Re: Long overdue post

[Guest guest]

hang in there jan. hopefully the dr will make some right choices. kathy in il

[Guest guest]

Thanks for writing, Jan. Sorry you are in limbo at your house, but it

will eventually get done.

Glad you found a physician who cares, and I hope he will figure out how

to help you very soon.

It's good that your experiment on yourself worked out, but be careful!

Too bad that your previous doctors didn't take your concerns about your

meds seriously.

Good luck!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Long overdue post

> Dear Family:

> I have been terribly remiss in writing...I thought once I landed in

Arizona with a permanent address the time would come easier...was I ever

wrong! The Tully saga of if things do not happen to a normal

person...they will to me on a daily basis.

> I am in the house but things are still in an unrest as it sits in the

middle of the AZ dust with no landscaping, sidewalks, or driveway

(imagine the inside of my house as it is the middle of monsoon season

with lots of wind). Consequently, a good deal of my things are in

storage until I can find a niche for everything. The good news is and

keep your fingers crossed.....the forms are going to be set tomorrow and

the cement poured on Tuesday. I have been told the delay is

because...#1 the city fathers take forever to OK permits and #2 there is

a nationwide cement shortage and it is here in AZ pretty bad. I almost

came this close a week or so ago and it was canceled..., however, last

Friday, the front yard was graded in preparation for Monday.

> As far as my health is concerned...a couple of weeks after arriving

here, my aches and pains had reduced themselves to a dull roar (less

humidity)and then I caught a massive infection throughout my body (uti,

ear, throat, lung, etc)and had to be treated with Cipros to get rid of

that. It came back last Thursday, however, seems to have subsided for

the most part. I put my back out on Friday rearranging my living room

(shouldn't have but couldn't stand it any longer)and walking anywhere

has been pure misery. Will go see a Chiro tomorrow....I found a good

one for my daughter a couple of weeks ago and never thought I would be

needing to go.

> I did something unprecedented a little over a month ago when I had the

infections. I had been trying to convince my doctors in San Diego that

I was overmedicated for sometime and they would not work with me and

everytime I issued a complaint about how I felt...I was either ignored

or the dosage upped. I had an appointment at the AFB with an internist

when the infection occurred but he was gone so they put me with a PA.

He would only address the infection even though I told him I felt

drugged all the time. I went home and went through all the information

I had on my meds and made a decision. I decided to stop several and did

so...tapering off over a 3 week period. (Trazadone...given 2 years ago

to replace Elavil which was given to help with the pain at night but did

not. Had several side effects after a 14 year usage of Elavil. Detrol

LA...given to control an overactive bladder...did not....especially

after two diuretics were given in massive doses to control the swellings

in

> my feet, ankles, and legs. Wellbutrin...given to help the

Trazadone...did not. Lasix...to control the swelling at 8 pills a day

plus 1 a day of another one) I would wake up with a terrible headache,

fuzz in the brain(worse than FibroFog)and would be almost unable to do

much of anything. I have an over active bladder for years and the lasix

was keeping me in the bathroom plus I was having accidents several times

a day. Fortunately, they always happened at home. Finally, the

swelling had stopped and 98% of the severe pain, redness and the

sensitivity was gone by the time I saw the Internist as well as the

daily thick headedness. I have only had one day of a very mild swelling

in my right ankle since. At first, the Dr. was aghast, however when I

told him about why and how long and how I am doing now, he said it was

OK. The fuzziness is gone from my thinking, my memory has improved and

the swelling is gone. He has ordered every test from A - Z as he says

he wants to form his own

> ideas on how to deal with the pain and the Fibro. The neurapathy

(sp) I have he said could come from osteo-arthritis and had ordered a

test for that. Since I have COPD, I was sent for a full cardio-pulmonary

workup and I received a referral to a Cardiologist last wee and was able

to make an appointment for the end of October. He seems genuinely

interested in helping me. Right now the only meds I take are X-strength

Tylenol, Hydro...(the other diuretic), Atenelol, Advair, Albuterol (and

not as much as I was prior to stopping the other meds). The pain is

there every day as a constant reminder but the other effects are gone.

I am seeing him again on the 16th so I will try to keep you posted.

> Tale care all and give yourself some TLC.

> Love, ((((Hugs)))), and prayers, Jan =^..^=

[Guest guest]

Jan,

Hopefully your driveway will get poured and your house will stay cleaner. I

remember well the monsoons in Arizona in August. I had considered moving to

Arizona and so I spent 2 weeks there in August. It was long enough to know

that it wasn¹t for me LOL! I¹m glad it is agreeing with you and you¹re

feeling better. Maybe the Florida humidity seems better because the

humidity in NJ was much worse. I haven¹t been here long enough to really

judge, but this is the rainy season and I¹m not any worse.

