Re: Miralax side effects - a silent epidemic?

September 15, 2011

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

September 16, 2011

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

Te

September 16, 2011

Thank you Lillu

To: "miralax " <miralax >Sent: Thu, September 15, 2011 1:38:36 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

September 16, 2011

They have clips from that show on her website. I tell everyone about her

website. I think she is traveling now doing conferences or something because

she has some dates coming up and she isn't accepting even phone consultations

now.

Coincidental note is that my sons Pediatrician who treats his Leaky gut and food

intolerances told me on one of our first visits that he had just spoken with her

on the phone. He is a big advocate for her protocol I guess you could say. But

this is the same Dr. who first suggested Miralax for my son.

>

> Thank you Lillu

>

> ________________________________

>

> To: " miralax " <miralax >

> Sent: Thu, September 15, 2011 1:38:36 PM

> Subject: Miralax " side " effects - a silent epidemic?

>

> Â

> Dear All:

>

> During a general conversation with my DD's preschool teacher, I mentioned that

> my DD had been on Miralax and that I link many of her current issues, amongst

> them her short stature and weak muscles (it's still a struggle for her at

almost

> 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between

> 18 to 25 months of age.Â Well, the preschool teacher told me that she'd had

more

> than a few students whose parents had them on Miralax who, when they tried to

> wean them, found that they couldn't and had to go back to using the drug!!Â

She

> said that these kids were on the drug FOR YEARS!!

>

> I believe that those of us who are on this board are just the tip of the

iceberg

> and that there is a silent epidemic of victims out there who haven't yet

linked

> whatever issues their kids may be having, including the inability to have a BM

> w/o the use of Miralax, for years on end, to their use of Miralax.

>

> We cannot wait for other people like us to find us.Â We have to find them!!

>

> I believe it is our duty to do whatever necessary to bring this to the general

> public's attention and all of the ideas mentioned below have merit, so why not

> approach them all!?Â I love the idea of 60 minutes and 20/20 because

> investigative journalists would do a thorough job and these shows also have a

> really wide viewership.Â I have a friend who is a regular contributor to

> CNN.com.Â She's also a former attorney.Â I'll approach her and see what she

can

> do to help us.Â Another good person to contact is Dr. Sanjay Gupta, who is

the

> " Dr. Oz " for CNN.

>

> I have to say, after my conversation with my DD's preschool teacher, I felt a

> renewed sense of urgency and purpose.Â Perhaps we can form an online

committee

> and approach this in a more organized and targeted manner.

>

> Thank you,

> Lillu Tesfa

>

> ________________________________

>

> To: " miralax " <miralax >

> Sent: Thursday, September 15, 2011 12:26 PM

> Subject: 60 minutes / Dr. Doris Rapp

>

> Â

> Jeanie, you know I will share my heartbreaking story.

> Dr. Phil is more about interpersonal relationships though.

> I have many friends who are saying investigative reporting is what we need. I

am

> leaning towards 60 minutes or Stossel.

>

> Has anyone heard of Dr. Doris Rapp?

> We need her to confirm all of our personal experiences.

> I think she was on Phil Donahue in 1989, one of his highest rated shows ever!

> www.dorisrappmd.com

>

September 16, 2011

By a "silent epidemic" I meant that I feel that there are hundreds of thousands of kids and adults out there on this stuff who do not know yet what harm it may be doing to them because they haven't connected the dots. Those of us who did connect the dots are far from silent.To: "miralax " <miralax >Sent: Thursday, September 15, 2011 8:54 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

September 16, 2011

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually

asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 16, 2011

We used Juice Plus gummies with good success. Also, Nature Calm or Kid Calm mixed into Plum Smart juice. My son loved both of them. Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse. Has anyone used something that has finally helped with their childs constipation? To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic? , let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic? I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many. Desparate in Massachusetts To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic? Dear All: During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!! I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax. We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN. I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner. Thank you, Lillu Tesfa To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 17, 2011

