Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Stuart, I am interested in your comments but would appreciate some clarification. Am I right in saying that the ablation was not successful? Was that because they failed to accurately locate the focal points or what? Are you in permanent a/fib or did they trigger a/fib before the ablation procedure? Was there any beneficial result such as reduced number of episodes of A/fib. Thanks for your comments. Greg In AFIBsupportegroups, STUART <stuart.gallacher2@u...> wrote: > I had an ablation in London last month found two focal points.One near av node and one near sinus node,good point ectopics start AF bad point location.I got told wait for new catheters coming out better chance out in a few months.The procedure was 5 hours but painless if anyone considering it nothing to be scared of. Stuart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 Greg, Here is my opinion on RF catheter ablation. I had three of them. None worked, and maybe the last one made things worse. I recently had the surgical maze procedure done by Dr. . My AF is cured but my AV and Sinus Nodes are not working yet so they put in a pacemaker. Dr. doesn't know why my nodes are not working - he says it may be that my heart has not recovered from surgery yet or possibly that they were damaged by one of my RF catheter ablations. He does not know. My opinion, avoid RF catheter ablation if you are considering the surgical maze route. Besides, RF catheter ablation cure rates continue to be below 50%, not worth it until cure rates go way up. Bob Reiley Re: ablation Stuart, I am interested in your comments but would appreciate some clarification. Am I right in saying that the ablation was not successful? Was that because they failed to accurately locate the focal points or what? Are you in permanent a/fib or did they trigger a/fib before the ablation procedure? Was there any beneficial result such as reduced number of episodes of A/fib. Thanks for your comments. Greg In AFIBsupportegroups, STUART <stuart.gallacher2@u...> wrote: > I had an ablation in London last month found two focal points.One near av node and one near sinus node,good point ectopics start AF bad point location.I got told wait for new catheters coming out better chance out in a few months.The procedure was 5 hours but painless if anyone considering it nothing to be scared of. Stuart Web Page /group/AFIBsupport Afibbers Database- http://www.dialsolutions.com/af To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups Daily digest mode: Send a blank message to AFIBsupport-digestegroups Individual emails: Send a blank message to AFIBsupport-normalegroups Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2000 Report Share Posted November 9, 2000 I interpreted his comments to mean that the laser ablation to his right atrium, so far at least, has been a success; Re: ablation > Stuart, > > I am interested in your comments but would appreciate some > clarification. Am I right in saying that the ablation was not > successful? Was that because they failed to accurately locate the > focal points or what? Are you in permanent a/fib or did they trigger > a/fib before the ablation procedure? Was there any beneficial result > such as reduced number of episodes of A/fib. > > Thanks for your comments. > > Greg > > In AFIBsupportegroups, STUART <stuart.gallacher2@u...> wrote: > > I had an ablation in London last month found two focal points.One > near av node and one near sinus node,good point ectopics start AF bad > point location.I got told wait for new catheters coming out better > chance out in a few months.The procedure was 5 hours but painless if > anyone considering it nothing to be scared of. Stuart > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 Stuart, hang in there. Prayers are with you. Sandy ablation > > Greg it was unsuccessful,they give you a internal cardioversion then try to make it irregular where it starts up they ablate better chance if ectopics.They found ectopics making my heart faster but they would come and go!They say it can take a couple of attempts and with new catheters coming out easier access to focal points.I am going to give it another go , i am in constant AF since coming of amiodarone for the ablation. > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2000 Report Share Posted November 10, 2000 , I followed your operation on your web site with great interest and I am glad to hear that your a/fib has been cured. My a/fib is truly paroxysmal so I am not considering the maze surgery. My cardiologists have recently been saying that ablations in the pulmonary vein area have been more successful (60 to 80%) in " younger " healthy patients and are recommending that I try it. I appreciate your comments because I am still weighing the pros & cons. I hope that you are off the pacemaker soon. Greg In AFIBsupportegroups, " Reiley, " <rreiley@h...