Re: Help

[Guest guest]

>One List's new format...ever since they joined with egroups...doesn't let

>you do much! I don't like it at all! I can't get on or off lists! Toni>

***OneList is still having some problems since the merger, and everything

should work as before pretty soon.

Barb

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[Guest guest]

On Thursday, March 23, 2000 at 9:10 AM or thereabouts, Mona wrote the

following about help:

Mona> The doctor dictated underwent an s/l MICU I 131 metastatic

Mona> survey. Has anyone heard of this. I couldn't tell if she was

Mona> saying MICU or NICU, but couldn't find anything on either of

Mona> them that would go with the context.

Well, I've heard of " an I-131 metastatic survey " or a " metastatic

survey with I-131 " [take your pick], but I have a suspicion that that

the MICU/NICU may refer to the patient's location?? (Medical ICU or

Newborn ICU, assuming the former to be more likely) ... I've not heard

of anything similar combined with the I-131 phrasing ...

Chuck

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Chuck Mattsen mattsen@...

http://www.users.uswest.net/~mattsen

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Random Thought/Quote for this Message:

Statistics are no substitute for judgment.

[Guest guest]

On Tuesday, March 28, 2000 at 7:11 AM or thereabouts,

Shellwipp@... wrote the following about Help:

Shellwipp> I have a couple of questions. On observation the doc

Shellwipp> dictates: Heart regular rhythm. *Clade 1 systolic ejection

Shellwipp> murmur with split S2*.

Are you old enough to remember Maxwell Smart in " Get Smart, " with his

Kaos nemesis, The Claw (alias, " the Kraw " )? I think this is:

Grade 1 systolic ejection murmur, with a split S2... " (with the 2

subscripted, of course).

Shellwipp> This pt. is in for recheck on hematocrit. Doc ordered

Shellwipp> hematocrit, CBC, and *ritic/ratic/rytic*.

They're slanging " retic " at you, which is a reticulocyte count.

Chuck

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Chuck Mattsen mattsen@...

http://www.users.uswest.net/~mattsen

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Random Thought/Quote for this Message:

Any given program, when running correctly, is obsolete.

[Guest guest]

I think the first one peripheral

B

[Guest guest]

Several Mesalt dressings are listed in Stedman's Medical & Surgical Equipment

words book. MG

[Guest guest]

At 09:55 AM 4/24/00 EDT, tammybelk@... wrote:

>Patient complains of low back pain and hip pain medication she is on s/l

>Neurico?

Perhaps Norco (a narcotic analgesic - hydrocodone bitartrate and

acetaminophen)

Judy

[Guest guest]

Could this be fluctuating or fluctuant?

Just a thought...

Suzanne.

Help

> I have been sick the past couple of days, so my brain

> and ears are not clicking today...I am sure this is an

> easy one, but just not getting it.

>

> There is a large 4 x 6 in. S/L formogating mass of the

> left breast.

>

> Thank you

>

>

> __________________________________________________

>

[Guest guest]

sarah goldstein wrote :

< sad story snipped - though too familiar to some ! >

,

You are on a beta blocker (metropolol). However, you also say your

symptoms are worse at night, and you have chronic vertigo. Vertigo is a

sign of an autonomic nervous system imbalance. Although you also get

fast rate under stress, and the beta blocker appears to help (maybe just

with the high rate problem once you are in AF), these other two

mentioned are still a couple of signs you may have a vagal component to

your AF. Check out my web site and see what you think. If you have

vagal AF at all, beta blockers make it worse in the way of being more

likely to go into AF.

Hope you can find some way forward.

Best of health to all,

Vicky

1954 model, North London, UK

http://www.vagalafibportal.fsnet.co.uk/

" Science may be described as the art of systematic

over-simplification " - Karl Popper

" All truth goes through three stages: first it is ridiculed, then

it is violently opposed, finally it is accepted as self evident. "

- Schopenhauer

" There is a moment in the life of any problem when it is large

enough to see, but small enough to solve " - anon

" Wisdom is the quality that keeps you from getting into

situations where we need it " - Doug Larsen

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[Guest guest]

Rick, I am recently diasgnosed with PF and I am 35. I am a newlywed

and is my greatest support and love. He knows what all this

means and loves me all the same. Don't give up on life. Enjoy it and

you both love each other and she is willing to walk through it with

you GO FOR IT!!! What special memories you'll make. Who knows you may

have many years ahead of you and be so depressed that you did not

marry when you did. If you are a praying person, pray for guidance

and strength. If you are not a praying person, then start. LOL

You will get help and support here and unfortunately we all suffer

from the same monster as they call it.