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that

it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 19, 2011

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 20, 2011

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i

figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 20, 2011

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and

certainly not for long-term. We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved. If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for

support.Good luck,LilluTo: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i

figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 20, 2011

-There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:Nature Calm/Kid Calmmagnesium supplementshigh doses Vit CJuice Plus gummiesShakleeepsom salt bathsFruit-EzePlumSmart juiceprobioticsAnd, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)Tracie How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term. We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved. If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.Good luck,LilluTo: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic? as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon! To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic? Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic? http://www.shaklee.com/products.php?sku=20144 This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc. The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days http://www.shaklee.com/products.php?sku=20001 Expensive, but spectacular stuff Jeanie To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic? Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse. Has anyone used something that has finally helped with their childs constipation? To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic? , let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic? I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many. Desparate in Massachusetts To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic? Dear All: During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!! I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax. We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN. I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner. Thank you, Lillu Tesfa To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 20, 2011

my son is now 4 and has been on miralax since he was 2. i took him to a GI clinic because he had been experiencing bowel problems since birth. they told me he had chronic constipation, but i do not believe he has this because he has never had formed stools...even before being started on the miralax. they told me to start him on the miralax and use my own judgment as to how much to give him. since then he has been hospitalized twice for clean outs, has had blood tests, x-rays and a colonoscopy. they told me his colon and rectum were inflamed from the scope results but they could not tell me why. that is another reason i have him scheduled for a second opinion next month. and he was a much better behaved child before he was started on this and his behavior has just gotten worse. he was

allergy tested and i was told he did not have a food allergy and i tried giving him lactose free milk and no dairy and that did not help either. when i try and not give him the miralax for a few days, he can't go at all and i end up with the enema. he is a very picky eater, which he didn't used to be. he won't try anything new, hardly eats any fruits or veggies, and only eats chicken and no other meats. i have tried everything for his diet, even occupational therapy, because he was also diagnosed with sensory input disorder.

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:26 PMSubject: Re: Miralax "side" effects - a silent epidemic?

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 20, 2011

If your child is extremely compacted like my son was...Please be very cautious with any MAGNESIUM supplements. It landed my son into the ICU with septic shalk and they had to remove his entire colon and part of his small intestines. Just be careful!

Steph

-There's lots you can do with your son instead of Miralax. If you check in the " files " section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calmmagnesium supplementshigh doses Vit CJuice Plus gummiesShakleeepsom salt bathsFruit-EzePlumSmart juice

probioticsAnd, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)Tracie

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,Lillu

To: " miralax " <miralax >

Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax " side " effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: " miralax " <miralax >

Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax " side " effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax

Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax " side " effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff Jeanie

To: " miralax " <miralax >

Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax " side " effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AM

Subject: Re: Miralax " side " effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie

To: " miralax " <miralax >

Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax " side " effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: " miralax " <miralax >

Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax " side " effects - a silent epidemic?

Dear All: During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the " Dr. Oz " for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you, Lillu Tesfa

To: " miralax " <miralax >

Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.

Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

Te

-- Steph Bradshaw

Keller Realty

Nw Rent To Own Homes LLC.

www.MyWashingtonHomeSearch.com

www.RentToOwnHomesNw.com

</a>

September 20, 2011

Has your son been tested for hirschsprung's disease?

my son is now 4 and has been on miralax since he was 2. i took him to a GI clinic because he had been experiencing bowel problems since birth. they told me he had chronic constipation, but i do not believe he has this because he has never had formed stools...even before being started on the miralax. they told me to start him on the miralax and use my own judgment as to how much to give him. since then he has been hospitalized twice for clean outs, has had blood tests, x-rays and a colonoscopy. they told me his colon and rectum were inflamed from the scope results but they could not tell me why. that is another reason i have him scheduled for a second opinion next month. and he was a much better behaved child before he was started on this and his behavior has just gotten worse. he was

allergy tested and i was told he did not have a food allergy and i tried giving him lactose free milk and no dairy and that did not help either. when i try and not give him the miralax for a few days, he can't go at all and i end up with the enema. he is a very picky eater, which he didn't used to be. he won't try anything new, hardly eats any fruits or veggies, and only eats chicken and no other meats. i have tried everything for his diet, even occupational therapy, because he was also diagnosed with sensory input disorder.

To: " miralax " <miralax >

Sent: Tuesday, September 20, 2011 5:26 PMSubject: Re: Miralax " side " effects - a silent epidemic?