> wrote: > Greg, > > Here is my opinion on RF catheter ablation. I had three of them. None > worked, and maybe the last one made things worse. > > I recently had the surgical maze procedure done by Dr. . My AF is cured > but my AV and Sinus Nodes are not working yet so they put in a pacemaker. > Dr. doesn't know why my nodes are not working - he says it may be that > my heart has not recovered from surgery yet or possibly that they were > damaged by one of my RF catheter ablations. He does not know. > > My opinion, avoid RF catheter ablation if you are considering the surgical > maze route. Besides, RF catheter ablation cure rates continue to be below > 50%, not worth it until cure rates go way up. > > Bob Reiley > > Re: ablation > > > Stuart, > > I am interested in your comments but would appreciate some > clarification. Am I right in saying that the ablation was not > successful? Was that because they failed to accurately locate the > focal points or what? Are you in permanent a/fib or did they trigger > a/fib before the ablation procedure? Was there any beneficial result > such as reduced number of episodes of A/fib. > > Thanks for your comments. > > Greg > > In AFIBsupportegroups, STUART <stuart.gallacher2@u...> wrote: > > I had an ablation in London last month found two focal points.One > near av node and one near sinus node,good point ectopics start AF bad > point location.I got told wait for new catheters coming out better > chance out in a few months.The procedure was 5 hours but painless if > anyone considering it nothing to be scared of. Stuart > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport- digestegroups > Individual emails: Send a blank message to AFIBsupport- normalegroups > Read on web only: Send a blank message to AFIBsupport- nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 I'm so sorry you had to have ablation 2x. I have had AFib off and on for years and then developed Aflutter in March. After trying medications (the docs decided I was not a good candidate for conversion) I went for the ablation. My Aflutter ceased immediately and the doc said he found the spot that was " misfiring. " Unfortunately, my AFib was not cured and I still get episodes nearly every day. The docs claim that ablation is not the answer to my AFib. I am trying all kinds of self-help techniques (yoga, sleeping on my right side, continuing with moderate exercise whenever I can, etc.) and I do feel more comfortable with my Afib episodes. And they do seem to be less and less frequent, and shorter in duration. My cardiologist said " just to be patient and see what happens. " I'm willing to wait it out as I do not have too many symptoms. Hope this helps. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2000 Report Share Posted December 3, 2000 Hi Ronnie: One of the features of our Board is *Links* - Once you get in there, I believe its the 4th folder down. /links/AFIBsupport Sorry - I'm not up on Ablations, but I know there are many members here who will come to your rescue. The only one I am familiar with is the AV Node - but the thoughts of purposely being put into a permanent AFib does not appeal to me. Although no meds (except Coumadin) and no symptoms sound good - doesn't it? It's tempting. Ellen ablation > So my a fib friends.....tell me everything you know about ablation!! > I am considering it......- > thanks, > > Ronnie > emailing me personally is fine also. > > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2000 Report Share Posted December 3, 2000 > So my a fib friends.....tell me everything you know about ablation!! > I am considering it......- Hi, Ronnie, besides that, you can go to the web site, get to afibsupport, and do a search (be sure it displays " this archive " ) to find all the messages that mention ablation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 In a message dated 12/4/2000 1:26:28 PM Eastern Standard Time, rreiley@... writes: > Even if you assume that 75% of those > people are not internet savvy, that still leaves us with 250,000 people that > are potential members of groups like this. How many people are in this group > and on other internet based message boards, etc., maybe a few hundred. This > tells me that MOST people that suffer from AF are " cured " by medications, or > ablations (AV node or otherwise), or maybe AF just doesn't bother them. > > But, for people like us, that mostly do suffer from particularly resistant > AF, catheter ablations do not have a good track record. In fact, I > personally have never talked to anyone on the internet that has been " cured " > by catheter