Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Leanne, I've always been extremelly self conscious, probably since I was a teen anyway...and I still don't like people looking at me but heck if it's a choice between having them look and sitting on my couch where they can't see me? Let them look all they want, I'll just smile sweetly back. What I'm finding is that if I meet their eyes and smile, they suddenly realize they've been staring and become embarrassed. Occasionally someone will ask a question but most often no one pays the least attention. They're probably like me too worried about what everyone else is thinking. LOL Leanne, Jack is my best medicine.He gave me half his pb & j the other day and told me it was "good for your yungs" (lungs) Sleepless in NY Beth IPF 06/06Leanne Storch wrote: I'm in the self-conscious club.....I still hate wearing my oxygen...a friend of mine told me to get over myself. I try, I really do....but sometimes the people constantly looking at me bothers me. I know it's not all about me and I want to be active, so I have to wear it. But, life is too short darn it and I don't want to not do stuff, so.....up goes the hose up the nose....we do what we gotta do... Beth - I love Jack!! Sher - YOU can do it. One step at a time. Leanne ipf 1/03 Beth <mbmurtha> wrote: Sher, I was diagnosed only about a month after you...trust me I understand the self consciousness. I've always been one who pays way too much attention to what other people think. I think I'm only just figuring out that life is literally too damn short to live it in that way. If I've only got a few years left when I can be out and about fairly easily,then I'm going to do everything I can, while I can and the heck with anyone who has anything to say about it. Last week I went to a community theater production of Ragtime that my 13 year old nephew had a role in. I met my sister there with my other nephew, 4 and a half year old Jack. Jack, who is also my godson took one look at me, grinned and said, "Aunt Mare!! See, you can come if you bring your air with you!! To him it's just something he accepts as easily as my brown eyes. I'm still me, I just need, "extra air to feel better". If only it was that easy for us to accept,huh? Beth IPF, June 06Sher K Bauman <bofuswbcable (DOT) net> wrote: OUCH! another reminder that I have been complaining. I'm going out tomorrow with my BOA (backpack of air) around my neck. Thanks for another reminder gals. Sher ipf 5-06 Biopsy & my 2 cents(and that's about what it's worth) Beth In a message dated 8/3/2006 3:04:17 PM Central Daylight Time, mbmurtha writes: I'll walk around with cannula up my nose forever if that's the case!! Me too, Beth, And I would NEVER complain. kiss kiss, Ginger ipf 9/04 Dance as if no one is watching and love as if you've never been hurt before. BethDraw close. Hold hands. Life is short. God is good. See the all-new, redesigned Yahoo.com. Check it out. Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. See the all-new, redesigned Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 either i am confused or i missed something somewhere...who is jack?? i am sleepless most of the time too...maybe we should have a sleepless party. lol jaime in houston > OUCH! another reminder that I have been complaining. I'm going out tomorrow with my BOA (backpack of air) around my neck. > Thanks for another reminder gals. > Sher ipf 5-06 > Biopsy & my 2 cents(and that's about what it's worth) Beth > > > In a message dated 8/3/2006 3:04:17 PM Central Daylight Time, mbmurtha@... writes: > I'll walk around with cannula up my nose forever if that's the case!! > Me too, Beth, And I would NEVER complain. > kiss kiss, > Ginger > ipf 9/04 > Dance as if no one is watching and love as if you've never been hurt before. > > > > > > > > > > > > Beth > > Draw close. Hold hands. Life is short. God is good. > > > > --------------------------------- > See the all-new, redesigned Yahoo.com. Check it out. > > > > > > > Leanne Storch-Diagnosed with IPF 1/03 > Executive Assistant & Patient Advocate > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60622 > P > F > > It takes your breath away > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > > > > --------------------------------- > See the all-new, redesigned Yahoo.com. Check it out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 OK...I'm being pretty chatty tonight....my husband is watching Boxing and I'm waiting for him to fall asleep so I can watch Nip/Tuck!!! The whole thing with going out while you are on oxygen...did you ever think that people look at other people all the time....when you are shopping or walking around, you look at people's faces, don't you? Then, probably 10 seconds later, you have forgotten about them.....I think it's the same with us....none of that has changed....it's just that we are sensitive about it.....we are not used to walking around with oxygen....I can promise you that the more you go out, the less you notice people looking at you. The ones who make the comments about " you smoked, didn't you? " are idiots....no one has figured out where to put those people yet....they will always be around and frankly, I think they multiply quite quickly.....but I'll bet many people think " Wow, isn't that great...she/he is out shopping and they are on oxygen! " You gotta think that we are educating the public....so the next person who gets brave enough to go out with their oxygen will have it a little easier. As for the idiots....next time, pretend to sneeze and then look at him and say.. " Oh, I'm sorry, I'm allergic to idiots! " or you could be kinder and say you are allergic to fools....me....I