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Ann,

I was diagnosed with vulvodynia after the birth of my son 7.5mth ago. It

took 4.5 mths to diagnose. I am currently taking Triavil which is

prephezanine and elavil (which is the main ingredient). My side effects were

dizziness, dry mouth, weight gain (5-15lbs.) and tiredness. You have to

wean on the med. and wean off. I am currently taking 45mg of elavil a day.

My vulvodynia has gotten much better but I have gained some weight, dizzy

sporadically, but most of all I am exhausted all of the time. I am a very

hyper person and I feel it very frustrated to be on the medication.

Something as simple thing as taking a walk can be exhausting. I feel very

guilty that I cannot do more than that some days. A positive note is that

this drug seems to be working and I will not have to be on it hopefully not

longer than a year.

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  • 7 years later...

Hello everyone!

I'm Jackie, 29 and single mother of one, and new to the group. I

sought it out in hopes of finding and sharing support and advice.

I have been dealing with headaches, neck pain, arm pain & tingling,

and low back pain following an auto accident in July '05. It's been a

difficult year + with not knowing what was going on physically and

dealing with taking disability from work, and now trying to recover

benefits with my insurance company. If they could make the pain go

away, I would ask them for nothing else. I've been told that the

arthritis must have been present before the accident, but I had never

experienced back or neck problems before, and I'm 29.

At this point I've been diagnosed with severe sleep apnea,

degenerative arthritis of the cervical and lumbar spine, degenerative

disc disease of the lumbar spine (multiple disc bulges in c-spine as

well,) but my spine Dr. believes that most of my pain issues are

myofascial.

Treatments I've had include multiple pain relievers and muscle

relaxers - now I take Tramadol and some motrin as I can function with

these meds, lots of physical therapy (best with spine program where I

also had occupational therapy and weekly visits with a

psychologist,) cervical epidural steroid injection, facet joint

injections at L4/5 and L5/S1 both sides, and most recently a trigger

point injection.

Before the accident I managed a clothing store, now I'm not sure what

I'll be able to tolerate for work. I am making efforts to move

forward, taking online classes and volunteer here and there. Although

things were far worse 6 months ago, I still experience a great deal of

pain with activity. Naturally my goal is to become more active and

find a new job!

I wish you all the best!

Jackie

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  • 2 years later...
Guest guest

Mike, It's OK, belive me. No need to apologize to anyone for taking Vicodin.

They are a derivitive of a drug that has been used to treat pain for over 100

years. They still use it because it works.

There is a whole stigma of drug use by folks who are not in pain of any kind and

that is the abuse part that we all suffer with a little bit because we are on

the ligitimate side of use.

Maintain your self esteeem, your outlook and your life. It is necessary for you

and you cannot be the man you want to be if you are not at least reasonably

comfortable. I took Vicodin for a long time and have unfortunately elevated to

Opana, a stronger medicine. I have no qualms about taking it. I am sitting here

writing this to you being very uncomfortable with right hip pain spikes. Its

just our life. You have found a sympathetic place. Take Care, and manage your

pain. dk

To: Hugs-N-Pain

From: sincityq@...

Date: Mon, 3 Aug 2009 15:35:59 +0000

Subject: Intro

Hello,

I am a new member here. My name is Mike and I currently live in East

Central, Alabama. I am also a chronic pain sufferer.

It all began with a work accident back in 1996. A kid operating a

forklift dropped some steel shelving on me. That was the end of my

working life and the beginning of the one I live now.

About a year after the accident, I was awarded a disability claim.

Following that, my marriage of 14 years ended.

In 1999, I met a woman on the web... we were both coming out of failed

marriages and both desperately seeking someone to hold on to. We have

been together ever since.

Today, I am now well over age 50 and on a maintenance prescription for

Vicodin. It is not a perfect solution but it does allow me to function

at a nominal level. What that means is that I can join my partner in

going to the store or out to a movie. Unfortunately, she has some deeply

seated, preconceived notions about pain and pain killers that does not

really allow for a lot of understanding. Basically, pain killers are

evil and I am silly for taking them.

Pain is an unseen and completely misundertood affliction. People with

ailments that manifest outwardly, have far less problems in dealing with

social stigmas and stereotyping. But pain is often hidden within the

sufferer... and even our closest family and friends have a dificult time

understanding what it is like to wake up in pain, live through each and

every single day with pain and then, take pain to bed with us.

Sometimes, it would just be nice to hear someone say that it's okay...

and that they understand.

Sorry to bend your ears :)

Mike

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Guest guest

Hi Mike and Welcome.

Sorry your other half doesn't understand.

Maybe if she joined a group like this, she

may begin to understand a little better.

I just hope & pray she never has to walk

in our shoes. It's no fun. We're here 4 u.

Deta

>

>

> Hello,

>

> I am a new member here. My name is Mike and I currently live in East

> Central, Alabama. I am also a chronic pain sufferer.

>

> It all began with a work accident back in 1996. A kid operating a

> forklift dropped some steel shelving on me. That was the end of my

> working life and the beginning of the one I live now.

>

> About a year after the accident, I was awarded a disability claim.

> Following that, my marriage of 14 years ended.

>

> In 1999, I met a woman on the web... we were both coming out of failed

> marriages and both desperately seeking someone to hold on to. We have

> been together ever since.

>

> Today, I am now well over age 50 and on a maintenance prescription for

> Vicodin. It is not a perfect solution but it does allow me to function

> at a nominal level. What that means is that I can join my partner in

> going to the store or out to a movie. Unfortunately, she has some deeply

> seated, preconceived notions about pain and pain killers that does not

> really allow for a lot of understanding. Basically, pain killers are

> evil and I am silly for taking them.

>

> Pain is an unseen and completely misundertood affliction. People with

> ailments that manifest outwardly, have far less problems in dealing with

> social stigmas and stereotyping. But pain is often hidden within the

> sufferer... and even our closest family and friends have a dificult time

> understanding what it is like to wake up in pain, live through each and

> every single day with pain and then, take pain to bed with us.

>

> Sometimes, it would just be nice to hear someone say that it's okay...

> and that they understand.

>

> Sorry to bend your ears :)

>

> Mike

>

>

>

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