ablations. > i would not necessarily agree that these hordes of unheard people are " cured " or not bothered by affib-There are alot of " ignorant " people out there who do not understand what is happening to them and do not question anything-They meekly follow what their Drs. tell them (or don't tell them) and they try to learn to " live with it " . Also many of them have no knowledge of what a newsgroup is or how to access the internet-I don't think they are content and pleased with this but they are resigned to it-It would be great if we could get more of them interested in these internet groups-I also agree with you that ablations have for the most part not worked for those with affib- jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Ronnie, As best I can tell, ablations only rarely have any effect on AF. I had 3 ablations, none worked, the last one, maybe, made things worse. Proceed with caution. Talk to your doctor and ask lots of questions. If ablations worked for AF, everyone with AF would have it done and there would be no need for this group. PS. It is a very easy procedure and you will probably be released the same day. Good Luck, Bob R. ablation So my a fib friends.....tell me everything you know about ablation!! I am considering it......- thanks, Ronnie emailing me personally is fine also. Web Page /group/AFIBsupport Afibbers Database- http://www.dialsolutions.com/af To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups Daily digest mode: Send a blank message to AFIBsupport-digestegroups Individual emails: Send a blank message to AFIBsupport-normalegroups Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Well said Lawrence! I would add that there has been recent success in treating a/fib patients with pulmonary vein ablation procedures because apparently many forms of a/fib originate in the pulmonary veins. Certainly worth talking to your friendly cardiologist about this. Greg > There seem to be different perceptions with regard to ablation. > That is, some in making reference to the possibility of ABLATION as a > possible cure, or avenue to lessening of symptoms, whatever, seem to > attach an effect of complete removal of function of the AV node. I am > aware that some forms of ablation seem to indicate just that - > ablation of the AV node so as to disconnect ventricular response to > the wild signals that AF sends out. The result is leaving the AF to > carry on within the atrium, effectively cancelling it out of the > equation, meaning the patient permanently operates on the pumping > capacity that can be generated by the ventricles, which includes > draining the atria as far as is possible simply by the SUCKING effect > that occurs when the ventricle relaxes, thereby drawing blood through > the valves in preparation for the contraction which will send it on. > In such a scenario there is of necessity a pacemaker fitted, leaving > the patient totally dependent upon a pacemaker, and, coincidentally, > dependent on proximity to emergency care should the mechanical timer > fail, batteries grow weak, etc. > > But certainly not ALL ablations have anything at all to do with > KILLING the AV node - instead the Linear Ablation technique involves > creating burn lines within the atrium, seeking to interrupt the > electrical pathways that contribute to the AF.(Similar to the way the > Maze surgery works, but internally) When such an ablation procedure > fails it is because the offending areas have not been found or > properly interrupted. But do we not ALL know of SOME people who have > had successful RFCA procedures (presuming " successful " means that the > AF episodes have been eliminated, significantly reduced, or reduced to > the extent that meds which DID NOT WORK, now DO work)? I am personally > in communication with a gentleman who had such an ablation, and is > now nearing his first AF-free year in 7 or 8 years. And during his > procedure, the doctors were clearly uncertain that they had found the > offending areas - they just made an educated guess. > > It would be revelatory and comforting if anyone who has had > successes with ablations, whether complete or partial, would pass on > their experiences through this forum. Does it occur to anyone here, as > it occurs to me, that our perceptions of AF, and our grasp of the > statistics of AF, are colored by the fact that all contributors are > ones WHO DO NOT INCLUDE THE NUMBERS OF THOSE WHO HAVE SIMPLY NEVER > BOTHERED TO CONSULT THE WEB, TO SHARE EXPERIENCES, TO RESEARCH THEIR > AILMENTS, ETC, BUT HAVE SIMPLY RELIED UPON THEIR DOCTORS OR CARDIOS, > AND PERHAPS HAD QUITE ACCEPTABLE RESULTS WITH MEDS OR WHATEVER? In > other words, our perceptions of AF stats might be skewed by the fact > that all those who