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gee kathy i cannot believe you had so many operations my god i am so

afraid to go for one, i mean are there any success stories out there?

i would like to know what are the statistics on this type of

operation as far as retethering and incontinence,i wonder if there is

a database somewhere...i live in jersey about twenty minutes from

nyc...doing research in 98 i found a neurosurgeon McCormick who

only works on backs and does 300 operations a year and is with

columbia presebyterian hospital in nyc.. a young man who was already

an asst. professer in his field ...he said the operation for him was

easy but there would be no guarantees...hmmm and of course the

hospital takes bluecross but he is not on any insurance plan . but if

i could afford it ,i would choose him...then i saw another top doc

here in jersey and told me it would be a very difficult

operation...another hmmm... i knew a guy at work whose wife had

degenerative disks and had the spinal stimulator put in and it seemed

to block the pain...has it been working for you and what kind of pain

were you having?...as far as drugs i read a piece from a colorado

doctor who said methadone would be one of the best drugs to use and

it has much less side effects than any of the otc analgesics..try

asking a doctor for that drug...i guess i would have to become a

junkie first ...the goverments policies on opioids ,etc for people

with pain really needs to be changed ,ohoh i am on my

soapbox,sorry..i did hear recently that a mutant poppy flower has

been discovered to contain non-addictive opioids..i think that would

be a " good thing " ...as far as a lawyer well since i work for the post

office there are only two lawyers who take federal comp. cases in the

whole state...imagine what a backlog of cases they must have...well

you are fortunate to have good family and friends ,i am on my

own ,all of my close friends live out of state or are too far away to

help. i am just hoping to go back to work even if part time and i

hope the pain fades a bit ,sooo i say goodbye for now ank thanks for

the reply kathy

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I'm also in NJ about twenty minutes away from NYC - where are you located? I

grew up in Glen Ridge and now live in Clifton. Who did you see in Jersey?

Jen

20, SB lipomyelomeningocele L1-2, wheels/crutches, AFOs, self-cathed, latex

allergy, TSC (detethered at ages 8 months, 5 years, 11 years, 14 years, and 19

years)

| On Thu, 30 Sep 2004 03:38:44 -0000

| " jerrymoon504 " wrote:

|

|

|

|

|

| gee kathy i cannot believe you had so many operations my god i am so

| afraid to go for one, i mean are there any success stories out there?

| i would like to know what are the statistics on this type of

| operation as far as retethering and incontinence,i wonder if there is

| a database somewhere...i live in jersey about twenty minutes from

| nyc...doing research in 98 i found a neurosurgeon McCormick who

| only works on backs and does 300 operations a year and is with

| columbia presebyterian hospital in nyc.. a young man who was already

| an asst. professer in his field ...he said the operation for him was

| easy but there would be no guarantees...hmmm & nbsp; and of course the

| hospital takes bluecross but he is not on any insurance plan . but if

| i could afford it ,i would choose him...then i saw another top doc

| here in jersey and told me it would be a very difficult

| operation...another hmmm...

=========================

Jen Fitz-Roy

Boston College LSOE '06

fitzroyj@...

6-2443

" Character cannot be formed in ease and quiet. Only through experience of trial

and suffering can the soul be strengthened, ambition inspired, and success

achieved. "

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  • 4 weeks later...

Mad at you! NEVER FOR ANYTHING. Everything you do Laurie is meant with the

best of intentions and if I don't know that about you yet, I'd never know

it.

Kathy

Kathy

>

>

> >

> > Kathy,

> > Laurie told me how you were doing. Congratulations! I am so happy

you

> > were able to return to work. The spinal cord stimulator is a

> God-send for me as well. The only

> > problem I have is they do not last long for me. My last generator

> > change was last May and I will probably have a change in November.

> YOu deserve to feel so much better. You have been through soo soso much.

> > Feel Well,

> > Teri

> >

> >

> >

> >

> >

> > Not Medical Advice. We Are Not Doctors.

> > Need help with the list? Email

> kathy@...,michelle@..., rick@...

> >

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Thanks Kathy. For some reason, I have tried 3 times to get this message through

to your home address, but, maybe it's just about time I take up drinking! It

just won't go..

I do my vewwy vewwy best. :)

Love,

Laurie :)

Those who love deeply never grow old; they may die of old age, but they die

young.

-A.W. Pinero

Kathy

>

>

> >

> > Kathy,

> > Laurie told me how you were doing. Congratulations! I am so happy

you

> > were able to return to work. The spinal cord stimulator is a

> God-send for me as well. The only

> > problem I have is they do not last long for me. My last generator

> > change was last May and I will probably have a change in November.

> YOu deserve to feel so much better. You have been through soo soso much.

> > Feel Well,

> > Teri

> >

> >

> >

> >

> >

> > Not Medical Advice. We Are Not Doctors.

> > Need help with the list? Email

> kathy@...,michelle@..., rick@...

> >

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