could think of some other words to use.....but, I'll be good.... -- Diane Quinlan dianequinlan@... > Beth wrote: > Sher, > I was diagnosed only about a month after you...trust me I understand the self > consciousness. I've always been one who pays way too much attention to what > other people think. I think I'm only just figuring out that life is literally > too damn short to live it in that way. I'm in the self-conscious club.....I still hate wearing my oxygen...a friend of mine told me to get over myself. I try, I really do....but sometimes the people constantly looking at me bothers me. I know it's not all about me and I want to be active, so I have to wear it. But, life is too short darn it and I don't want to not do stuff, so.....up goes the hose up the nose....we do what we gotta do... Beth - I love Jack!! Sher - YOU can do it. One step at a time. Leanne ipf 1/03 Beth <mbmurtha> wrote: Sher, I was diagnosed only about a month after you...trust me I understand the self consciousness. I've always been one who pays way too much attention to what other people think. I think I'm only just figuring out that life is literally too damn short to live it in that way. If I've only got a few years left when I can be out and about fairly easily,then I'm going to do everything I can, while I can and the heck with anyone who has anything to say about it. Last week I went to a community theater production of Ragtime that my 13 year old nephew had a role in. I met my sister there with my other nephew, 4 and a half year old Jack. Jack, who is also my godson took one look at me, grinned and said, "Aunt Mare!! See, you can come if you bring your air with you!! To him it's just something he accepts as easily as my brown eyes. I'm still me, I just need, "extra air to feel better". If only it was that easy for us to accept,huh? Beth IPF, June 06Sher K Bauman <bofuswbcable (DOT) net> wrote: OUCH! another reminder that I have been complaining. I'm going out tomorrow with my BOA (backpack of air) around my neck. Thanks for another reminder gals. Sher ipf 5-06 Biopsy & my 2 cents(and that's about what it's worth) Beth In a message dated 8/3/2006 3:04:17 PM Central Daylight Time, mbmurtha writes: I'll walk around with cannula up my nose forever if that's the case!! Me too, Beth, And I would NEVER complain. kiss kiss, Ginger ipf 9/04 Dance as if no one is watching and love as if you've never been hurt before. BethDraw close. Hold hands. Life is short. God is good. See the all-new, redesigned Yahoo.com. Check it out. Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 I like the " allergy to idiots " . I think I have that. You could also try saying - " I never smoked. My doctor says I caught some exotic disease from the rain forest. I hope its not contagious! " Tom > > Sher, > > I was diagnosed only about a month after you...trust me I understand the self > > consciousness. I've always been one who pays way too much attention to what > > other people think. I think I'm only just figuring out that life is literally > > too damn short to live it in that way. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 Diane, Oh, I love you!!! As for theidiots....next time, pretend to sneeze and then look at him and say.."Oh, I'msorry, I'm allergic to idiots!" or you could be kinder and say you are allergicto fools.... See, why we need you here! My husband watches boxing too and I HATE it!! I try to ignore it but I will glance up at the screen and they are wiping blood and snot from a guy... UP CLOSE!!! Yuk! Between that and the announcers thinking they have to scream....Aaaaargh! I have earplugs, but I can still hear those whistles and buzzers!!! Why do sports shows have to be so loud??? Joyce PF 1997> > Sher, > > I was diagnosed only about a month after you...trust me I understand the self > > consciousness. I've always been one who pays way too much attention to what > > other people think. I think I'm only just figuring out that life is literally > > too damn short to live it in that way.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 Well my husband watches the hunting and outdoor channel every time I step out of the room..I just tell him " That TV was MY birthday present " then change the channel. I let him win a little. LOL He loves the fights to. I put on head phones and listen to my music.. Have a wonderful God Blessed Sunday Ladies.. Peggy 09/04 ipf Diane, Oh, I love you!!! As for the idiots....next time, pretend to sneeze and then look at him and say.. " Oh, I'm sorry, I'm allergic to idiots! " or you could be kinder and say you are allergic to fools.... See, why we need you here! My husband watches boxing too and I HATE it!! I try to ignore it but I will glance up at the screen and they are wiping blood and snot from a guy... UP CLOSE!!! Yuk! Between that and the announcers thinking they have to scream....Aaaaargh! I have earplugs, but I can still hear those whistles and buzzers!!! Why do sports shows have to be so loud??? Joyce PF 1997 > > OK...I'm being pretty chatty tonight....my husband is watching Boxing and I'm waiting for him to fall asleep so I can watch Nip/Tuck!!! > The whole thing with going out while you are on oxygen...did you ever think that people look at other people all the time....when you are shopping or walking around, you look at people's faces, don't you? Then, probably 10 seconds later, you have forgotten about them.....I think it's the same with us....none of that has changed....it's just that we are sensitive about it.....we are not used to walking around with oxygen....I can promise you that the more you go out, the less you notice people looking at you. The ones who make the comments