Re: Good Morning Everyone

[Guest guest]

Lynnette from Vermont - I have fibro on the top of my left foot - my doctor

just shakes her head at me and says, yes, it's part of your body, you can

have it there. I also have a lot of the symptoms, aches and pains and

bodily problems as most everyone else here on this list has posted. I, too,

have days where it is all I can do to take care of my personal needs, also.

I have days where I sit wrapped up in afghans when it is 90 degrees outside

because I cannot get warm. And I am not sweating, either. It's the fibro,

plus the other things they have diagnosed me with.

I keep telling my doctor and therapist if they diagnose me with anything

else, I will have more alphabet after my name than they do. They only smile

at me and shake their heads. I hate it when they do that.

Oh, and to someone else's response about not being able to spell - I LOVE

SPELLCHECK. I don't ever send an email without one. Used to be a Librarian

before I totally lost my mind and can't stand the thought of sending someone

something that has an incorrect spelling. One of my quirks.

Hope everyone has a wonderful day. Have to go for now. Rambling. Need to

drink more coffee.

Lynnette

Lynn

Good Morning Everyone

> Hello Everyone,

> I read all the time but guess other than one post it has been

> close to a year since I have posted.

> My name is Lynette and I live in a small town in Lincoln County

> Tennessee close to Fayetteville.

> I have 2 children daughter 20 Leah, and son 15 Chad, and a

> wonderful wonderful Husband. Have had Fibro for 21 years, only

> being diagnosed 2 years ago this August. I have Hidradentiis

> Suppurativa and have had it for 25 years only diagnosed 5 years

> ago. I have bulging discs in back with 2 torn discs. Not a

> candidate for surgery.

> I work at a retail clothing store where I am assistant Manager.

> Breaking down shipments lifting 30 to 70 lbs at a time etc. on feet

> 8 to 10 hours a day etc. you get the picture.

> Well now I have some answers to some questions and some

> questions.

> As far as being able to wipe Yes! I can hardly do it some days

> I thought I was going crazy and getting lazy! But then some days I

> could do it. But that is not all sometimes I can not wash my bootie

> good either, just like wiping. And fixing my hair? It is getting

> to be next to impossible. Between taking a bath getting ready and

> actually getting to work I'm already so tired and hurting so bad I

> can hardly go when I get there.

> As far as Pets? WE have a Doxie and 2 beautiful cats yes they

> make up for something I have missing inside I think and bring extra

> joy to the family that I can't.

> Now for the questions I have?

> I take Topamax has anyone tried this and what success have you

> had with it? We have tried so many. Was taking the

> Ammiptitripilyne, but it got to where it didn't work, and then tried

> others got to where they didn't work etc.

> Body got used to the Celebrex so now I take Voltaren was taken

> Piroxicam but body became used to it, and there have been others but

> became immune to them also so right now Voltaren. Take effexor for

> the depression.

> Take Tramadol for the pain at work doesn't do much but 2 will

> take the edge off so that I can work without crying to much.

> Toradol helps but can only use it for the Migraines I get. Lortab

> and other big ones only use when I am going to be off a couple of

> days in a row they knock me loopy. I rarely get two days off in a

> row.

> I hurt so bad when I get home that it takes me a long time to

> go to bed and then a long time to get to sleep. Heck it is a major

> chore just to get out of my car and make it into the house.

> Yesterday I did shipment all day long and the day before. My

> body hurt so bad last night that I guess I got 2 hours good sleep.

> Everyone muscle, bone, ligament, I have is in pain. My shoulders

> and neck are killing me shoulders can't support my head, knees and

> leg muscles are killing me arm muscles are killing etc.

> What does everyone else do that works to relieve some of this

> pain?

> And my feet hurt, does anyone else have the fibro in their feet?

> Ok big question here, for years but not often thank God I get

> freezing fits where I can not get warm. I freeze just like I am in

> a blizzard without any clothes on and this may go on for 2 or 3

> hours, does anyone else do that?

> Well since I have written a book I will let you read it now.

> Love and hugs to all

> Lynette

>

>

>

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the

list as to what treatments do and don't work for us, pls always check with

your dr. Some treatments are dangerous when given along with other meds as

well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

don't be afraid to ask for help. It is the first step to trying to make

that situation better.

>

>

> Have a nice day everyone.

>

>

[Guest guest]

<Hello Everyone,

I read all the time but guess other than one post it has been

close to a year since I have posted.

