Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Natasha, Thank you so much. My regular doctor is the one who prescribed the med for me. She did tell me that if I continued to have problems I needed to go and see a gastrenterologist. I've heard that there is a surgery they can do outpatient and I'm going to check into it. I think it would be worth it not to have the problem. The freaky part is talking in my sleep though, lol. -- Re: GERD/Talking in sleep Sundra I dont know about snoring,I dont think i do!!!! dh snores so much i dont think he would here me even if i did as he can sleep through anything. but i do have GORD(in the uk)/GERD. I have had it since a truma so my stomach musule never closes as it was damaged. I have it very severely and have never since going on meds benn able to come of them. I take omeprazole. It is the only med that has worked for me and over the years i have had to up my dose and i am know on 40 mg a day. You may need to swap and change med until you find one that works for you. It took me a while to find one that worked for me. I still get bad days esp know i am preg, bt get them when i am not and have to add another me or take more of my on for a few days. I still reflux (not as much as i did before i found the right med.) but i dont have as much of the burning and pain that i used to i still get soem but it is not all the time. i do all of a sudden start chocking, in my sleep and when i am awake and know how scary it is. omeprazoles trade name in the uk was LOSAC i know its dif in the states. The other thing is what other meds you are on as they can to affect the way you obsorb the reflux meds. I have been offered to have a nissions fud done but i have opted not to have it done at the mo. I think you need to find another med that is right for you. there are lots of diff ones and there are 2 types there are proten pump inhibiters or H2 antagonists. The proton pump inhibtors tend to work better for people with severe GORD/GERD. Hope that helps on the reflux side. Natasha > > I have snored for a long time now, but my husband has told me for > > the last couple of years since > > I've been diagnosed with fibro that I > > alternate between snoring and talking in my sleep. Is anyone else > > having this problem? Is it linked to fibro? I also have GERD and > > am on Nexium. My husband said last night I started choking then sat > > up in the bed coughing and wiping at my mouth with my hand all with > > my eyes closed. He said I then stayed in that position and then > > semi-reclined and started talking in my sleep. He never can > > understand what I am saying. It is the strangest thing and I just > > wondered if anyone else has experienced this with fibro. > > gentle hugs, > > Sundra > > > > > > > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't > > work for us, pls always check with your dr. Some treatments are dangerous > > when given along with other meds as well as to certain health conditions > > or just dangerous in general. > > > > 2. If you are in a difficult situation > > (doesn't matter what it is) pls don't be afraid to ask for help. It is the > > first step to trying to make that situation better. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Thank you so much Natasha for the information. I think that is the thing I worry about most is the fact that sometimes the reflux is really bad and I ve heard that you can develop cancer from it. Other than that, I wouldn't be near as worried about it. I think I may see a gastroenterologist and talk with him about it. I am 41, so I don't know if that would make a difference in terms of surgery or not. hugs, Sundra -- Re: GERD/Talking in sleep (Natasha) Hi Sundra I take omeprazole. It is the only med that has worked for me and over the years i have had to up my dose and i am now on 40 mg a day. You may need to swap and change med until you find one that works for you. It took me a while to find one that worked for me. I still get bad days esp know i am preg, but get them when i am not and have to add another me or take more of my own for a few days. I still reflux (not as much as i did before i found the right med.) but i dont have as much of the burning and pain that i used to i still get some but it is not all the time. omeprazole's trade name in the uk was/is LOSAC i know its has a dif trade name in the states. I have been offered the surgery but at the mo while my meds are controling the reflux i have opted againts it. The cons i seen about the surgery say for my own surcomstances due to my age its a hard one to call as most people either have child reflux and grow out of it and others get it later in life. My reflux has got worse and i have needed to up my medication but i am still within its limits and they said when i get to a stage where i am taking to much meds they would say to do it but until then it is upto me and if i want it they will do it. There are pros and cons to the surgey and at the mo for me the cons outweigh the pros. It is called a nissians fundoplacation(Not sure if i have spelt the second word right). They take a peice of musule from your stomach area and use that to tie around you openning of you