Keep in touch and do your research. There are many diff medicines to

control what you have and therapies that aid in mobility. so if it;s

not so severe yet, take on life and ride it as best as you can.

>

> Hi All,

>

> My Name is Rick and I have been diagnosed this month(Sep 06) with

UIP

> (Usual Intersitial Pneumonia) which is a PF.

> I am 27year old. I had symptoms from last 9 months.

> I had all kind if test done like blood test, lung function test,ct

> scan, lung biopsy.

>

> Its very hard for me to know that I have this disease as I am just

> 27 and started my life.I was going to get married this year but

know

> I am thinking if I should get married or not.

>

> Can some one tell me:

>

> 1. how long a person lives after being diagnosed with PF.

> 2. Are trials in Medical research centers helpful.

> 3. Anyone of you are taking trials??

> 4. I am in California, do any one knows any good doctor in

> California, oregon or Washington.

>

> I came to know last week that I have PF and since that day every

day

> is like a hell for me.

> Can some please help me!!

>

> Thanks

> Rick

>

[Guest guest]

Rick,

You may be our youngest member. So glad you came here. So very sorry that you are and have been so sick. You are grieving for your lost health and forced to look at your mortality very early in your life. It is very difficult to be told that you are faced with a chronic and potentially terminal illness. Especially at your young age. I understand your grief. Give yourself the time to heal emotionally. I hope that you have faith because when you turn this thing over to God who loves you so very much, you will begin to look forward to each day as a gift from him.

We have several members in your part of the country. They will be here to answer your quieries about medical care in CA. Most everyone has been to a teaching hospital for evaluation and consult. It is a good idea to do that.

I would advise you to get copies of all test results. Ask your hospital and doctor's office to make copies for you. Take charge and manage your care. Search for answers online. There is a lot of good info right here. Petterson has posted many links to information on PF and oxygen therapy. We learn a lot from each other.

Feel free to ask anything, unload any grief or frustration and be prepared to listen in return. We need each other. We understand. We get it.

Marry that girl!

Hugs, Joyce PF 1997

>> Hi All,> > My Name is Rick and I have been diagnosed this month(Sep 06) with UIP> (Usual Intersitial Pneumonia) which is a PF.> I am 27year old. I had symptoms from last 9 months.> I had all kind if test done like blood test, lung function test,ct > scan, lung biopsy.> > Its very hard for me to know that I have this disease as I am just > 27 and started my life.I was going to get married this year but know > I am thinking if I should get married or not.> > Can some one tell me:> > 1. how long a person lives after being diagnosed with PF.> 2. Are trials in Medical research centers helpful.> 3. Anyone of you are taking trials??> 4. I am in California, do any one knows any good doctor in > California, oregon or Washington.> > I came to know last week that I have PF and since that day every day > is like a hell for me. > Can some please help me!!> > Thanks> Rick>

[Guest guest]

Hi Rick, My name is and I have been diagnosed with everything from uip ipf cancer etc. As you can see, I don't have any on them. After going to Vanderbilt in Nashville, TN my final dx was hypersensttivity pneumonitis. Even tho there are 2 forms of hp, one chronic and the other acute, they can be treated with good results. Please have a hyprensitivity blood panel done. HP is caused by allergic reactions that will cause fibrosis.May God give you comfort during this time of searching. HP 6/06helpforpf wrote: Hi All,My Name is Rick and I have been diagnosed this month(Sep 06) with UIP(Usual Intersitial Pneumonia) which is a PF.I am 27year old. I had symptoms from last 9 months.I had all kind if test done like blood test, lung function test,ct scan, lung biopsy.Its very hard for me to know that I have this disease as I am just 27 and started my life.I was going to get married this year but know I am thinking if I should get married or not.Can some one tell me:1. how long a person lives after being diagnosed with PF.2. Are trials in Medical research centers helpful.3. Anyone of you are taking trials??4. I am in California, do any one knows any good doctor in California, oregon or Washington.I came to know last week that I have PF and since that day every day is like a hell for me. Can some please help

me!!ThanksRick

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[Guest guest]

