Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 sundra thanks for the welcome . im not sure where to start right now...im actually having trouble getting myself off the darn couch at the moment lol...and now i have to contemplate finding a doctor? sounds like alot of work! lee > Welcome to the group Lee. I'm sorry you are experiencing such pain, but > glad that you were able to find the group. This is a very caring, > informative group. We laugh together, share information, whine, and vent. > It a a big family and we are glad that you have become a part of it. I hope > that you are able to locate a rheumy who manages fibro patients and can get > you on a regimen that will offer you some relief. > I have a 13 year old daughter and a 16 soon to be 17 year old son. I have > been married for 21 years. I will be 42 on the 2nd of Oct so I guess that > makes us both old huh? lol :-P > healing hugs, > Sundra > > > <I'm new as of yesterday. My name is Lee and after a few tests over > the last few weeks my regular doctor told me she thought I should > see a rheumatologist... that i " might have fibromyalgia " > uh...ya. i think i said that to her when i walked in the door back > before the tests but....whatever. > > At the moment, right now, sitting on my couch, I am cranky and > tired... and sore. I have a 13 year old son. Just had my 20 year > anniversary for a 20 year relationship (could I be that old? > > lee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 I'm still looking for you Lee. Love to You and Yours.......Alenna Site Moderator for: fibromyalgia_support_group Site Moderator and Co/Owner for: ncm_wisdom Emails: alenna@... and alennam@... AIM ID: brucenorton2000 Re: Re: just got my intake questionaire...jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Lee, I'm so happy to hear that you have come up with a pain scale that works for you! I'm just sorry that it turned out to be such an emotional process for you. I hope it helped you to let go of the feeling that talking about, and rating your pain equals whining though. It's hard, I know, but being able to talk about it honestly really helps your doctor, and you. My " 10 " is a toss-up between childbirth (which I did both times naturally), and the first time I had to move my shoulder after having surgery. I can't believe you put a tattoo at " 3 " !! I'd have that at about 8! Bravo to you Lee! You made a big stride forward! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Lee, It would also probably help for you to keep a pain journal. You are never going to get the proper care until you are willing to express it completely. They can't see your pain, you have to explain it to them and tell them where it is or they can not treat it. My GP told me that Fibro is one of the toughest illnesses to treat because they have to rely on the patient to tell them what to treat, when, and what works. Too many patients are used to being told what they have, what it will do, and what to take to get rid of it. It is important with FMS that the patient work with the Doctor because there is no test to point the doctors in the right direction, only the patients can do that. Remember that! Your treatment success depends on you and your ability to fully explain what you are living on a daily basis. Both my GP and my SS lawyer told me that being polite is not going to get me help. They both told me that I need to stop answering "how are you?" with 'fine' and start really telling them how I am. This is the time to complain, whine, and focus on the worst day scenarios. Love to You and Yours.......Alenna Site Moderator for: fibromyalgia_support_group Site Moderator and Co/Owner for: ncm_wisdom Emails: alenna@... and alennam@... AIM ID: brucenorton2000 T Lee R and Jeri J wrote: im not good at describing my pain, im not good at talking about it and i stink at focusing on it at all. and i am very uncomfortable cause...well....with some doctors and people once you say you are bipolar....thats all she wrote. Quote Link to comment Share on other sites More sharing options...
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