Guest guest Posted August 16, 2006 Report Posted August 16, 2006 Diane, Sounds like an awesome idea. What are your thoughts? Leanne IL ipf 1/03dianequinlan@... wrote: - I'm so glad you liked the book. I have been looking all over for my copy....I was going to offer it to anyone who wanted to read it. Then, that person could send it to the next person....You know, Leanne....maybe we could start a library for this group. There are probably several books out there that would be good....then people wouldn't have to buy them, they could just borrow them for the cost of shipping. --Diane Quinlandianequinlancomcast (DOT) net-------------- Original message ----------------------From: denise randel <dnsrndl>> Joyce,> My doctor said no caffiene too and it felt like the ultimate last straw! > I was good for 2 weeks and then went back but STARTING TOMORROW I am going back > on my diet and will be good!!!! I am sorry about your doctor appt. I have > found that going to the doctors is always my worst time. It takes me days > afterwards to recooperate. Mainly because they always give me bad news, but > also because every time I go I feel like one more thing is taken away. I just > finished read "Coping with prednisone" and it was great. Explained lots of my > symptoms like bone pain and gave some really good salt free sugar free recipes. > I think Leanne was on to something and we need to start a cookbook full of > yummy things with no salt and no sugar. Take care - Sarcoid/PF 3/06> > > Joyce <joycedalton29aol> wrote: > I went back to the see the ENT doc yesturday. Another afternoon spent in a > waiting room. He went back up the nose and down the throat with that dreaded > scope and looked at my larynx again. This time he had a new machine with a tv > screen that I could watch. He showed me the lesions there...and inflamation > and swelling. He said biopsy was out of the question as per cardiologist. > Anesthesia would be risky because of lungs also. Sooo, he wanted to see if > there were changes that would further point to malignancy. He said nothing had > changed. It had not gotten worse, not better but not worse. I go back in two > more months for another scope. He still does not know what caused > it...bacterial, fungal, coughing, meds or reflux. Is leaning toward reflux.> He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh > Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo! > My favorite eating time. > So, I am still barely croaking, hungry and have a caffiene withdrawel > headache. I have felt like my hat is too tight all day. (I don't have a hat) > O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now!> Hugs, > Joyce PF 1997 > > > > > > > ---------------------------------> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.To: Breathe-Support Subject: Re: Voiceless Me....Doc visitDate: Tue, 15 Aug 2006 22:08:10 +0000 Joyce, My doctor said no caffiene too and it felt like the ultimate last straw! I was good for 2 weeks and then went back but STARTING TOMORROW I am going back on my diet and will be good!!!! I am sorry about your doctor appt. I have found that going to the doctors is always my worst time. It takes me days afterwards to recooperate. Mainly because they always give me bad news, but also because every time I go I feel like one more thing is taken away. I just finished read "Coping with prednisone" and it was great. Explained lots of my symptoms like bone pain and gave some really good salt free sugar free recipes. I think Leanne was on to something and we need to start a cookbook full of yummy things with no salt and no sugar. Take care - Sarcoid/PF 3/06Joyce <joycedalton29aol> wrote: I went back to the see the ENT doc yesturday. Another afternoon spent in a waiting room. He went back up the nose and down the throat with that dreaded scope and looked at my larynx again. This time he had a new machine with a tv screen that I could watch. He showed me the lesions there...and inflamation and swelling. He said biopsy was out of the question as per cardiologist. Anesthesia would be risky because of lungs also. Sooo, he wanted to see if there were changes that would further point to malignancy. He said nothing had changed. It had not gotten worse, not better but not worse. I go back in two more months for another scope. He still does not know what caused it...bacterial, fungal, coughing, meds or reflux. Is leaning toward reflux. He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo! My favorite eating time. So, I am still barely croaking, hungry and have a caffiene withdrawel headache. I have felt like my hat is too tight all day. (I don't have a hat) O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now! Hugs, Joyce PF 1997 Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away Get your email and more, right on the new Yahoo.com Quote
Guest guest Posted August 17, 2006 Report Posted August 17, 2006 Well, you could have one person who is the librarian, who physically has all the books...or different people who have books they wouldn't mind sharing....put a file up listing the books and a little bit about them.....then, if someone wants to borrow it, they would only pay postage....book rate is pretty cheap....when people are done reading it....they would mail it back to the librarian OR if someone else wants to read it, they would mail it to the next person on the list....the book could travel around to the group.... -- Diane Quinlan dianequinlan@... --------- Re: Voiceless Me....Doc visit > Date: Tue, 15 Aug 2006 22:08:10 +0000 > > Joyce, > My doctor said no caffiene too and it felt like the ultimate last straw! I > was good for 2 weeks and then went back but STARTING TOMORROW I am going back on > my diet and will be good!!!! I am sorry about your doctor appt. I have found > that going to the doctors is always my worst time. It takes me days afterwards > to recooperate. Mainly because they always give me bad news, but also because > every time I go I feel like one more thing is taken away. I just finished read > " Coping with prednisone " and it was great. Explained lots of my symptoms like > bone pain and gave some really good salt free sugar free recipes. I think > Leanne was on to something and we need to start a cookbook full of yummy things > with no salt and no sugar. Take care - Sarcoid/PF 3/06 > > > Joyce wrote: > I went back to