I¹m glad you found a doctor that is making an effort to help you. Staying

on meds that don¹t help doesn¹t seem logical to me. At least you¹re not

going around with a foggy head anymore.

Take care of yourself and try not to over do it. I know that is hard to do

when you¹re moving and trying to get settled. One baby step at a time.

a

> Dear Family:

> I have been terribly remiss in writing...I thought once I landed in Arizona

> with a permanent address the time would come easier...was I ever wrong! The

> Tully saga of if things do not happen to a normal person...they will to me on

> a daily basis.

> I am in the house but things are still in an unrest as it sits in the middle

> of the AZ dust with no landscaping, sidewalks, or driveway (imagine the inside

> of my house as it is the middle of monsoon season with lots of wind).

> Consequently, a good deal of my things are in storage until I can find a niche

> for everything. The good news is and keep your fingers crossed.....the forms

> are going to be set tomorrow and the cement poured on Tuesday. I have been

> told the delay is because...#1 the city fathers take forever to OK permits and

> #2 there is a nationwide cement shortage and it is here in AZ pretty bad. I

> almost came this close a week or so ago and it was canceled..., however, last

> Friday, the front yard was graded in preparation for Monday.

> As far as my health is concerned...a couple of weeks after arriving here, my

> aches and pains had reduced themselves to a dull roar (less humidity)and then

> I caught a massive infection throughout my body (uti, ear, throat, lung,

> etc)and had to be treated with Cipros to get rid of that. It came back last

> Thursday, however, seems to have subsided for the most part. I put my back

> out on Friday rearranging my living room (shouldn't have but couldn't stand it

> any longer)and walking anywhere has been pure misery. Will go see a Chiro

> tomorrow....I found a good one for my daughter a couple of weeks ago and never

> thought I would be needing to go.

> I did something unprecedented a little over a month ago when I had the

> infections. I had been trying to convince my doctors in San Diego that I was

> overmedicated for sometime and they would not work with me and everytime I

> issued a complaint about how I felt...I was either ignored or the dosage

> upped. I had an appointment at the AFB with an internist when the infection

> occurred but he was gone so they put me with a PA. He would only address the

> infection even though I told him I felt drugged all the time. I went home and

> went through all the information I had on my meds and made a decision. I

> decided to stop several and did so...tapering off over a 3 week period.

> (Trazadone...given 2 years ago to replace Elavil which was given to help with

> the pain at night but did not. Had several side effects after a 14 year usage

> of Elavil. Detrol LA...given to control an overactive bladder...did

> not....especially after two diuretics were given in! massive doses to control

> the swellings in

> my feet, ankles, and legs. Wellbutrin...given to help the Trazadone...did not.

> Lasix...to control the swelling at 8 pills a day plus 1 a day of another one)

> I would wake up with a terrible headache, fuzz in the brain(worse than

> FibroFog)and would be almost unable to do much of anything. I have an over

> active bladder for years and the lasix was keeping me in the bathroom plus I

> was having accidents several times a day. Fortunately, they always happened

> at home. Finally, the swelling had stopped and 98% of the severe pain,

> redness and the sensitivity was gone by the time I saw the Internist as well

> as the daily thick headedness. I have only had one day of a very mild

> swelling in my right ankle since. At first, the Dr. was aghast, however when

> I told him about why and how long and how I am doing now, he said it was OK.

> The fuzziness is gone from my thinking, my memory has improved and the

> swelling is gone. He has ordered every te! st from A - Z as he says he wants

> to form his own

> ideas on how to deal with the pain and the Fibro. The neurapathy (sp) I have

> he said could come from osteo-arthritis and had ordered a test for that. Since

> I have COPD, I was sent for a full cardio-pulmonary workup and I received a

> referral to a Cardiologist last wee and was able to make an appointment for

> the end of October. He seems genuinely interested in helping me. Right now

> the only meds I take are X-strength Tylenol, Hydro...(the other diuretic),

> Atenelol, Advair, Albuterol (and not as much as I was prior to stopping the

> other meds). The pain is there every day as a constant reminder but the other

> effects are gone. I am seeing him again on the 16th so I will try to keep you

> posted.

> Tale care all and give yourself some TLC.

> Love, ((((Hugs)))), and prayers, Jan =^..^=

>

>

>

>

> ~ " We all take different paths in life, but no matter where we go, we take a

> little of each other everywhere. " ~

> ~ " If I could reach up and hold a star for every time you've made me smile, the

> entire evening sky would be in the palm of my hand. "

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Peg, welcome back! I am really sorry about Eva.

I took a quick look at your site and saved a link so I could

go back and check it further. We'll look forward to having

your input again.

MaggieWho's never won? Biggest Grammy Award surprises of all time on AOL Music.