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: " miralax " <miralax >

Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax " side " effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: " miralax " <miralax >

Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax " side " effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PM

Subject: Re: Miralax " side " effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: " miralax " <miralax >

Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax " side " effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AM

Subject: Re: Miralax " side " effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: " miralax " <miralax >

Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax " side " effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: " miralax " <miralax >

Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax " side " effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the " Dr. Oz " for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: " miralax " <miralax >

Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.

Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.com

Te

-- Steph Bradshaw

Keller Realty

Nw Rent To Own Homes LLC.

www.MyWashingtonHomeSearch.com

www.RentToOwnHomesNw.com

</a>

September 21, 2011

, I've heard that things get worse once they medicate them.............We were on this med for 10 days almost 11 years ago, I can tell you that it gets better but it took a long time. It took about a year for her to quit shaking and almost a decade to stop the behavior issues. For whatever reason, lemonade helps, it's alkaline and the FDA is investigating metabolic acidosis in these children which is too much acid in the blood. This, as I understand it, could be the cause for the behavior. medicating isn't going to correct that problem. see attached.................My dd still has a metabolic problem and I believe was all caused by this medication. She has seen Nephrologists, Endocrinologists, etc. They are checking her Cortizol levels now as she is in the 98% tile for

overweight. If ones liver and kidneys were affected, they cannot filter and rid themselves of things, therefore will show in behavior, I'm sure. Again, medicating will not correct metabolic acidosis in a mild form. One must study the FDA adverse reactions to see that many of these children died from renal failure. To: "miralax " <miralax >Sent: Tue, September 20, 2011 4:39:41 PMSubject:

Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i

figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

1 of 1 File(s)

ucm171059[6]._htm

September 21, 2011

i was convinced that he had Hirschsprung's because i saw a show on it on tv. he had a barium enema and they told me they didn't see any narrowing in his colon and as i stated, he had a colonoscopy and all they told me was that his colon and rectum were inflammed but they didn't know why. there is only one test he hasn't had to test for hirschsprung's and i am hoping they will do it when i take him for a second opinion. i just think there is something physically wrong with his anatomy and they just aren't taking me serious. my mom had ulcerative colitis for 20 years and just recently had a total colectomy and now has an ostomy bag...so it runs in the family....

To: miralax Sent: Tuesday, September 20, 2011 11:42 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Has your son been tested for hirschsprung's disease?

my son is now 4 and has been on miralax since he was 2. i took him to a GI clinic because he had been experiencing bowel problems since birth. they told me he had chronic constipation, but i do not believe he has this because he has never had formed stools...even before being started on the miralax. they told me to start him on the miralax and use my own judgment as to how much to give him. since then he has been hospitalized twice for clean outs, has had blood tests, x-rays and a colonoscopy. they told me his colon and rectum were inflamed from the scope results but they could not tell me why. that is another reason i have him scheduled for a second opinion next month. and he was a much better behaved child before he was started on this and his behavior has just gotten worse. he was allergy tested and i was told he did not have a food allergy and i tried giving him lactose free milk and no dairy and that did not help either. when i try and

not give him the miralax for a few days, he can't go at all and i end up with the enema. he is a very picky eater, which he didn't used to be. he won't try anything new, hardly eats any fruits or veggies, and only eats chicken and no other meats. i have tried everything for his diet, even occupational therapy, because he was also diagnosed with sensory input disorder.

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:26 PMSubject: Re: Miralax "side" effects - a silent epidemic?

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good

idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

--

Steph Bradshaw

Keller Realty

Nw Rent To Own Homes LLC.

www.MyWashingtonHomeSearch.com

www.RentToOwnHomesNw.com

September 21, 2011

PEG burns the skin, see the files section for the MSDSTo: "miralax " <miralax >Sent: Wed, September 21, 2011 8:11:06 PMSubject: Re: Miralax "side" effects - a silent epidemic?

i was convinced that he had Hirschsprung's because i saw a show on it on tv. he had a barium enema and they told me they didn't see any narrowing in his colon and as i stated, he had a colonoscopy and all they told me was that his colon and rectum were inflammed but they didn't know why. there is only one test he hasn't had to test for hirschsprung's and i am hoping they will do it when i take him for a second opinion. i just think there is something physically wrong with his anatomy and they just aren't taking me serious. my mom had ulcerative colitis for 20 years and just recently had a total colectomy and now has an ostomy bag...so it runs in the family....

