Re: Doc reports

[Guest guest]

wow john and i thought i had a pretty vast understanding of what all

of my reports meant and said...boy have you got me beat by a long

shot!

a learning experience just reading your posts.

i do hope things go well at U of I for you. i hate to see anyone

decline but unfortunately that is the road we are all facing and all

any of us can do is hope for the best and prepare for the worst...as

ugly as that may sound. i do wish you all the luck in the world. God

bless.

jaime

>

> Hi Guys and Dolls Time for me to ramble on about my Doctor

appointments. Saw my RA Doc. who did a CPK blood test that was 154

just under the 170 flare point, so my Polymositis is still under

control and I can keep my Presidnisone at 20 mg Then off to my

GP. Three months ago my cholesterol was at 280 so he upped my

Niaspan from 500 mg to 1000 mg. Well the recheck showed the

cholesterol was still the same so he upped the Niaspan to 2000mg.

My fasting blood sugar was at 170 (damn the Presidnisone) so he

upped my Humulin N to 30 ml, but my blood pressure was 120 over 82

so those meds are working.

> Now on to Pul for the real news. My

Hypersensitivity Pneumonitis Blood Panel was all negative. Got the

report on my CT Scan and compared it to my scan in Aug 04. " The

extensive interstitial lung disease bilaterally more predominant in

the lung bases. This appears slightly more progressive than Aug

04. There is evidence of scattered areas of pleural thickening

throughout the lungs. Disease has moderately progressed since Aug

04. " I guess that is somewhat of a good report. My echocardiograph

of the heart has some different news " Mild enlargement of the left

atrium at 51mm. " That means that I am starting to have Col

Pulmonale. " Evidence of moderate pulmonary hypertension at 56

mmHg. "

> Normal systolic pressure in your lungs is about 14

millimeters of mercury (mm Hg) when you're at rest. Pulmonary

hypertension is defined as systolic lung blood pressure greater than

25 mm Hg at rest and 30 mm Hg during exercise.

> It sure sound like more than moderate at double the normal.

> Got results of my PFT test. The FVC is 63% same as Jan 06. The

TLC is 60% same as Jan. The DLCO is 41% down from 53% in Jan (not

good). At least I don't fall in the end stage category with only

one the Resting P

>

> End stage IPF subjects, defined by the presence of at least

two of the following:

> • TLC <45% of predicted

> • Single-breath carbon monoxide diffusing capacity of the lung

(DLCO), corrected for hemoglobin, <30% of predicted

> • Resting P(A-a) gradient >30 mm Hg

> • O2 desaturation <80% with exercise (walking on level ground at

own pace for 6 minutes)

>

> The Plum does not like the looks of all the reports so I am

going to U of Iowa in Iowa City to see some specialists on Jul

18th. P UIP 8/00

>

>

> ---------------------------------

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