the see the ENT doc yesturday. Another afternoon spent in a > waiting room. He went back up the nose and down the throat with that dreaded > scope and looked at my larynx again. This time he had a new machine with a tv > screen that I could watch. He showed me the lesions there...and inflamation and > swelling. He said biopsy was out of the question as per cardiologist. > Anesthesia would be risky because of lungs also. Sooo, he wanted to see if > there were changes that would further point to malignancy. He said nothing had > changed. It had not gotten worse, not better but not worse. I go back in two > more months for another scope. He still does not know what caused > it...bacterial, fungal, coughing, meds or reflux. Is leaning toward reflux. > He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh > Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo! > My favorite eating time. > So, I am still barely croaking, hungry and have a caffiene withdrawel > headache. I have felt like my hat is too tight all day. (I don't have a hat) > O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now! > Hugs, > Joyce PF 1997 > > > > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates > starting at 1¢/min. > > > > > Leanne Storch-Diagnosed with IPF 1/03 > Executive Assistant & Patient Advocate > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60622 > P > F > > It takes your breath away > > > --------------------------------- Get your email and more, right on the new Yahoo.com Diane, Sounds like an awesome idea. What are your thoughts? Leanne IL ipf 1/03dianequinlancomcast (DOT) net wrote: - I'm so glad you liked the book. I have been looking all over for my copy....I was going to offer it to anyone who wanted to read it. Then, that person could send it to the next person....You know, Leanne....maybe we could start a library for this group. There are probably several books out there that would be good....then people wouldn't have to buy them, they could just borrow them for the cost of shipping. --Diane Quinlandianequinlancomcast (DOT) net-------------- Original message ----------------------From: denise randel <dnsrndl>> Joyce,> My doctor said no caffiene too and it felt like the ultimate last straw! > I was good for 2 weeks and then went back but STARTING TOMORROW I am going back > on my diet and will be good!!!! I am sorry about your doctor appt. I have > found that going to the doctors is always my worst time. It takes me days > afterwards to recooperate. Mainly because they always give me bad news, but > also because every time I go I feel like one more thing is taken away. I just > finished read "Coping with prednisone" and it was great. Explained lots of my > symptoms like bone pain and gave some really good salt free sugar free recipes. > I think Leanne was on to something and we need to start a cookbook full of > yummy things with no salt and no sugar. Take care - Sarcoid/PF 3/06> > > Joyce <joycedalton29aol> wrote: > I went back to the see the ENT doc yesturday. Another afternoon spent in a > waiting room. He went back up the nose and down the throat with that dreaded > scope and looked at my larynx again. This time he had a new machine with a tv > screen that I could watch. He showed me the lesions there...and inflamation > and swelling. He said biopsy was out of the question as per cardiologist. > Anesthesia would be risky because of lungs also. Sooo, he wanted to see if > there were changes that would further point to malignancy. He said nothing had > changed. It had not gotten worse, not better but not worse. I go back in two > more months for another scope. He still does not know what caused > it...bacterial, fungal, coughing, meds or reflux. Is leaning toward reflux.> He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh > Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo! > My favorite eating time. > So, I am still barely croaking, hungry and have a caffiene withdrawel > headache. I have felt like my hat is too tight all day. (I don't have a hat) > O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now!> Hugs, > Joyce PF 1997 > > > > > > > ---------------------------------> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.From: denise randel <dnsrndl>To: Breathe-Support Subject: Re: Voiceless Me....Doc visitDate: Tue, 15 Aug 2006 22:08:10 +0000 Joyce, My doctor said no caffiene too and it felt like the ultimate last straw! I was good for 2 weeks and then went back but STARTING TOMORROW I am going back on my diet and will be good!!!! I am sorry about your doctor appt. I have found that going to the doctors is always my worst time. It takes me days afterwards to recooperate. Mainly because they always give me bad news, but also because every time I go I feel like one more thing is taken away. I just finished read "Coping with prednisone" and it was great. Explained lots of my symptoms like bone pain and gave some really good salt free sugar free recipes. I think Leanne was on to something and we need to start a cookbook full of yummy things with no salt and no sugar. Take care - Sarcoid/PF 3/06Joyce <joycedalton29aol> wrote: I went back to the see the ENT doc yesturday. Another afternoon spent in a waiting room. He went back up the nose and down the throat with that dreaded scope and looked at my larynx again. This time he had a new machine with a tv screen that I could watch. He showed me the lesions there...and inflamation and swelling. He said biopsy was out of the question as per cardiologist. Anesthesia would be risky because of lungs also. Sooo, he wanted to see if there were changes that would further point to malignancy. He said nothing had changed. It had not gotten worse, not better but not worse. I go back in two more months for another scope. He still does not know what caused it...bacterial, fungal, coughing, meds or reflux. Is leaning toward reflux. He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo! My favorite eating time. So, I am still barely croaking, hungry and have a caffiene withdrawel headache. I have felt like my hat is too tight all day. (I don't have a hat) O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now! Hugs, Joyce PF 1997 Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away Get your email and more, right on the new Yahoo.com Quote
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