Re: Those with Lipomyelomeningocele or Lipomeningocele

[Guest guest]

To my knowledge the Lipoma associated with Lipomyelomeningocele or

Lipomeningocele is

initially the Tether. So when you have that removed,

or as much of it as possible, you are in turn being

Detethered.

For those of you with Lipomyelomeningocele or

Lipomeningocele, correct me if I am wrong.

I hope that explains it for you.

Me

Nebraska, USA

mymocha@...

so you had that and tethered cord, right? Did they do the rescection of the

lipoma and detether at the same time?

[Guest guest]

From my understanding...at least in my daughter's case...her spinal cord was

tethered to the lipoma itself. It was detethered during the process of

rescecting (sp?) the lipoma.

Elissa- mom to Jr. (4), Jennah (2), and Jesmarie (4 months-

lipomyelomeningocele, tethered cord, and syrinx- surgery at 3 months)

rande wrote:

To my knowledge the Lipoma associated with Lipomyelomeningocele or

Lipomeningocele is

initially the Tether. So when you have that removed,

or as much of it as possible, you are in turn being

Detethered.

For those of you with Lipomyelomeningocele or

Lipomeningocele, correct me if I am wrong.

I hope that explains it for you.

Me

Nebraska, USA

mymocha@...

so you had that and tethered cord, right? Did they do the rescection of the

lipoma and detether at the same time?

Not Medical Advice. We Are Not Doctors.

Need help with the list? Email kathy@...,michelle@...,

rick@...

[Guest guest]

I agree. That's what I was trying to say.

Me

Nebraska, USA

mymocha@...

> From my understanding...at least in my daughter's case...her spinal cord

> was tethered to the lipoma itself. It was detethered during the process of

> rescecting (sp?) the lipoma.

>

> To my knowledge the Lipoma associated with Lipomyelomeningocele or

> Lipomeningocele is

> initially the Tether. So when you have that removed,

> or as much of it as possible, you are in turn being

> Detethered.

>

> For those of you with Lipomyelomeningocele or

> Lipomeningocele, correct me if I am wrong.

>

[Guest guest]

This is my understanding of the lipoma resection, too.

By removing as much as they could, they detethered

the cord. In my case, he said my spinal cord moved up

pretty well with the second surgery. I have no idea

about the first.

--- Elissa Mercado wrote:

> From my understanding...at least in my daughter's

> case...her spinal cord was tethered to the lipoma

> itself. It was detethered during the process of

> rescecting (sp?) the lipoma.

>

> Elissa- mom to Jr. (4), Jennah (2), and

> Jesmarie (4 months- lipomyelomeningocele, tethered

> cord, and syrinx- surgery at 3 months)

>

> rande wrote:

> To my knowledge the Lipoma associated with

> Lipomyelomeningocele or

> Lipomeningocele is

> initially the Tether. So when you have that removed,

> or as much of it as possible, you are in turn being

> Detethered.

>

> For those of you with Lipomyelomeningocele or

> Lipomeningocele, correct me if I am wrong.

>

> I hope that explains it for you.

>

>

> Me

> Nebraska, USA

> mymocha@...

>

> so you had that and tethered cord, right? Did they

> do the rescection of the

> lipoma and detether at the same time?

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

> kathy@...,michelle@...,

> rick@...

>

>

>

>