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This is to sunliz...sorry I don't know your name.

If your doctor thinks a day or a day and a half without pain is called

remission...I think she has a screw loose! I thought remission meant a much

longer

time than 24 or 36 hours.

If you feel you cannot work...then you should apply for disability.

Good luck,

Kay

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< I asked my doctor about taking disability since I do have the

fibro, and the Hidradenitis Suppurativa, and the bulging disc, but

she said that they would probably only consider it for the fibro,

and it is to hard to get since you do have remissions. Well I am

sorry but I hurt all the time, out of a week I might have on average

1 to 1 and a half pretty decent days if that many.

Do most of ya'll have remissions and how long do they last?

Stood out there today and thought I just can't do this

anymore. I have gotten to where I can't do my job good, customers

ask me what is wrong etc.>

Hi Lynette,

I am sorry to hear that you are in so much pain. Bless your heart. I

wouldn't just take the doctor's answer on the disability. You should

contact an attorney who handles disability cases and they can give you

better and more accurate information since they deal with it all the time.

I know people who have got it on FMS only. I got mine on FMS and my

back/neck problems. Have you seen a neurosurgeon for your back problem?

My neurosurgeon and family doctor who were treating me for the back problem

and FMS respectively were instrumental in me getting my disability. Don't

give up hun. I would pursue it.

As far as remission. I know I had my FMS longer than my dx two years ago

and I've not had a remission yet. I have 18+ tenderpoints on dx.

hugs,

Sundra

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In a message dated 6/24/2004 1:19:09 AM Central Daylight Time, fcb@...

writes:

Do most of ya'll have remissions and how long do they last?

i have never had a remission,so far..i hurt everyday,all the time..i would

certainly welcome a remission..(((Hugs))) Carmen

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Wow Lynette,

Personally, I believe you hurt more because you are still working. I don't

think your hubby may understand the difference between a +10 on the pain

scale while you are working, and maybe a +6 while you aren't working. I'm

just grabbing numbers out of the air here, but to the non-fibs, pain may

just be pain and they don't understand the difference in pain levels. Maybe

try to explain the differences. KInd've like a pulled muscle versus a

broken bone. Or even better, men can relate to this one best... it's like

the difference between a sprained ankle and trying to work when you've been

kicked in the groin area. I hope you feel better soon hun, I would try to

disability... if you qualify then it's a lot better than being in that kind

of pain. I have no idea how you've been able to work like that.

gentle hugs,

Norah

Hi to All

And of course this week it has been raining and that makes it

even that much worse.

My husband says I can't quit he understands I hurt, but he says

what job can I get where I will have what I have there. And besides

he says you hurt all the time no matter where you are. LOL he is

right.

Well enough of the ranting and raving. Still hurting and I

dread waking up in the morning if I ever do go to sleep

Love Lynette

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Norah.....wonderful letter as usual. You are the best! Love, Cam

Hi to All

And of course this week it has been raining and that makes it

even that much worse.

My husband says I can't quit he understands I hurt, but he says

what job can I get where I will have what I have there. And besides

he says you hurt all the time no matter where you are. LOL he is

right.

Well enough of the ranting and raving. Still hurting and I

dread waking up in the morning if I ever do go to sleep

Love Lynette

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