about " you smoked, didn't you? " a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 When I go out in public with my oxygen, people stare at me too, they're usually polite but I havethis rash on both arms from the steroids so when they see that, they back away, like I'm gonna rub up against them or something. Oh well, I've decided to live my life to its fullest and not worry about what others think. Also, I finally got my back Social Security!!!!!! Yayayayayayaya, I paid a ton of bills and my hubby and I have been doing some shopping. Perfect timing since my daughter gets married in 2 weeks. My atty put my case as urgent in May and I got approved and my first back check by July 31st, not bad, so ya'll appy for your SS... Vicky81856 IPH/PF 4/06 ••••••••••••• Original Message ••••••••••••• OK...I'm being pretty chatty tonight....my husband is watching Boxing and I'm waiting for him to fall asleep so I can watch Nip/Tuck!!! The whole thing with going out while you are on oxygen...did you ever think that people look at other people all the time....when you are shopping or walking around, you look at people's faces, don't you? Then, probably 10 seconds later, you have forgotten about them.....I think it's the same with us....none of that has changed....it's just that we are sensitive about it.....we are not used to walking around with oxygen....I can promise you that the more you go out, the less you notice people looking at you. The ones who make the comments about "you smoked, didn't you?" are idiots....no one has figured out where to put those people yet....they will always be around and frankly, I think they multiply quite quickly.....but I'll bet many people think "Wow, isn't that great...she/he is out shopping and they are on oxygen!" You gotta think that we are educating the public....so the next person who gets brave enough to go out with their oxygen will have it a little easier. As for theidiots....next time, pretend to sneeze and then look at him and say.."Oh, I'm sorry, I'm allergic to idiots!" or you could be kinder and say you are allergic to fools....me....I could think of some other words to use.....but, I'll be good....--Diane Quinlandianequinlancomcast (DOT) net> Beth <mbmurtha> wrote:> Sher, > I was diagnosed only about a month after you...trust me I understand the self > consciousness. I've always been one who pays way too much attention to what > other people think. I think I'm only just figuring out that life is literally > too damn short to live it in that way. To: Breathe-Support Subject: Oxygen wearingDate: Fri, 4 Aug 2006 02:49:26 +0000Content-Type: Multipart/alternative;boundary="NextPart_Webmail_9m3u9jl4l_9323_1154835842_1" I'm in the self-conscious club.....I still hate wearing my oxygen...a friend of mine told me to get over myself. I try, I really do....but sometimes the people constantly looking at me bothers me. I know it's not all about me and I want to be active, so I have to wear it. But, life is too short darn it and I don't want to not do stuff, so.....up goes the hose up the nose....we do what we gotta do... Beth - I love Jack!! Sher - YOU can do it. One step at a time. Leanne ipf 1/03 Beth <mbmurtha> wrote: Sher, I was diagnosed only about a month after you...trust me I understand the self consciousness. I've always been one who pays way too much attention to what other people think. I think I'm only just figuring out that life is literally too damn short to live it in that way. If I've only got a few years left when I can be out and about fairly easily,then I'm going to do everything I can, while I can and the heck with anyone who has anything to say about it. Last week I went to a community theater production of Ragtime that my 13 year old nephew had a role in. I met my sister there with my other nephew, 4 and a half year old Jack. Jack, who is also my godson took one look at me, grinned and said, "Aunt Mare!! See, you can come if you bring your air with you!! To him it's just something he accepts as easily as my brown eyes. I'm still me, I just need, "extra air to feel better". If only it was that easy for us to accept,huh? Beth IPF, June 06Sher K Bauman <bofuswbcable (DOT) net> wrote: OUCH! another reminder that I have been complaining. I'm going out tomorrow with my BOA (backpack of air) around my neck. Thanks for another reminder gals. Sher ipf 5-06 Biopsy & my 2 cents(and that's about what it's worth) Beth In a message dated 8/3/2006 3:04:17 PM Central Daylight Time, mbmurtha writes: I'll walk around with cannula up my nose forever if that's the case!! Me too, Beth, And I would NEVER complain. kiss kiss, Ginger ipf 9/04 Dance as if no one is watching and love as if you've never been hurt before. BethDraw close. Hold hands. Life is short. God is good. See the all-new, redesigned Yahoo.com. Check it out. Leanne Storch-Diagnosed with IPF 1/03 Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 P F It takes your breath away Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Oooh Tom! I love the rain forest reply. Think I'll try that next time-topamo wrote: I like the "allergy to idiots". I think I have that. You could also try saying - "I never smoked. My doctor says I caught some exotic disease from the rain forest. I hope its not contagious!" Tom > > Sher, > > I was diagnosed only about a month after you...trust me I understand the self > > consciousness. I've always been one who pays way too much attention to what > > other people think. I think I'm only just figuring out that life is literally > > too damn short to live it in that way. > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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