Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Memory problems, I don't know if I have pressure in my spine.but I sure relate to memory problems! My kids started calling it " Percocet head " . I only recently learned that loss of memory, or the tendency to have problems utilizing words is part of Fybro and CFS. I honestly couldn't figure out why I seemed to be losing my ability to function. It is especially difficult since I love the use of words in my creative life. I am an author, a person who uses creativity as an outlet of the deepest parts of myself. My kids suffer more for it as well. My daughter gets so frustrated when she tells me something and I forget. Parts of her life seem unimportant because I forget that she has shared them with me. I've recetnly decided I need to start writing every request of my kids, every date, and even with that information slips away , never to be seen or heard from again unless I have a fleeting moment of sanity or , worse yet, I find out I have once again let someone down. The most scary part of this has been my ability to work. I love working, but the bottom line is that no-one wants an employee who can't remember how to do things that they've told her over and over to do. Between the pain of trying to sit in an office for eight hours, and feeling diminished because I can't remember the detailed information for my job, I've never felt so foolish and beaten in all of my life. I was so excited about being able to go back to work after being out for five years. I started in May, and already I'm being let go because I've missed too much work. Memory, or lack thereof, is painful. I think you're right that knowing its a problem kind of makes it worse. At least if we have Alzheimers or something like that the person often has no idea that their slipping away. We, on the other hand, feel every centimeter of movement toward the vast cavern of secrets held by our own minds and bodies. Know that your not alone, and even if that doesn't help, maybe we can breathe a bit easier knowing that all of our collective thoughts and information may be keeping our minds fresh and more able to exercise our intellects! Charlotte in WA. Quote Link to comment Share on other sites More sharing options...
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