arachnoiditis - davidbrian & others - My apologies, please no apologies

[Guest guest]

No No No, this is mostly my fault. My writing comes out quite

frank...and sometimes I think can be confused with flaming or

argueing. I apologize for that and think the title of this thread

is directed to me.

Part of my problem is how I use this forum. A lot of people are

here for support and a lot of us are here for information. Also a

lot are here for both.

I am here primarily for information on TCS to find exactly what's

out there and to get the most precise information. I love it when

people tell me that my info is off or missing the mark somewhere

because that leads me to having more precise questions to ask

doctors.

I don't mean to step on anyones toes in the process it is certainly

not my intention.

Let me again state that I BY NO MEANS WANT ANYONE TO MAKE THE

DECISIONS I MADE FOR SURGERY...OR TO MISCONSTRUE ANY INFO I POST AS

MEDICAL ADVICE...OR TO HAVE THE INFO GUIDE YOU IN ANY WAY!!!

I would only hope that the information can prepare you and me to ask

the right questions when we see our surgeons, therapists, and

doctors...it is their job to cover our medical care, but it is also

our job to be informed patients.

Kathy...this thread wasn't directed against you...or if it partly

was I take absolutely no offense to what you said whatsoever. When

it comes to me I would much rather have a discourse over information

and facts in the common forum rather than my or other peoples info

boxes cause it leads to more understanding. That again is up to the

moderators and I respect their opinions.

But, nothing you said to me was a personal attack at all.

Additionally, since you were the one diagnosed with arach. your

opinion on the matter is one, which I am highly interested

in...since I just have TCS with the potential of getting arach.

Still if it is a rule to have such discourses toned down in the

general forum...please post to my email. PLEASE PLEASE KATHY...not

your fault I apologize.

> > Hi

> >

> > It's me...the sometimes absent co-owner, moderator. Since I

> started working

> > a month ago I have not been as good as I should have been about

> reading the

> > posts coming through.

> >

> > However, I did read a few about arachnoiditis....and to be

frank,

> some of

> > the tone was slightly jolting. We are not a medical group,

> therefore,

> > unless someone can prove to all beyond a reasonable doubt that

> they are a

> > doctor, no one, is to give out advise that sounds anything like

> medical

> > advice.

> >

> > Second...everyone is entitled to their own opinion and having

been

> on this

> > list for long enough and others too, to know, that we all come

from

> > different places when we learn about different diseases and we

all

> learn

> > these things from different sites, doctors, etc. So, we all

need

> to be

> > respectful of what others know, or think they know, or however

you

> want to

> > put it.

> >

> > Please remember, this note is not to slap anyone's hand, but to

> remind

> > everyone, that in order for every member to feel comfortable to

> write in, we

> > need to keep our tone in our messages nice, pleasant, ect. and

> especically

> > respectful of other's opinions and where they might have learned

> their

> > information from.

> >

> > Thanks,

> >

> > Kathy

[Guest guest]

Hi

I too invite debate over medical papers and anything that any of us have

learned through our course of learning about our disease(s), but there's a

way to do it without sounding like you're attacking someone and there's a

way to do it where a person can feel attacked.

NOTHING of that sort happened (the latter) that I know of. I felt that

intervention was necessary because I thought that's where it was headed and

as you said, the tone of your posts can sometimes sound very sterile (my

word, not yours.)

But, that said, I am very, very glad you wrote in and explained yourself and

how you write and what your intentions were. That alone helps immensely.

And, as I said, I've been remiss in my duties and have not been reading all

posts coming through and read that thread in the middle and had no idea

where it started and wanted to soften it before it headed to deep waters, so

to speak.

Again, really glad you wrote in and explained how you write, what you're

looking for etc. to help clear the air and straighten out your intentions.

Mine I believe are straight too now and we shall now live happily ever after

;-)

BUT....:-) I don't believe I've ever said I had arachnoiditis. I've been

diagnosed with it once, about three/four years ago, but then again, at one

point or another, I've been diagnosed with everything that " can " go along

with having a tethered spinal cord (or lipo in my case.) Case in point,

even though I'm working, I'm still considered disabled by the Gods that give

me disability. Their new diagnosis for me is (per the paper just received

in the mail on Saturday): (Drum roll please), tethered spinal cord

syndrome, post multiple untetherings, with Chiari malformation and

neuropathic agents along with lipomatomous meningocele. How's that for a

mouth full!?

Ugh...

Kathy (And please, don't let me interupt the conversation anymore.)

Re: arachnoiditis - davidbrian & others - My apologies,

please no apologies

>

>

> No No No, this is mostly my fault. My writing comes out quite

> frank...and sometimes I think can be confused with flaming or

> argueing. I apologize for that and think the title of this thread

> is directed to me.