Rick, I just got back from vacation and read your email. What part of CA do you live? I have a good doctor in San Diego- are you close by? helpforpf wrote: Hi All, My Name is Rick and I have been diagnosed this month(Sep 06) with UIP (Usual Intersitial Pneumonia) which is a PF. I am 27year old. I had symptoms from last 9 months. I had all kind if test done like blood test, lung function test,ct scan, lung biopsy. Its

very hard for me to know that I have this disease as I am just 27 and started my life.I was going to get married this year but know I am thinking if I should get married or not. Can some one tell me: 1. how long a person lives after being diagnosed with PF. 2. Are trials in Medical research centers helpful. 3. Anyone of you are taking trials?? 4. I am in California, do any one knows any good doctor in California, oregon or Washington. I came to know last week that I have PF and since that day every day is like a hell for me. Can some please help me!! Thanks Rick

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

HI , Where is the doctor in San Diego. I live near the Ontario Airport, and we are not too happy with my dad's doctor...just wondering.Cyndi (Dad PF 12.05)denise randel wrote: Rick, I just got back from vacation and read your email. What part of CA do you live? I have a good doctor in San Diego- are you close by? helpforpf <helpforpf> wrote: Hi All, My Name is Rick and I have been diagnosed this month(Sep 06) with UIP (Usual Intersitial Pneumonia) which is a PF. I am 27year old. I had symptoms from last 9 months. I had all kind if test done like blood test, lung function test,ct scan, lung biopsy. Its very hard for me to know that I have this disease as I am just 27 and started my life.I was going to get married this year but know I am thinking if I should get married or not. Can some one tell me: 1. how long a person lives after being diagnosed with PF. 2. Are trials in Medical research centers helpful. 3. Anyone of you are taking trials?? 4. I am in California, do any one knows any good doctor in California, oregon or Washington. I came to know last week that I have PF and since that day every

day is like a hell for me. Can some please help me!! Thanks Rick Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Cyndi, She is Smita Desai at UC San Diego. San Diego is 7th in the country for transplants and UCLA is rated as 14th. I have changed doctors 4 times since I was first diagnosed in March. I have been seeing Desai since June and am very pleased. She has been extremely thourough and takes a lot of time explaining everything to me. wrote: HI , Where is the doctor in San Diego. I live near the Ontario Airport, and we are not too happy with my dad's doctor...just wondering.Cyndi (Dad PF 12.05)denise randel <dnsrndl> wrote: Rick, I just got back from vacation and read your email. What part of CA do you live? I have a good doctor in San Diego- are you close by? helpforpf <helpforpf> wrote: Hi All, My Name is Rick and I have been diagnosed this month(Sep 06) with UIP (Usual Intersitial Pneumonia) which is a PF. I am 27year old. I had symptoms from last 9 months. I had all kind if test done like blood test,

lung function test,ct scan, lung biopsy. Its very hard for me to know that I have this disease as I am just 27 and started my life.I was going to get married this year but know I am thinking if I should get married or not. Can some one tell me: 1. how long a person lives after being diagnosed with PF. 2. Are trials in Medical research centers helpful. 3. Anyone of you are taking trials?? 4. I am in California, do any one knows any good doctor in California, oregon or Washington. I came to know last week that I have PF and since that day every day is like a hell for me. Can some please help me!! Thanks Rick Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. __________________________________________________

[Guest guest]

Thanks ! Are you on the transplant list? Have a great day!Cyndi (DAD PF 12/05)denise randel wrote: Cyndi, She is Smita Desai at UC San Diego. San Diego is 7th in the country for transplants and UCLA is rated as 14th. I have changed doctors 4 times since I was first diagnosed in March. I have been seeing Desai since June and am very pleased. She has been extremely thourough and takes a lot of time explaining everything to me.

<2kidsformesbcglobal (DOT) net> wrote: HI , Where is the doctor in San Diego. I live near the Ontario Airport, and we are not too happy with my dad's doctor...just wondering.Cyndi (Dad PF 12.05)denise randel <dnsrndl> wrote: Rick, I just got back from vacation and read your email. What part of CA do you live? I have a good doctor in San Diego- are you close by? helpforpf <helpforpf> wrote: Hi All, My Name is Rick and I have been diagnosed this month(Sep 06) with UIP (Usual Intersitial Pneumonia) which is a PF. I am 27year old. I had symptoms from last 9 months. I had all kind if test done like blood test, lung function test,ct scan, lung biopsy. Its very hard for me to know that I have this disease as I am just 27 and started my life.I was going to get married this year but know I am thinking if I should get married or not. Can some one tell me: 1. how long a person lives after being diagnosed with PF. 2. Are trials in Medical research centers helpful. 3. Anyone of you are taking trials?? 4. I am in California, do any one knows any good doctor in California, oregon or Washington. I came to know last week that I have PF and since that day every day is like

a hell for me. Can some please help me!! Thanks Rick Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. __________________________________________________