contribute to forums such as this have had a > history of more resistant and belligerent AF than what could be > considered average? > > For what it's worth. Lawrence Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Lawrence, I completely agree that we cannot take what is said on this board without " a grain of salt " . I seem to remember reading that there are 1,000,000 people in the US alone that suffer from AF. Even if you assume that 75% of those people are not internet savvy, that still leaves us with 250,000 people that are potential members of groups like this. How many people are in this group and on other internet based message boards, etc., maybe a few hundred. This tells me that MOST people that suffer from AF are " cured " by medications, or ablations (AV node or otherwise), or maybe AF just doesn't bother them. But, for people like us, that mostly do suffer from particularly resistant AF, catheter ablations do not have a good track record. In fact, I personally have never talked to anyone on the internet that has been " cured " by catheter ablations. Bob R. Ablation There seem to be different perceptions with regard to ablation. That is, some in making reference to the possibility of ABLATION as a possible cure, or avenue to lessening of symptoms, whatever, seem to attach an effect of complete removal of function of the AV node. I am aware that some forms of ablation seem to indicate just that - ablation of the AV node so as to disconnect ventricular response to the wild signals that AF sends out. The result is leaving the AF to carry on within the atrium, effectively cancelling it out of the equation, meaning the patient permanently operates on the pumping capacity that can be generated by the ventricles, which includes draining the atria as far as is possible simply by the SUCKING effect that occurs when the ventricle relaxes, thereby drawing blood through the valves in preparation for the contraction which will send it on. In such a scenario there is of necessity a pacemaker fitted, leaving the patient totally dependent upon a pacemaker, and, coincidentally, dependent on proximity to emergency care should the mechanical timer fail, batteries grow weak, etc. But certainly not ALL ablations have anything at all to do with KILLING the AV node - instead the Linear Ablation technique involves creating burn lines within the atrium, seeking to interrupt the electrical pathways that contribute to the AF.(Similar to the way the Maze surgery works, but internally) When such an ablation procedure fails it is because the offending areas have not been found or properly interrupted. But do we not ALL know of SOME people who have had successful RFCA procedures (presuming " successful " means that the AF episodes have been eliminated, significantly reduced, or reduced to the extent that meds which DID NOT WORK, now DO work)? I am personally in communication with a gentleman who had such an ablation, and is now nearing his first AF-free year in 7 or 8 years. And during his procedure, the doctors were clearly uncertain that they had found the offending areas - they just made an educated guess. It would be revelatory and comforting if anyone who has had successes with ablations, whether complete or partial, would pass on their experiences through this forum. Does it occur to anyone here, as it occurs to me, that our perceptions of AF, and our grasp of the statistics of AF, are colored by the fact that all contributors are ones WHO DO NOT INCLUDE THE NUMBERS OF THOSE WHO HAVE SIMPLY NEVER BOTHERED TO CONSULT THE WEB, TO SHARE EXPERIENCES, TO RESEARCH THEIR AILMENTS, ETC, BUT HAVE SIMPLY RELIED UPON THEIR DOCTORS OR CARDIOS, AND PERHAPS HAD QUITE ACCEPTABLE RESULTS WITH MEDS OR WHATEVER? In other words, our perceptions of AF stats might be skewed by the fact that all those who contribute to forums such as this have had a history of more resistant and belligerent AF than what could be considered average? For what it's worth. Lawrence Web Page /group/AFIBsupport Afibbers Database- http://www.dialsolutions.com/af To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups Daily digest mode: Send a blank message to AFIBsupport-digestegroups Individual emails: Send a blank message to AFIBsupport-normalegroups Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 >i would not necessarily agree that these hordes of unheard people are " cured " >or not bothered by affib-There are alot of " ignorant " people out there who do >not understand what is happening to them and do not question anything-They >meekly follow what their Drs. tell them (or don't tell them) and they try to >learn to " live with it " . Also many of them have no knowledge of what a >newsgroup is or how to access the internet-I