Guest guest Posted August 9, 1999 Report Share Posted August 9, 1999 Erwin, When I started taking Actigall my LFT's were as follows: Alk. Phos. = 555, AST = 96, ALT = 119 and GGT = 1350. About 1 month later they were as follows: Alk. Phos. = 206, AST = 23, ALT = 26 and GGT = 266 WOW! I thought that was amazing. I had to stop Actigall after about 10 months because of severe nausea. Last LFT's after no Actigall for about 2 years were: Alk. Phos. = 475, AST = 66, ALT = 52 and GGT = 904. So apparently it helped but I can't stand the nausea. Hope you have good numbers when you get your blood test! (I was on 900 mg./day) Take Care, Dianne A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 Erwin - Not to rain on the Actigall parade, but don't be disappointed if your LFT values don't improve. Mine have fluctuated all over the place, with only my bilirubin counts usually in the normal range. The last time I had all normal values I wasn't taking Actigall at all. All of the values skyrocket during my cholangitis bouts. I've been on actigall for nearly 18 months and my last values, which were better than I've seen in a while were: SGOT: 36 (normal) SGPT: 47 Alk Phos: 312 GGT: 377 Bili: .9 (normal) But during my infection 1 week prior: SGOT: 99 SGPT: 154 Alk phos: 486 GGT: 883 Bil: 3.5 Russ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 Russ, Thanks for discussing your experience. I take it that you don't feel Actigall has improved your other symptoms -- for example, itching? Also, I am too lazy to search the website at the moment, so could you tell me about your Actigall dosage? Thanks! Erwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 Dear H, You had mentioned in an email a little while back that asacol has apparently been working well for your UC (Crohn's?). Have the Mayo folks suggested that asacol may help with your PSC? I ask because my new doctor is pushing me to consider going on asacol for my UC, and I am somewhat hesitant in the absence of such a connection between the two diseases. Also, I am right to infer that your tests indicate improvement in the ducts since going on the higher dose of Actigall? Thanks! Erwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 YOU ARE WELCOME!!!!! Quote Link to comment Share on other sites More sharing options...
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