Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 How many of you need a wheelchair? I hope I will never get to that point. I guess mine is mild but I do have that fatty tumor thing. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi Dianne My NS assures me that I will never need a wheelchair. That is of course if a detethering operation doesn't go wrong!! Carey Hove UK > How many of you need a wheelchair? I hope I will never get to that point. > I guess mine is mild but I do have that fatty tumor thing. > > Dianne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Ooh...good question. I'll be interested to see the answers too. I'm not in a wheelchair thankfully. I still work in an office 40 hrs, keep up my house and try to help with the grandsons that live across the street. I'm just MUCH slower at all of these tasks than most would be. When I go shopping or when my daughter and I took the boys to the county fair....I ALWAYS push the cart or stroller. I find it extremely difficult to walk very far at all without that aid. This is probably the most difficult of things to accept...the ability to walk very far with out being " wobbly " so to speak. It just seems the harder I try to walk very well...(not duck-like) the worse I walk...dunno. BUT, as always....there are those FEW and FAR BETWEEN days where I can walk pretty good! I LOVE those days! Of course then you PAY....for days!!! If you over do. I wish my neurosurgeon would give me some ideas of what to expect in the future....I'm probably not asking the right questions. I've been thinking about just writing him a letter....when his assistant called to ask me when I wanted to schedule surgery (excuse me?!?) I told her I really really wanted to discuss everything with my Dr. first. She said I could discuss everything with him because she would have me come in a week before surgery for the pre-op eval. Wow! I'm not sure I like his new assistant... Of course, lately....I'm concentrating on much more important things. I have the MOST GORGEOUS little grandson...4 years old and he's autistic. He's the most affectionate (which usually doesn't happen), beautiful little guy in the world...(I'm not biased of course) but I am so trying to help my daughter with the trials of raising him by mostly helping with the little one (8 mos.) Guess that helps keep my mind off of my problems although..boy...if I could MOVE better...sure would be a HUGE HELP! Thanks for listening...and sorry bout the whine! Lynn > How many of you need a wheelchair? I hope I will never get to that point. > I guess mine is mild but I do have that fatty tumor thing. > > Dianne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi Dianne, I am not in a wheelchair, but my neurosurgeon told me that I can expect " significant spinal degeneration " in my 50s and 60s (I'm 33). I suppose that means I might need a wheelchair at some point in the future. And Carey, I WISH MRIs could show pain! My surgeon would be in for quite a shock if that were the case. And I think most doctors would be a heck of a lot more understanding! Have a pain-free day everyone, Debbie Date: Mon, 9 Aug 2004 17:24:02 EDT From: JMBWE123@... > Subject: Re: coping with TCS > > How many of you need a wheelchair? I hope I will never get to that point. I guess mine is mild but I do have that fatty tumor thing. > > Dianne Quote Link to comment Share on other sites More sharing options...
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