don't think they are content and >pleased with this but they are resigned to it-It would be great if we could >get more of them interested in these internet groups-I also agree with you >that ablations have for the most part not worked for those with affib- >jerry Even so, given the 2 million Americans (so probably half a million brits and a few other large populations with English speaking 'internet aware' countries) I would expect the numbers in a group like this one to be larger if a high percentage of AFers were having trouble. It would be nice to know the true figures and I sincerely hope we are not the thin end of a large wedge. No disrespect to the 'silver surfers' but this may be a reason why internet numbers are small - some older folks aren't into this technology. Maybe numbers will increase as the computer savvy generation get older? -- D AFibbers Database http://www.dialsolutions.com/af AFib Suport Group /group/AFIBsupport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 My name is Sheila I am 25 years old and underwent the open heart Maze procedure Aug. 2, 2000. In 95 I underwent EP study and was told that I needed to have the ablation done.. Stupied me I trusted the DR. and agreed. Three doctors later 9 ablation, dual chamber pacemaker, and open heart I finally have my life back, and do not have to worry about if I will wake up or not when I close my eyes. I thank GOD for Fank. We got engaged before all this started and he as been right beside me the entire time. If it was not for him I would have given up. Let me know if I can be of any help or if can. AFIBsupportegroups wrote: > Hi Ronnie, My boyfriend has had 3 radio frequency ablations that were performed by a leading cardiologist here in Belgium. Although the ablations seemed to have " cured " his flutter, he since then has develeped afib (or maybe the afib was there before but they just didn't notice it because of the flutter?) After all I've read on this very informative list, I would not recommend it to anyone, given the succes rate. Whishing you well, Christel So my a fib friends.....tell me everything you know about ablation!! I am considering it......- thanks, Ronnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 I have 9 ablations........Well I am one of the rare one's. I feel that the ablations made my condition worse. I felt better before my first ablation. To me it made my condition worse. You need to do your own research before you say yes or no.... tegroups wrote: > Ronnie, As best I can tell, ablations only rarely have any effect on AF. I had 3 ablations, none worked, the last one, maybe, made things worse. Proceed with caution. Talk to your doctor and ask lots of questions. If ablations worked for AF, everyone with AF would have it done and there would be no need for this group. PS. It is a very easy procedure and you will probably be released the same day. Good Luck, Bob R. ablation So my a fib friends.....tell me everything you know about ablation!! I am considering it......- thanks, Ronnie emailing me personally is fine also. Web Page /group/AFIBsupport Afibbers Database- http://www.dialsolutions.com/af To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups Daily digest mode: Send a blank message to AFIBsupport-digestegroups Individual emails: Send a blank message to AFIBsupport-normalegroups Read on web only: Send a blank message to AFIBsupport-nomailegroups Web Page /group/AFIBsupport Afibbers Database- http://www.dialsolutions.com/af To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups Daily digest mode: Send a blank message to AFIBsupport-digestegroups Individual emails: Send a blank message to AFIBsupport-normalegroups Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Shiela, it sounds like you have really been through a lot. And now doing very well after the Maze. It's really good to have you in the group. Sandy Re: ablation > > My name is Sheila I am 25 years old and underwent the open heart Maze procedure Aug. 2, 2000. In 95 I underwent EP study and was told that I needed to have the ablation done.. Stupied me I trusted the DR. and agreed. Three doctors later 9 ablation, dual chamber pacemaker, and open heart I finally have my life back, and do not have to worry about if I will wake up or not when I close my eyes. > > I thank GOD for Fank. We got engaged before all this started and he as been right beside me the entire time. If it was not for him I would have given up. Let me know if I can be of any help or if can. > AFIBsupportegroups wrote: > > Hi Ronnie, > > My boyfriend has had 3 radio frequency ablations that were performed by a leading cardiologist here in Belgium. Although the ablations seemed to have " cured " his flutter, he since then has develeped afib (or maybe the afib was there before but they just didn't notice it because of the flutter?) > After all I've read on this very informative list, I would not recommend it to anyone, given the succes rate. > > Whishing you well, > Christel > > > So my a fib friends.....tell me everything you know about ablation!! > I am considering it......