Re: Re: Lipomeningocele, Lipomyelomeningocele and plain old lipoma

[Guest guest]

Perfect sense! Thank you, Abby. I do have a vertebral

defect and the meninges bulges out. I have always

had, in addition to the lipoma, this lovely mushy sac

on my butt that made me horribly self-concious as a

child.

So, the difference is mine includes my spinal cord.

That makes sense. My spinal cord grew straight through

the lipoma and got stuck in it.

--- subub_98 wrote:

> My daughter is supposed to have what is called as an

> intradural

> lipoma, and EVERY ns I have talked to has said it

> was NOT

> lipomyelomeningocele or lipomeningocele - though I

> failed to see the

> difference - it is lipoma attached to cord. So, I

> tried to find the

> difference, and this is what I understood.

>

> I think the meaning is : lipo + meningo + myelo +

> celes

> lipo - lipoma

> meningo - meninges - system of membranes that

> envelop the central

> nervous system. The meninges consist of three

> layers, the dura mater,

> the arachnoid mater, and the pia mater.

> myelo: marrow (or bone marrow). The spinal cord

> celes: cyst, sac

> myelocele: herniation and protrusion of substance of

> spinal cord

> through bony defect

>

> Lipomeningocele and lipomyelomeningocele are closed

> spina bifida with

> overgrowth of fatty tissue involving the meninges

> alone or including

> the spinal cord. If it involves meninges alone it is

> called

> lipomeningocele. If it involves the spinal cord as

> well, it is called

> lipomyelomeningocele.

>

> So, if there is a lipoma that envelopes the spinal

> cord and the

> material of central nervous system membranes to form

> a sac or cyst of

> any kind, that would be lipomyelomeningocele.

>

> In both lipomyelomeningocele and lipomeningocele,

> the fatty elements

> infiltrate into the meninges and/or spinal cord.

> Therefore,

> Lipo(myelo)meningocele always involves a vertebral

> defect, similar to

> the one found in myelomeningocele. There would have

> to be a bony

> defect in the spine as well as dura defect in the

> cord itself.

>

> In my daughter's case there is a extradural lipoma

> (very small visible

> fat on her back), and intradural lipoma. However,

> her vertebrae is

> perfectly normal, as well as her dura. There does

> not seem to be any

> connection between the fat inside and fat outside as

> is normally seen,

> which makes her case very very unusual. But some

> twist, what started

> as a lipomyelomeningocele, suddenly decided to not

> continue, and let

> the bones and dura form normally.

>

> I hope this makes sense.

>

> The following is a great article for people who want

> to read more on

> the subject:

> http://www.medscape.com/viewarticle/405673_4

>

> - Abby.

>

__________________________________________________

[Guest guest]

I have Myelomenigocele

Before my last Detethering, it was noted that I had

a small Lipoma...........it could not at all be recongnized

by the naked Eye. It wasn't in the area of my Tether.

And I am not completely certain if they removed

during my last Detethering. I do not have Lipomyelomeningocele or

Lipomeningocele.

The fatty Tumor itself is called a Lipoma.

And what you said did make sense.

Me

Nebraska, USA

mymocha@...

> My daughter is supposed to have what is called as an intradural

> lipoma, and EVERY ns I have talked to has said it was NOT

> lipomyelomeningocele or lipomeningocele - though I failed to see the

> difference - it is lipoma attached to cord.