Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 > The one thing that hit me was when he said that a lot of people with > this disease, lie about it. They don't tell their families, their > employers, their friends or their doctors what's really going on with > them. That was me. I never talked about any symptoms or any fatigue > or anything. I didn't talk about it at all until it became > cognitively disabling. Then I had to. It was all new to everyone. > With me, I didn't know that all the difficulties I was having were > related to MS. I blamed myself. To find out that there is a whole > group of people out there that know EXACTLY what I'm talking about > really helps. I wish I had been able to see the show. My husband doesn't want people to know, either. I think it is a huge burden to carry around, but I can't tell him what to do. He has so much pride, and that's why he won't tell, I think. He takes the whole thing very personally, like it's his fault or something. Many people have found out that he has MS, but he doesn't know that they know. I'm not sure how they found out exactly. News spreads pretty fast in a small town, so it wouldn't take long for it to get around. I don't tell him that many people know about him......honestly I think he's better off if he thinks they don't know. It's the "pride" thing with him. I just wish he would tell the people that he works with. The whole world doesn't need to know, but those people DO need to know. But he is very defensive about it all. I think he is afraid that all of his employees will jump ship if they know he has MS. And none of us want people to feel sorry for them. Even I don't want that. I don't want people to feel sorry for me because I have a husband with MS. So I do understand that part. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Jackie, I watched the show also and do think it could have been longer maybe in 2 parts. I wanted him to address about the doctors and how some doctors treat you. Like it is in your head and don’t believe how you really feel. I did agree with him about the marijuana being like you can take severe pain killers which are addicting and not marijuana with a prescription. I do think if it causes relief from pain and suffering I had rather do dope then take those strong pain killers. And you should also tell your boyfriend that just cause Montel takes marijuana for pain doesn't mean you will. Everyone with the disease is different and some people are lucky enough to not be in the pain others are. Like we have said all along people that don’t have this disease and its symptoms don’t know how miserable it can be. So the remark your boyfriend made is typical of someone who is unaware of what some of us go through. I have to admit I have felt like Montel has. I have wanted plenty of times just take a whole bottle of pills, but I too thought of what it would do to my family. I was in denial the first year of my dx and didn’t want to tell anyone about the MS especially my employer. Cause I knew that they would look at me differently and then when I finally told them it happened like I thought. They treated me differently and I felt like I was working in a place where someone was looking at my every move to screw up. There needs to be more awareness out there for employers. Janet Re: Montel Show Janet,I watched Montel today. It seemed too short. There was so much more he could have addressed, but that would be me, the control freak directing. : ) I told to watch it too because maybe he would learn some things about MS. He called me in the middle of it and said, "does this mean your going to start smoking dope?" I knew that's all he would get out of it. *sigh*The one thing that hit me was when he said that a lot of people with this disease, lie about it. They don't tell their families, their employers, their friends or their doctors what's really going on with them. That was me. I never talked about any symptoms or any fatigue or anything. I didn't talk about it at all until it became cognitively disabling. Then I had to. It was all new to everyone. With me, I didn't know that all the difficulties I was having were related to MS. I blamed myself. To find out that there is a whole group of people out there that know EXACTLY what I'm talking about really helps. -- Jackie > Hey Everyone I just wanted to send a note to tell you to check out the Montel Show today. He is going to be interviewed on his own show about his real life struggles with MS and attempted suicide that was described in his new book that is out in stores now.> > I saw the previews to the show and it looks really sad.> > > Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hi I didn't see the show, but have read a a lot about it. As far as the marijuana goes, I hope he does everything possible to decriminalize it for medical reasons. Living In San Francisco it has been an issue for a long time because of AIDS. Personally, I find it ridiculous that something which helps so many people is considered illegal. Just my opinion. As for hiding it--I wish more "celebrities" who have it would stop hiding and do something. Look at what J. Fox has done for Parkinson's. Granted it took him awhile, but at least now he's out there and making himself heard. We need more of that from people who can get the word out, than us "ordinary joes and janes" Not that we can't do our part, they just get more attention. Suicide---I tried it 4 times in the first 3 years of my dx. Obviously unsuccessfully. I hurt everyone, lost my husband, tho our friendship has stayed, lost my friends, and after almost 5 years am beginning to get most of my family back. Not the answer, but doesn't mean it has or probably will ever disappear from my thoughts. Just a humble opinion Re: Montel Show Janet,I watched Montel today. It seemed too short. There was so much more he could have addressed, but that would be me, the control freak directing. : ) I told to watch it too because maybe he would learn some things about MS. He called me in the middle of it and said, "does this mean your going to start smoking dope?" I knew that's all he would get out of it. *sigh*The one thing that hit me was when he said that a lot of people with this disease, lie about it. They don't tell their families, their employers, their friends or their doctors what's really going on with them. That was me. I never talked about any symptoms or any fatigue or anything. I didn't talk about it at all until it became cognitively disabling. Then I had to. It was all new to everyone. With me, I didn't know that all the difficulties I was having were related to MS. I blamed myself. To find out that there is a whole group of people out there that know EXACTLY what I'm talking about really helps. -- Jackie > Hey Everyone I just wanted to send a note to tell you to check out the Montel Show today. He is going to be interviewed on his own show about his real life struggles with MS and attempted suicide that was described in his new book that is out in stores now.> > I saw the previews to the show and it looks really sad.> > > Janet Quote Link to comment Share on other sites More sharing options...
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