Re: Re: Imogene/Hospice

[Guest guest]

Hi Imogene;

It disturbed me so much about seeing this poor man alone that I sat with him to

the end.

Imogene, I don't know if he was given Morphine. There was no drip, but maybe he

was given it in a shot or something by the nurse. I know that the daughter had

Hospice come in and evaluate her father, I was there when they came in for that

and of course he qualified, he was so weak at that time and covered with

pressure sores and already breathing heavily. After that I never saw Hospice

visit him again and I could not believe they were not there for that poor man at

the end. No one was. The nursing staff at the nh were too busy to sit with him.

They checked on him periodically and his daughter thought he had a few more days

to go according to Hospice. Imogene, I had never seen the death process before.

I felt like maybe it was a Godincidence that I was put in the position to be the

only one at this man's side during his death, so that I would be prepared for

Jim's time. It was a total experience to see the death process taking place and

the different

breathing patterns they go through.

I hear so many say that Hospice is wonderful and they were for Jim when he had

them for 4 months, but Jim was also turned down by them when he was living at

home and I was struggling with him. When Jim had Hospice for those 4 months,

they were there to groom him like; shave him and get him ready in the morning.

They were cheerful with him and very attentive to his needs and to this day when

they see Jim and me in the halls they will come up and say hi and ask how Jim is

doing, that is why I was so disturbed that the poor man dying didn't get any of

the attention that I saw Jim get with Hospice. He got no attention that I could

see. He may have had the pain relief like Morphine, but I don't know what the

nurses gave him for medication really.

If it's in my power, I will not let Jim go that way.

I have heard that Hospice is really backed up with lots of patients and they are

having a hard time getting around to all the patients in our area. Maybe it's

better to put them in a Hospice Facility at the end, so you know they will get

the attention. If Hospice has to visit, they are too strained to get around to

all the patients.

That is why I asked Sheila where she lived, because it may be different in her

area.

Love a lot back at ya!

Jan

Hospice

>

> My mom is doing worse.  the Dr. suggested Hospice.  They came to

> evaluate her and they said that since she could speak and

understood

> what we were saying she probably wouldn't qualify.  I don't

understand,

> she can not walk without assistance, she can't do anything without

> assistance, Her tremors are so bad she can't eat or brush her

teeth. 

> She is delusional, thinks dad is trying to hurt her, and she get

upset

> if I'm not there. 

> Has anyone else had problems with people not understanding about

LBD? 

> They think it is like Alzhiemers, with the memory problems,  mom

> doesn't have that problem, but her symptoms are just as bad.  It

gets

> so frustrating.  I don't know what to do.  I would also like to

know

> what to expect.  All the DR's say is that there is no cure and she

will

> go down hill fast. I feel like no one understands what I am going

> thru.  I'm worried I can't do it but I have to because there is no

one

> else except Dad and he is not well either. 

> thanks for listening!

> Sheila 

>

>

>

> ------------------------------------

>

> Welcome to LBDcaregivers. 

>

>