Guest guest Posted July 14, 2006 Report Posted July 14, 2006 Peggy, The transplant coordinator at sent a letter. She said that I might be a candidate. I would have to wait about the stent and then do a lot more testing, be able to do the treadmill and lose 22 more pounds. Good grief, they want healthy people!!! Will you have to make an appointment and go back to see him? They told me that I should come back in six months. I just want to be left alone, get well and get back to normal. Think that is going to happen? I pray that you will find strength and know what to do. It is so hard for those of us who are control freaks and perfectionists to have to be helpless. I was always the one to help everyone else. I pray for you always, Joyce PF 1997 >> My Pulmonary Dr. wants me to call my transplant Dr and go over all the> options of the transplant. I have just had such a hard time telling me to> have it done. My main thing is "What will my quality of life be?" I am so> tired of being waited on. I wanna cook and clean my own house..GGGRRRR Think> I'm having an angry moment. Sorry Diane..> She also said once you are listed your doing it... I'm going to call the> first of the week. > How Have you been other than HOT? I've been thinking about you. missed> seeing your posts.. God Bless you... Love and Prayers...Peggy 09/04 ipf> > > > I must have missed something, Peggy...what decision do you have to make??> > --> Diane Quinlan > dianequinlan@...> Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 I have a suggestion for you, Peggy, and any others who are considering lung transplant....why don't you ask if you can meet at least 2 other people who have had lung transplant.....the American Cancer Society will help a newly diagnosed patient with breast cancer to meet with another woman who has gone through the surgery so she can ask her the questions and get an idea of what that is like. It's beneficial for the patient to talk to someone who knows exactly what it feels like and it's also beneficial for the other person to realise how far they have come and to know they are helping someone who has the same fears they had. I'd be very surprised if the transplant people aren't doing this same thing. Making the decision to have a lung transplant is a life altering one. The transplant surgeon I used to work with often said that you are taking a disease that is difficult to manage and exchanging it with another that is a little easier to manage. Did anyone mention this to you? I think it would help you to make a decision. Don't let them rush you, Peggy....you are the one who has to live with whatever your choice is, not them. Don't leave until they answer everything you want to know....it's a hard decision to make, but you'll do the right thing. Be strong, girl!! And know you are loved. --Diane Quinlan dianequinlan@... Quote
Guest guest Posted July 14, 2006 Report Posted July 14, 2006 Thanks Diane, It is so nice to have our #1 nurse back. Leanne has someone for me to talk to from Washington State. Then maybe I can get hold of . I'm a little worried about him we haven't heard from him for a couple weeks, Hon, I took my pill and it's going to work tonight,,, I'm going to crawl into bed,, lol God Bless, Love and Prayers...ZZZZZZZZZ...Peggy 09/04 ipf I have a suggestion for you, Peggy, and any others who are considering lung transplant....why don't you ask if you can meet at least 2 other people who have had lung transplant.....the American Cancer Society will help a newly diagnosed patient with breast cancer to meet with another woman who has gone through the surgery so she can ask her the questions and get an idea of what that is like. It's beneficial for the patient to talk to someone who knows exactly what it feels like and it's also beneficial for the other person to realise how far they have come and to know they are helping someone who has the same fears they had. I'd be very surprised if the transplant people aren't doing this same thing. Making the decision to have a lung transplant is a life altering one. The transplant surgeon I used to work with often said that you are taking a disease that is difficult to manage and exchanging it with another that is a little easier to manage. Did anyone mention this to you? I think it would help you to make a decision. Don't let them rush you, Peggy....you are the one who has to live with whatever your choice is, not them. Don't leave until they answer everything you want to know....it's a hard decision to make, but you'll do the right thing. Be strong, girl!! And know you are loved. -- Diane Quinlan dianequinlan@... Quote
Guest guest Posted July 16, 2006 Report Posted July 16, 2006 I'm not sure who I am writing to, Diane or Peggy? My eval was Penn. On the first day, i met several people who were in the first 12 weeks of transplant. They were all very happy at this time. There is a transplant support group once a month at Penn. There is also an online transplant support group. It is called Second Wind Lung Transplant ......... It's a tough decision, but you need to find out all of your options. Pink Joyce IPF 3/06 > > I have a suggestion for you, Peggy, and any others who are considering lung transplant....why don't you ask if you can meet at least 2 other people who have had lung transplant.....the American Cancer Society will help a newly diagnosed patient with breast cancer to meet with another woman who has gone through the surgery so she can ask her the questions and get an idea of what that is like. It's beneficial for the patient to talk to someone who knows exactly what it feels like and it's also beneficial for the other person to realise how far they have come and to know they are helping someone who has the same fears they had. > I'd be very surprised if the transplant people aren't doing this same thing. Making the decision to have a lung transplant is a life altering one. The transplant surgeon I used to work with often said that you are taking a disease that is difficult to manage and exchanging it with another that is a little easier to manage. Did anyone mention this to you? I think it would help you to make a decision. Don't let them rush you, Peggy....you are the one who has to live with whatever your choice is, not them. Don't leave until they answer everything you want to know....it's a hard decision to make, but you'll do the right thing. Be strong, girl!! And know you are loved. > > -- > Diane Quinlan > dianequinlan@... > Quote
Guest guest Posted September 9, 2006 Report Posted September 9, 2006 Peggy...your typing "sounds" just like you too! Wonder why we think that strange? It IS US. hehehe. Sher Different oxygen tanksI have an idea....why don't we all put a photo of our portable tanks....it might help people to explain what they use....I know I'm curious about some of the systems.....what do you think?--Diane Quinlandianequinlancomcast (DOT) net Quote
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