stomcah/osophaguas. It depends on how tight they do it as to what type of effect it has afterwards. And like Kay says its not always a simple op.It is major surgery for you in the states you can choose a surgen ( we can not the way or health system works)and like kay sys find a good one. It can be done key hole for which the recovery is alot better. It can fail in rare cases It can sometimes over time become lose and the affects wear of. It can not be repaeted they can only do it once so if it fails or becomes lose they can not do it again. After you have had it you can no longer be sick, burp etc as what they intend the outcome to be is that you can only get food etc into your stomach and nothing can come back out. For most people it does last. They reason the advised me to wait is because if it did wear of because of my age i could be back to square one by the time i was 35 and that would mean higer risk of ulcers, cancer of the osephagus etc if it fail to early (although i am at rick to the same things while i am on the meds as well). But at the mo age is for me not againts and they said it would be best while i was young and being controled by meds to stay that way. But it is still an option for me once my meds are going up top high a set does seems to keep me under control for a few years at a time then i have to up it.And they have said if i want it they would do it. I aslo may not be able to have it key hole as i have lots of scar tissue in my abdo and would peob need open surgery. I am also glad i have not had it done yet as both this and my last preg i was really sick needing to be in hosp and if i had of had it i would have felt worse as i would not have been able to physically sick or if i did manage that i would have prob damaged the surgery. Opps i have gone of a bit sorry Hope i have not given you to much info there. Go and talk to your doc and maybe ask for another med and to see a gastro bod as they will poeb run tests to make sure you have reflux and there is not an underlying reason. Natasha > > Hi Natasha, > What meds do they have you on to treat it? My doctor currently has me on > Nexium and even being on it I still have problems at times with reflux. > Someone told me that there is a simple surgical procedure that can be done > to correct it. Have you heard about this? I'm wondering if anyone in the > group has underwent the procedure and what their results were. > gentle hugs, > Sundra > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Just for my curiosity, what do you pay for the omeprazole? It is Nexium in the US I think. I need to buy some for my dear husband. dash Re: GERD/Talking in sleep (Natasha) Hi Sundra I take omeprazole. It is the only med that has worked for me and over the years i have had to up my dose and i am now on 40 mg a day. You may need to swap and change med until you find one that works for you. It took me a while to find one that worked for me. I still get bad days esp know i am preg, but get them when i am not and have to add another me or take more of my own for a few days. I still reflux (not as much as i did before i found the right med.) but i dont have as much of the burning and pain that i used to i still get some but it is not all the time. omeprazole's trade name in the uk was/is LOSAC i know its has a dif trade name in the states. I have been offered the surgery but at the mo while my meds are controling the reflux i have opted againts it. The cons i seen about the surgery say for my own surcomstances due to my age its a hard one to call as most people either have child reflux and grow out of it and others get it later in life. My reflux has got worse and i have needed to up my medication but i am still within its limits and they said when i get to a stage where i am taking to much meds they would say to do it but until then it is upto me and if i want it they will do it. There are pros and cons to the surgey and at the mo for me the cons outweigh the pros. It is called a nissians fundoplacation(Not sure if i have spelt the second word right). They take a peice of musule from your stomach area and use that to tie around you openning of you stomcah/osophaguas. It depends on how tight they do it as to what type of effect it has afterwards. And like Kay says its not always a simple op.It is major surgery for you in the states you can choose a surgen ( we can not the way or health system works)and like kay sys find a good one. It can be done key hole for which the recovery is alot better. It can fail in rare cases Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Hi Natasha, If you go and see a gastroenterologist...the first thing he/she will want to do is an upper endoscopy. As they are looking into your esophagus during the procedure...he/she can take a small bit of tissue and have it checked for cancer or precancer cells. Precancer cells on your esophagus is called Barrett's syndrome. An upper endoscopy doesn't hurt. It's a same day procedure...but you have to have someone drive you because they do use sedation during the test. Kay Quote Link to comment Share on other sites More sharing options...
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