- > thanks, > Ronnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Sheila, I glad to hear that you are now doing good after the Maze. I would like to get you to post your history on MAZE ALUMNI, web page. the address is http://members2.boardhost.com/mazealumni/ Jack > > Hi Ronnie, > > My boyfriend has had 3 radio frequency ablations that were performed by a leading cardiologist here in Belgium. Although the ablations seemed to have " cured " his flutter, he since then has develeped afib (or maybe the afib was there before but they just didn't notice it because of the flutter?) > After all I've read on this very informative list, I would not recommend it to anyone, given the succes rate. > > Whishing you well, > Christel > > > So my a fib friends.....tell me everything you know about ablation!! > I am considering it......- > thanks, > Ronnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 There have been advances made for atrial fibrillation ablation this year. I don't believe they are there yet but I do believe things are looking better for us afibbers. IF we can hold out long enough maybe there will be an ablation that will really work for us. Don't give up, we have to beat this thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Hi Mark: Welcome to our Group. I also have a Pacemaker (installed July 2000). I have a history of permanent AFIB, but have been on Dofetilide/Tikosyn now for approximately 6 months and have been in NSR. I have no side effects from this med - and praise the Lord...no more tired feeling. As far as Ablation is concerned, you might want to check our Bookmark feature. Once there, you will see the folder entitled *Nonpharmaceutical Treatement, Ablation, Maze, etc* - Click it and you are there: http://groups.yahoo.com/group/AFIBsupport/links. Also, there have been many discussions on the Board about Ablation and another suggestion would be to type in the word *ablation* in the white box marked *archives*in the upper right hand corner of the Home Page. This will pull up any previously posted message contained that particular word. And......we have a database that will give you an idea as to the members who have had some type of ablation. There is the possibility that you may find information pertaining to your other inquiries also in our Database. Once you are in there, I would suggest you fill in your own personal data. Your contribution to this database could be extremely beneficial to all of us. Again, a warm welcome and post often........we look forward to your input. Ellen (PS) What is the name of the Pacemaker Group? ***************** > I am new to this group, and found it through a Pacemaker club (snip) I am looking for advice on Ablations (snip). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 > Hi again Mark: The Database that I was referring to in my previous post is as follows: http://www.dialsolutions.com/af/ I encourage you, and all our new members, to check it out.....its great! Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi Mark - I had AFib for many years and then I developed AFlutter. They did the ablation for the AFlutter (successful - thank God) but it did not end my AFib. I have been told by my doctors in El Paso that ablation is not very successful on AFib only. I have had the same reaction to medication ( I currently take toprol) and I know how frustrating it can be to be so slow that you feel like you can't get anything done. The toprol also makes me feel depressed so on my next visit to my M.D. in April I'm going to ask it I can discontinue the Torpol. If you decide to go ahead with the ablation I can tell you that it's not a " walk in the park " but it isn't the worst thing I've ever undergone either. I'm just so grateful that it worked on the AFlutter. