma

1. While it is wonderful to share our experiences with everyone on the

list as to what treatments do and don't work for us, pls always check

with your dr. Some treatments are dangerous when given along with

other meds as well as to certain health conditions or just dangerous

in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be afraid to ask for help. It is the first step to trying to

make that situation better.

Have a nice day everyone.

[Guest guest]

Unfortunately some of us with fibro also have

arthritis. There is a list of symptoms that was

kind enough to type up. You can find it in the files

part of this website and do a comparrision to what you

are having probs with.

I am so sorry you are in so much pain. The meds are

suppose to take them away enough for a person with

fibro to at least function, but as you can see from

your own experience, this is not alweays the case.

You should mention this to your doc at your next

appointment and see if a change of meds is in order.

Sometimes that is all it takes because sometimes

peoples bodies get use to the meds and they stop

working.

As for the dpression, that is normal. Any sane human

would be depressed after constantly being in pain and

than going thrrough what any of us do on a regular

basis.

I like to think that in a way this makes us stronger

because we actually put up with a lot more pain than

healthy people and we somehow manage to survive.

Albeit barely at times.

We all need to complain and vent and whine and that is

okay too. That is what this site is for. If we can't

whine to each other, who can we whine too?

I hope you feel better soon!

--- Closson's wrote:

> Is it common to have soreness in your joints with

> fibro?

=====

If I can't serve as a good example, then I guess I'll just have to serve as a

horrible warning.

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