>

> Part of my problem is how I use this forum. A lot of people are

> here for support and a lot of us are here for information. Also a

> lot are here for both.

>

> I am here primarily for information on TCS to find exactly what's

> out there and to get the most precise information. I love it when

> people tell me that my info is off or missing the mark somewhere

> because that leads me to having more precise questions to ask

> doctors.

>

> I don't mean to step on anyones toes in the process it is certainly

> not my intention.

>

> Let me again state that I BY NO MEANS WANT ANYONE TO MAKE THE

> DECISIONS I MADE FOR SURGERY...OR TO MISCONSTRUE ANY INFO I POST AS

> MEDICAL ADVICE...OR TO HAVE THE INFO GUIDE YOU IN ANY WAY!!!

>

> I would only hope that the information can prepare you and me to ask

> the right questions when we see our surgeons, therapists, and

> doctors...it is their job to cover our medical care, but it is also

> our job to be informed patients.

>

> Kathy...this thread wasn't directed against you...or if it partly

> was I take absolutely no offense to what you said whatsoever. When

> it comes to me I would much rather have a discourse over information

> and facts in the common forum rather than my or other peoples info

> boxes cause it leads to more understanding. That again is up to the

> moderators and I respect their opinions.

>

> But, nothing you said to me was a personal attack at all.

> Additionally, since you were the one diagnosed with arach. your

> opinion on the matter is one, which I am highly interested

> in...since I just have TCS with the potential of getting arach.

>

> Still if it is a rule to have such discourses toned down in the

> general forum...please post to my email. PLEASE PLEASE KATHY...not

> your fault I apologize.

>

>

> > > Hi

> > >

> > > It's me...the sometimes absent co-owner, moderator. Since I

> > started working

> > > a month ago I have not been as good as I should have been about

> > reading the

> > > posts coming through.

> > >

> > > However, I did read a few about arachnoiditis....and to be

> frank,

> > some of

> > > the tone was slightly jolting. We are not a medical group,

> > therefore,

> > > unless someone can prove to all beyond a reasonable doubt that

> > they are a

> > > doctor, no one, is to give out advise that sounds anything like

> > medical

> > > advice.

> > >

> > > Second...everyone is entitled to their own opinion and having

> been

> > on this

> > > list for long enough and others too, to know, that we all come

> from

> > > different places when we learn about different diseases and we

> all

> > learn

> > > these things from different sites, doctors, etc. So, we all

> need

> > to be

> > > respectful of what others know, or think they know, or however

> you

> > want to

> > > put it.

> > >

> > > Please remember, this note is not to slap anyone's hand, but to

> > remind

> > > everyone, that in order for every member to feel comfortable to

> > write in, we

> > > need to keep our tone in our messages nice, pleasant, ect. and

> > especically

> > > respectful of other's opinions and where they might have learned

> > their

> > > information from.

> > >

> > > Thanks,

> > >

> > > Kathy

>

>

>

>

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

kathy@...,michelle@..., rick@...

>

[Guest guest]

I really appreciate the group that you have built, and I truly do

apologize for coming of so blunt. Please to not feel guilty at all

with your post...you are a great moderator, and I am happy to be

part of this community.

> > > > Hi

> > > >

> > > > It's me...the sometimes absent co-owner, moderator. Since I

> > > started working

> > > > a month ago I have not been as good as I should have been

about

> > > reading the

> > > > posts coming through.

> > > >

> > > > However, I did read a few about arachnoiditis....and to be

> > frank,

> > > some of

> > > > the tone was slightly jolting. We are not a medical group,

> > > therefore,

> > > > unless someone can prove to all beyond a reasonable doubt

that

> > > they are a

> > > > doctor, no one, is to give out advise that sounds anything

like

> > > medical

> > > > advice.

> > > >

> > > > Second...everyone is entitled to their own opinion and having

> > been

> > > on this

> > > > list for long enough and others too, to know, that we all

come

> > from

> > > > different places when we learn about different diseases and

we

> > all

> > > learn

> > > > these things from different sites, doctors, etc. So, we all

> > need

> > > to be

> > > > respectful of what others know, or think they know, or

however

> > you

> > > want to

> > > > put it.

> > > >

> > > > Please remember, this note is not to slap anyone's hand, but

to

> > > remind

> > > > everyone, that in order for every member to feel comfortable

to

> > > write in, we

> > > > need to keep our tone in our messages nice, pleasant, ect.

and

> > > especically

> > > > respectful of other's opinions and where they might have

learned

> > > their

> > > > information from.

> > > >

> > > > Thanks,

> > > >

> > > > Kathy

> >

> >

> >

> >

> >

> >

> > Not Medical Advice. We Are Not Doctors.

> > Need help with the list? Email

> kathy@t...,michelle@t..., rick@t...

> >