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 One Mans Opinion: On a scale of one to ten, with ten being the worst most painful. Ablation - 2 Maze - 5 Being in the delivery room while my wife had two difficult childbirths - 9 My opinion only, ablation is a " walk in the park " I've had three. Ablation discomfort lasts a couple of hours. Maze is not that bad. After a week or so you forget about how miserable you were. One week! I don't think that anyone should allow a short time of pain to keep you from doing a procedure that may give you long term gain. Not doing ablation or Maze for other reasons is fine - but don't let the pain aspect factor greatly into your decision. Bob Reiley Re: Ablation Hi Mark - I had AFib for many years and then I developed AFlutter. They did the ablation for the AFlutter (successful - thank God) but it did not end my AFib. I have been told by my doctors in El Paso that ablation is not very successful on AFib only. I have had the same reaction to medication ( I currently take toprol) and I know how frustrating it can be to be so slow that you feel like you can't get anything done. The toprol also makes me feel depressed so on my next visit to my M.D. in April I'm going to ask it I can discontinue the Torpol. If you decide to go ahead with the ablation I can tell you that it's not a " walk in the park " but it isn't the worst thing I've ever undergone either. I'm just so grateful that it worked on the AFlutter. Sharon Web Page http://groups.yahoo.com/group/AFIBsupport For more information: http://www.dialsolutions.com/af Post message: AFIBsupport Subscribe: AFIBsupport-subscribe Unsubscribe: AFIBsupport-unsubscribe List owner: AFIBsupport-owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 , How are you doing after your maze surgery which many of us followed with great interest? Are you off the pacemaker? Greg > One Mans Opinion: > > On a scale of one to ten, with ten being the worst most painful. > > Ablation - 2 > Maze - 5 > Being in the delivery room while my wife had two difficult childbirths - 9 > > My opinion only, ablation is a " walk in the park " I've had three. Ablation > discomfort lasts a couple of hours. > Maze is not that bad. After a week or so you forget about how miserable you > were. One week! > I don't think that anyone should allow a short time of pain to keep you from > doing a procedure that may give you long term gain. Not doing ablation or > Maze for other reasons is fine - but don't let the pain aspect factor > greatly into your decision. > > Bob Reiley > > Re: Ablation > > > Hi Mark - I had AFib for many years and then I developed AFlutter. > They did the ablation for the AFlutter (successful - thank God) but it did > not end my AFib. I have been told by my doctors in El Paso that ablation is > not very successful on AFib only. I have had the same reaction to medication > > ( I currently take toprol) and I know how frustrating it can be to be so > slow > that you feel like you can't get anything done. The toprol also makes me > feel > depressed so on my next visit to my M.D. in April I'm going to ask it I can > discontinue the Torpol. If you decide to go ahead with the ablation I can > tell you that it's not a " walk in the park " but it isn't the worst thing > I've > ever undergone either. I'm just so grateful that it worked on the AFlutter. > Sharon > > > Web Page http://groups.yahoo.com/group/AFIBsupport > For more information: http://www.dialsolutions.com/af > Post message: AFIBsupport@y... > Subscribe: AFIBsupport-subscribe@y... > Unsubscribe: AFIBsupport-unsubscribe@y... > List owner: AFIBsupport-owner@y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 >How are you doing after your maze surgery which many of us followed >with great interest? Are you off the pacemaker? I am doing fine, No AF, No Medication. But, I still get frequent PACs and I still have the pacemaker. Overall, I am much better than I was Pre-Maze with frequent PAF. Although, I wish things would have turned out better regarding the pacemaker. Bob R. Re: Ablation > > > Hi Mark - I had AFib for many years and then I developed AFlutter. > They did the ablation for the AFlutter (successful - thank God) but it did > not end my AFib. I have been told by my doctors in El Paso that ablation is > not very successful on AFib only. I have had the same reaction to medication > > ( I currently take toprol) and I know how frustrating it can be to be so > slow > that you feel like you can't get anything done. The toprol also makes me > feel > depressed so on my next visit to my M.D. in April I'm going to ask it I can > discontinue the Torpol. If you decide to go ahead with the ablation I can > tell you that it's not a " walk in the park " but it isn't the worst thing > I've > ever undergone either. I'm just so grateful that it worked on the AFlutter. > Sharon > > > Web Page http://groups.yahoo.com/group/AFIBsupport > For more information: http://www.dialsolutions.com/af > Post message: AFIBsupport@y... > Subscribe: AFIBsupport-subscribe@y... > Unsubscribe: AFIBsupport-unsubscribe@y... > List owner: AFIBsupport-owner@y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 HI, Sharon, What's a thalium stress test? If you do discontinue the toprol, be sure to taper off it vs cold turkey. Quote Link to comment Share on other sites More sharing options...
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