Re: Hi from the new girl

[Guest guest]

> Please can someone please tell me am I really going CRAZY or is all

this real!!

>

Hi Deborah,

I don't have the conditions that you do, but I can relate well to

hurting all of the time. My problems stem from an auto accident,

whiplash - I have degerative arthritis of the spine and degenerative

disc disease. Never had a problem before the accident. Why I flare

up to having all over muscle/ and now joint pain is unknown. My 8

year old daughter has learned that she can't hug me hard, or lean on

me, or put her head on my shoulder. It's upsetting that she

can't " lean on me. " Since your son can't hug you tightly, tell him

you just need gentle hugs more often!

Best Wishes

Jackie

[Guest guest]

Deb,

I am having a hard time with not being able to feel the fur on my Seizure

Response Dog, Homer. My sensations and feelings go crazy inside the skin.

Homer seems to know that something else is " going on " with his daddy besides the

seizures.

He wants to lick my affected parts constantly. As if he knows, an by doing such

I will get feeling back.

I may have to get out his Stability Harness to help me when I need it. I have

put this off for so long. I have been trying to get myself at least to a

conservative amount of where I had been most of my life.

I have accepted the change in my daily living, but it's been slow to get there.

Everytime I have a seizure it would set my accomplishments back some.

[Guest guest]

Hi Deborah -

Welcome, although I'm sorry for the pain that has brought you here.

I had a very dear friend with RP, so I'm a bit familiar with it and

the challenges it presents. She was a horse-person, and continued

to ride even after her eyesight was almost totally gone. In her

40s, when her sight got bad enough, she applied for and got a seeing

eye dog, and that greatly increased her independence. She really

hated using the cane, so she usually just relied on her friends to

guide her, but she was such an animal person that using a dog fit

perfectly with her lifestyle and didn't make her feel as conspicuous

as the cane. Have you considered that option? I'm sorry that anyone

has to lose their sight, let alone have it just creep away bit by

bit over a matter of years, eating away at your independence.

As for your pain conditions, you're not crazy. I don't have

fibromyalgia myself, but lots of folks here do and can provide you

with their own experiences and support. But I do know what it is to

hurt every moment of every day, and to not be able to sleep because

of it, and the depression that all of it can cause.

Are you getting any treatment at all for your pain? Any meds,

therapy, etc to help? If you are able to get the pain under better

control, and are able to get some help to sleep better, then you'll

feel stronger mentally and will be able to deal with all the

challenges you face better - and won't feel like you're going crazy!

Take care and keep writing.

Cheryl in AZ

>

> Hi allow me to introduce myself, my name is Deborah and I Live in

> Burnaby BC Canada. I have Fibromyalgia,IBS andCFS. I am also going

blind

> slowly due to an eye disease called Retinitis Pigmentosa.

>

> I am in pain most of the day thanks to my fibromyalgia that took

awhile to find a doctor who could tell me what was causing all my

pain. It took 19 yrs to find out that I had fibromyalgia and now it

is affecting my mobility and the movment in my wrists.

>

> My new family doctor has told me that I need to get a walker. All

this is so new to me I feel like I am going crazy. I,m not sleeping

that great because everytime I move it hurts my 21 year old son is

afraid to hug me because it hurts.

>

> Please can someone please tell me am I really going CRAZY or is

all this real!!

>

>

>

[Guest guest]

Deborah wrote:

>

> Hi allow me to introduce myself, my name is Deborah

and I Live in

> Burnaby BC Canada

<<<<<<<<<<<<<<<<<>>>>>>>>>>>>>>>

Hi Deborah

sorry to hear about your pain but welcome to the

group.

BC is on my list of places that I'm visiting later

this winter in a search for a new place to live. I've

got some friends out that way , in the Vancouver area.

I'm going to do my travels during the winter so I find

out how the areas are during the cold months as the

cold usually can reek havok on my back and pain

levels. Well actually not the cold as much as

fluctuations between freezing and warmer .

Here in Buffalo we bounce up and down all winter LOL

One day 15 degrees and the next could be 40

Well I wish you luck with dealing with your pain and

if there's ever anything I can do to help just LMK

Hope your having a pain free and interesting day

Jim

[Guest guest]

deborahlynnsmith45 wrote:my 21 year old son is afraid to

hug me because it hurts.

Hello, welcome to the group. You are not crazy. My husband laughs at me when I

say OUCH everytime he touches me. He thinks I am kidding, but I am very serious.

Its not like that all the time but when I'm in a flair I hurt from head to toe.

Caitlin

Recent Activity

14

New Members

Visit Your Group