My name is Lynette and I live in a small town in Lincoln County

Tennessee close to Fayetteville.>

Hi Lynette,

I am glad that you posted. It is nice to meet you. I don't know how in the

world you manage to work doing the type of work you do with all the pain and

also, the spine problems you have. I am on disability. I had to stop

working in March 2002 because I was falling asleep from the meds and crying

because of the pain at my desk.

I have fibro in my feet too. They hurt all the time. I have heard of

Topamax and have even talked to my doc about trying it. The only thing I

know is it is simiilar to Neurontin whereas Neurontin tends to make you gain

weight, supposedly Topamax makes you lose weight. I also have problems with

freezing, but a recent blood test showed that I wasn't getting nearly enough

of my thyroid medicine. My doc increased it this week. I'll have to wait

and see if it makes a difference once it gets into my system good. Another

temp issue is that sometimes I wake up with the upper portion of my body

totally sweaty even in my hair. The room isn't warm when that happens and I

m guessing it is from fibro. It doesn't happen all the time, but does still

happen.

Please let us hear from you more than once a year. :-)

hugs,

Sundra

[Guest guest]

Lynette....you are such a courageous person. How in the world do you work??????

It blows my mind that people with fibro can work. I work, too, but I am a

piano teacher so I set my own hours and the number of kids I teach.

I have arthritis in my feet.....have had surgery for that 3 times. But fibro?

I can't always tell the difference. Hugs, Cam

Good Morning Everyone

Hello Everyone,

I read all the time but guess other than one post it has been

close to a year since I have posted.

My name is Lynette and I live in a small town in Lincoln County

Tennessee close to Fayetteville.

I have 2 children daughter 20 Leah, and son 15 Chad, and a

wonderful wonderful Husband. Have had Fibro for 21 years, only

being diagnosed 2 years ago this August. I have Hidradentiis

Suppurativa and have had it for 25 years only diagnosed 5 years

ago. I have bulging discs in back with 2 torn discs. Not a

candidate for surgery.

I work at a retail clothing store where I am assistant Manager.

Breaking down shipments lifting 30 to 70 lbs at a time etc. on feet

8 to 10 hours a day etc. you get the picture.

Well now I have some answers to some questions and some

questions.

As far as being able to wipe Yes! I can hardly do it some days

I thought I was going crazy and getting lazy! But then some days I

could do it. But that is not all sometimes I can not wash my bootie

good either, just like wiping. And fixing my hair? It is getting

to be next to impossible. Between taking a bath getting ready and

actually getting to work I'm already so tired and hurting so bad I

can hardly go when I get there.

As far as Pets? WE have a Doxie and 2 beautiful cats yes they

make up for something I have missing inside I think and bring extra

joy to the family that I can't.

Now for the questions I have?

I take Topamax has anyone tried this and what success have you

had with it? We have tried so many. Was taking the

Ammiptitripilyne, but it got to where it didn't work, and then tried

others got to where they didn't work etc.

Body got used to the Celebrex so now I take Voltaren was taken

Piroxicam but body became used to it, and there have been others but

became immune to them also so right now Voltaren. Take effexor for

the depression.

Take Tramadol for the pain at work doesn't do much but 2 will

take the edge off so that I can work without crying to much.

Toradol helps but can only use it for the Migraines I get. Lortab

and other big ones only use when I am going to be off a couple of

days in a row they knock me loopy. I rarely get two days off in a

row.

I hurt so bad when I get home that it takes me a long time to

go to bed and then a long time to get to sleep. Heck it is a major

chore just to get out of my car and make it into the house.

Yesterday I did shipment all day long and the day before. My

body hurt so bad last night that I guess I got 2 hours good sleep.

Everyone muscle, bone, ligament, I have is in pain. My shoulders

and neck are killing me shoulders can't support my head, knees and

leg muscles are killing me arm muscles are killing etc.

What does everyone else do that works to relieve some of this

pain?

And my feet hurt, does anyone else have the fibro in their feet?

Ok big question here, for years but not often thank God I get

freezing fits where I can not get warm. I freeze just like I am in

a blizzard without any clothes on and this may go on for 2 or 3

hours, does anyone else do that?

Well since I have written a book I will let you read it now.

Love and hugs to all

Lynette

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

Have a nice day everyone.

[Guest guest]

Hi Lynette and welcome to the group.

I love to read, too. I never go anywhere without a book.

You sound like you are really tired when you come home from work. I used to

work but haven't been able to work for the past 2 years.

I'm glad you joined...this is a great group...lots of friendly and caring

people!

Kay