To: miralax Sent: Tuesday, September 20, 2011 11:42 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Has your son been tested for hirschsprung's disease?

my son is now 4 and has been on miralax since he was 2. i took him to a GI clinic because he had been experiencing bowel problems since birth. they told me he had chronic constipation, but i do not believe he has this because he has never had formed stools...even before being started on the miralax. they told me to start him on the miralax and use my own judgment as to how much to give him. since then he has been hospitalized twice for clean outs, has had blood tests, x-rays and a colonoscopy. they told me his colon and rectum were inflamed from the scope results but they could not tell me why. that is another reason i have him scheduled for a second opinion next month. and he was a much better behaved child before he was started on this and his behavior has just gotten worse. he was allergy tested and i was told he did not have a food allergy and i tried giving him lactose free milk and no dairy and that did not help either. when i try and

not give him the miralax for a few days, he can't go at all and i end up with the enema. he is a very picky eater, which he didn't used to be. he won't try anything new, hardly eats any fruits or veggies, and only eats chicken and no other meats. i have tried everything for his diet, even occupational therapy, because he was also diagnosed with sensory input disorder.

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:26 PMSubject: Re: Miralax "side" effects - a silent epidemic?

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good

idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

--

Steph Bradshaw

Keller Realty

Nw Rent To Own Homes LLC.

www.MyWashingtonHomeSearch.com

www.RentToOwnHomesNw.com

September 21, 2011

how many of these things can be used together? or what do you recommend that i use together? or kind of try all of them to see what works best?

To: miralax Sent: Tuesday, September 20, 2011 5:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39

PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 21, 2011

You can combine some...or just go one by one. For my son, we did the Nature Calm (following bottle instructions, but doubling to start) in the PlumSmart and Juice Plus gummies. We sprinkled probiotics on one meal per day and gave him espom salt baths 2x/week. That seemed to work pretty good. I'd triple up on the Nature Calm if he had problems (like if we traveled or he ate something particularity constipating). That worked for him. You'll probably have to play around a bit to find what works for your son. how many of these things can be used together? or what do you recommend that i use together? or kind of try all of them to see what works best? To: miralax Sent: Tuesday, September 20, 2011 5:51 PMSubject: Re: Miralax "side" effects - a silent epidemic? - There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here: Nature Calm/Kid Calm magnesium supplements high doses Vit C Juice Plus gummies Shaklee epsom salt baths Fruit-Eze PlumSmart juice probiotics And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little) Tracie How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead. From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term. We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved. If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support. Good luck, Lillu To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic? as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon! To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic? Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic? http://www.shaklee.com/products.php?sku=20144 This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc. The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days http://www.shaklee.com/products.php?sku=20001 Expensive, but spectacular stuff Jeanie To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic? Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse. Has anyone used something that has finally helped with their childs constipation? To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic? , let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic? I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many. Desparate in Massachusetts To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic? Dear All: During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!! I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax. We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN. I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner. Thank you, Lillu Tesfa To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 21, 2011

thank you so much! i am going to start this stuff asap. i have got to get my son off of the miralax! i hope it helps him.

To: miralax Sent: Wednesday, September 21, 2011 9:04 PMSubject: Re: Miralax "side" effects - a silent epidemic?

You can combine some...or just go one by one. For my son, we did the Nature Calm (following bottle instructions, but doubling to start) in the PlumSmart and Juice Plus gummies. We sprinkled probiotics on one meal per day and gave him espom salt baths 2x/week.

That seemed to work pretty good.

I'd triple up on the Nature Calm if he had problems (like if we traveled or he ate something particularity constipating).

That worked for him. You'll probably have to play around a bit to find what works for your son.

how many of these things can be used together? or what do you recommend that i use together? or kind of try all of them to see what works best?

To: miralax Sent: Tuesday, September 20, 2011 5:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 22, 2011

, sometimes it's just a simple probiotic they are deficient in..................with the use of antibiotics, this is becoming more common, this is why you see all the commercials about Activia yogurt, etc. I like Kirkman labs, chewable probiotic as it's child friendly. Doctors recommend a good probiotic. They are expensive but worth it. just type in kirkman labs and hit search mail and all my posts with the links will pop up..............For constipation, Shaklee herblax helped us get off Miralax with just a few doses, all naturalJeanieTo: "miralax " <miralax >Sent: Wed, September 21, 2011 8:52:42 PMSubject: Re: Miralax "side" effects - a silent epidemic?

how many of these things can be used together? or what do you recommend that i use together? or kind of try all of them to see what works best?

To: miralax Sent: Tuesday, September 20, 2011 5:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39

PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 26, 2011

Vitamin D is a fat soluble vitamin. (as opposed to water soluble ones like Vit. C) Which means it can be toxic to the body as it cannot be excreted properly if you ingest too much of it. I would check with your ped before giving your child any more than 100% of the RDA. Just an FYI as this can be dangerous. From: Tracie Happel

To: miralax Sent: Tuesday, September 20, 2011 6:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:Nature Calm/Kid Calmmagnesium supplementshigh doses Vit CJuice Plus gummiesShakleeepsom salt bathsFruit-EzePlumSmart juiceprobioticsAnd, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)Tracie How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally

believe that Miralax has no business being ingested by children and certainly not for long-term. We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved. If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this

group for support.Good luck,LilluTo: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic? as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is

getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon! To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic? Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic? http://www.shaklee.com/products.php?sku=20144 This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc. The Ocean Wonders

Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days http://www.shaklee.com/products.php?sku=20001 Expensive, but spectacular stuff Jeanie To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic? Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the

problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other

choice is even worse. Has anyone used something that has finally helped with their childs constipation? To: miralax Sent: Friday, September 16, 2011

7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic? , let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic? I really don't know what to do. I'm trying to wean my daughter off of the Miralax.

She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many. Desparate in Massachusetts To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic? Dear All: During a general conversation with my

DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!! I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN. I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of

urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner. Thank you, Lillu Tesfa To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 27, 2011

However, Vit D3 is NOT fat soluble. It's a safer choice, but needs to be supplemented with Vit A for proper absorption. Vitamin D is a fat soluble vitamin. (as opposed to water soluble ones like Vit. C) Which means it can be toxic to the body as it cannot be excreted properly if you ingest too much of it. I would check with your ped before giving your child any more than 100% of the RDA. Just an FYI as this can be dangerous. To: miralax Sent: Tuesday, September 20, 2011 6:51 PMSubject: Re: Miralax "side" effects - a silent epidemic? -There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:Nature Calm/Kid Calmmagnesium supplementshigh doses Vit CJuice Plus gummiesShakleeepsom salt bathsFruit-EzePlumSmart juiceprobioticsAnd, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)Tracie How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term. We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved. If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.Good luck,LilluTo: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic? as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon! To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic? Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic? http://www.shaklee.com/products.php?sku=20144 This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc. The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days http://www.shaklee.com/products.php?sku=20001 Expensive, but spectacular stuff Jeanie To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic? Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse. Has anyone used something that has finally helped with their childs constipation? To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic? , let the group know what you've tried, they may be able to help. How old and what have you tried? Jeanie To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic? I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many. Desparate in Massachusetts To: "miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic? Dear All: During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!! I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax. We cannot wait for other people like us to find us. We have to find them!! I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN. I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner. Thank you, Lillu Tesfa To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

September 27, 2011

Most people are deficient in Vitamin D. Often family members are all low - that was the case with our family when we were tested. The FDA hasn't caught up with recent research on the need for D. I take 4000 iu/day just to stay within normal blood level range and have retested every 6 mos. I give my kids 1000-2000 iu/day and we aren't getting the respiratory infections we used to get in winter. This is the Vitamin D Council website...

http://www.vitamindcouncil.org/

Carol

Vitamin D is a fat soluble vitamin. (as opposed to water soluble ones like Vit. C) Which means it can be toxic to the body as it cannot be excreted properly if you ingest too much of it. I would check with your ped before giving your child any more than 100% of the RDA. Just an FYI as this can be dangerous.

To: miralax Sent: Tuesday, September 20, 2011 6:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

< /div>

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "< a href="mailto:miralax " rel="nofollow" target="_blank" ymailto="mailto:miralax ">miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

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